Sep
06
    
Posted (Josh) in All Posts on September-6-2008


Ella’s doing better than she was yesterday, but is still far from being as dry as she should be. Her labs indicated a BUN of 14 which may be a bit artificially low due to her lack of feeds over the last couple days, but it’s still a ways from her dry target of 25.

Clinically she’s behaving better, even throwing out some smiles, but her respiratory and heart rate have been more elevated today.

Her IV Lasix was being administered every 3 hours yesterday to help get her dry, but as of 2am this morning, they switched back to every 6 hours. After rounds, we all agreed to switch her back to a Q3 schedule for IV Lasix until she’s completed her journey into feel-good-land. This way, she’ll be in a better place next week to test some other medications that will allow her to hopefully reduce her overall diuretic intake.

We’re excited for next week because we’ll be going after the potential cause of Ella’s fluid issue instead of just treating the symptoms. Please pray for wisdom in finding the right mix of medications.

A bit of good news: Ella was able to transition over to PO pain medications without issue so the pain specialist pulled her caudal epidural at 6am this morning. The removal was pretty rough for Ella, not because of the epidural catheter, but because of all the tape holding it down. Nothing like waking up to someone yanking a bunch of tape off your back (OUCH!). Fortunately, I was able to pick her up and console her pretty quick.

I’m hanging out with the Bun today while Tina runs some errands and shows the house to some prospective renters. We’re trying to be open to what God wants us to do from a rental perspective, so please pray for discernment.

Thanks for keeping up with our precious miracle, and for praying us through this rough time. Praising God for the work He is doing in and through Ella Renae.



Anne on September 6th, 2008 at 11:39 am #

Happy to see her smiling again! Good luck with finding a perfect tenant for your property — not an easy job, I’m sure!

beth on September 6th, 2008 at 11:46 am #

There’s that smile again!! I’m so glad to see it, along with that little twinkle in her eyes!

Roxie (Adrienne's friend) on September 6th, 2008 at 12:46 pm #

What a delight to see Ella smiling!Love ya, Roxie

Kara on September 6th, 2008 at 1:20 pm #

Poor little nose. Good to see she’s cracking smiles again. Love you all.

megan on September 6th, 2008 at 1:34 pm #

Goodmorning Ella I love the smile on your face. I hope that when you are feeling better I will get to see you again. I am praying for you and I have spread your story all around so more and more prayers are heading your way. =)

Laura Marold on September 6th, 2008 at 2:10 pm #

I’m so happy to hear she is feeling better. I’m praying that this trend will continue. It’s so good to see a smile after all she’s been through lately. Good to hear that they will be going after the cause of the fluid issue rather than just treating the symptoms. That is very good news. Love, Laura M.

Matt, Abby, Austin & Caed on September 6th, 2008 at 4:15 pm #

We’re glad for the news that she is feeling a little better. We’re keeping you three in prayer.

Jim and Char Jordan on September 6th, 2008 at 5:17 pm #

We are watching from a far and praying for better days to come. We are with you and your parents in spirit.

Debbie Bennett on September 6th, 2008 at 6:38 pm #

Such a cutie patootie!

Joel Snyder on September 6th, 2008 at 7:14 pm #

Ella, I had a good time today visiting with you and Dad. Sorry about the episode with gas pains this afternoon but I am confident that things will get better going forward. I will see you tommorrow. Love,Grandpa!!!!!!!!!!!!!!

LoriAnn & The Gang on September 6th, 2008 at 7:15 pm #

Wow. I had a lot of catching up to do. Glad that Ella is doing a bit better and that you are getting closer to finding out the “whys” of her fluid issues. Prayers your way through our Lord and Healer.
LoriAnn and part of the gang (Tom is gone, with Jonny, to bury his grandmother – boy, I miss my Hubby and “baby”)

Laura Arneson on September 6th, 2008 at 8:46 pm #

We just love hearing good news! You go girl!

Julie Kirk on September 6th, 2008 at 9:47 pm #

Praying for Ella’s recovery, All three of you to get rested and for discernment and decisions in everything.
So glad to see a big smile this am.
blessings from across the world.

Vicki/CO on September 8th, 2008 at 7:53 pm #

Oh, what a delightful surprise as I’ve been out of town over the weekend, and when I clicked on your e-mail and went to the site and saw Ella smiling, I smiled all the way down to my toes! Oh, you precious baby girl…I can’t get enough of looking at you! God bless you all three, and I continue to pray!

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