Aug
27
    
Posted (jooosh) in All Posts on August-27-2007

(Nathan Greene – Chief of the Medical Staff)

The above image was mentioned by Laura Blackwell and thought we would share (Thanks Laura). This is exactly how I pictured things when our baby girl had her major surgery a week ago today.

Ella had a good night and is scheduled for her x-ray and possible procedure at 12:00pm (EST) today. Please pray.

If you missed it, you’ll want to check out the video from last night’s post. She too picken’ cute!

UPDATE (1:30pm EST):
It’s Tina, writing in with an update. Grandma and I went to the hospital this morning to see Ella before her procedure. Her stats were good, she was stable and calm. She seemed very peaceful as she fell in and out of sleep while gripping Grandma’s finger.

Then around 12 noon, they began the preparations to move her down to radiology. That took about 30 minutes. She is connected to sooo many machines and tubes. There were about 7 staff members involved in her transport.

Before they moved her, they gave her a paralytic medicine so she would not move and be lucent. Then, they switched her to a transportable ventilator machine (one that she does not normally respond well to).

As they started to transport her from the NICU and went through the main doors, something went wrong with the ventilator and she was not getting any oxygen. The machine began to beep loudly and they began to bag Ella. Then, they turned around and came back in the NICU to fix the ventilator and stabilize her again. This was tough to watch! I have no idea how long she was without oxygen. It took them about 10-15 minutes to stabilize her again and fix the ventilator.

From there, we went down to the room where the procedure would be completed. When we walked in, it felt like a freezer. Immediately, Dr. Kays told them that the room was way too cold for a baby and they needed to get it as warm as possible.

Once the bed was next to the operating table, they began to unhook everything from her bed. All the drip lines, IV fluids, catheter, fluid bags from the chest tubes, etc, etc, etc. Then, about 4 of them lifted her simultaneously onto the operating table. The prep part of making sure she is stable and all the machines are hooked up again in the radiology room was about a 45 minute procedure.

We followed her down to radiology because they had consent forms for me to sign. Then the doctor (radiologist) came over to talk to me and explain the procedure. Although he was trying his best to be comforting, he was honest and frank: they have only done this type of procedure a few times. It is not common. Then, he went through the laundry list of side effects and risks of going through the superior vena cava vein. He spoke about all the negative things that can happen to Ella.

The art work from this morning helped me to visualize. There were about 10 medical staff in this room with Ella, prepping and stabilizing her. But ultimately, He is with her.

I’ll be honest – – it was a roller coaster morning. We had such a good time interacting with her this morning. Then to see the paralytic medicine take effect (she almost doesn’t look alive), to the drama of moving her and having the ventilator go out, to the radiologist giving me the laundry list of everything that can possibly go wrong with my baby girl and sharing that this is not a common procedure that they have a lot of experience with…man!

As a heads up, it will likely be 4 hours or so before we have any updated information. Thanks everyone for your prayers.

Lord, I know you are in control. Give me Your strength today. Everything that happens is something that you ordain. All of it is for Your glory and Your purposes. Please protect and hold our baby girl in your arms. Thank you for the blessing of Ella Renae.



Eusey Family on August 27th, 2007 at 8:06 am #

Praying for good news this morning for sweet Ella.
xo RSMRCR

Joel Snyder on August 27th, 2007 at 8:08 am #

Go Ella,Go Ella, I am praying for a good result from your procedure today. Lots of Love from Manny, Taco, and Grandpa!!!!!!!!!!!!!

Angie on August 27th, 2007 at 8:25 am #

Nice picture. Praying for you guys. By the way thanks for all the nice comments on the nursing care:). It’s an honor & privledge to take care of Ella. Make sure you tell her every day to keep fighting hard cause she has awesome parents who love her very much (I told her so yesterday)! Hope every thing goes well at noon. Keep us posted. ~Nurse Angie

Char Snyder Jordan on August 27th, 2007 at 9:08 am #

We know that Dr. Kays holds you just like a baby bird. So frail, so sick.We pray that the procedure today will bring lots of glorious health and happiness on the road to being a great kid. Lots of love to the family and friends that hold you deeply rooted and growing in their heart. All our love and continual prays for you today. Love, Aunt Char and JIm

Melissa Morris on August 27th, 2007 at 9:15 am #

What an amazing picture and what a truely amazing physician we do have. I am so pleased that you have been placed where you are with great physicians and medical staff here on this earth. This is all part of his masterful plan.
I am praying for strength for all of you. Ella you are just beautiful and your mommy and daddy love you so much.
Thank you God for keeping this special family in your hands.
Stand firm in what you believe Josh and Tina. You truely are amazing. I am so glad to be able to be a part of this journey with you. May the Lord be with you at noon. I am praying for you all and I pray that the results will be what you are looking for. Go ELLA!! Keep fighting! You have a great life ahead of you.
I hope you are feeling better too Tina. Keep your fluids up too!! I wish I could just give you all a hug.
Lots of Love, Melissa

Joan Odell on August 27th, 2007 at 9:25 am #

That picture hangs in my physician’s office – pretty awesome. Our prayers are with all of you for Sweet Ella’s successful move from NICU and back, procedure and healing for Tina.Lord Bless and hugs – Steve and Joan

Dawn on August 27th, 2007 at 9:41 am #

Hi Tina and Josh, sorry I am in Ca. and I have not been able to check in but I’ve just read all of the posts and I’m all caught up. I have been thinking about you guys and baby Ella nad I have lots of family and friends praying for her. I will check in later to see how the procedure went. Tina, I hope you are feeling better soon. Take care of yourself : )
Love and hugs, Dawn Franck

Lesli on August 27th, 2007 at 10:18 am #

Josh – you have to figure out how to have these website pages bound up into a book for Ella when she’s grown. It is so amazing to see the hand of God working in her life every day. I am amazed at how many lives she is touching across the country. Our baby Lilly Grace has watched Ella’s video three times already this morning!

Love, Lesli

tamara tessmer on August 27th, 2007 at 10:52 am #

praying for your precious little girl and for all of the doctors working on her right now. That picture says it all. He has us all in His hand.
In His name
Tamara

Laura Blackwell on August 27th, 2007 at 10:59 am #

I wish I could say something profound and deeply spiritual to ease your troubled heart. Ella has truly touched my soul. Find comfort in the knowledge that SO many people are praying. Checking the site every couple of hours for updates.

Cathie Firestone on August 27th, 2007 at 11:21 am #

We are praying…Ella is in the BEST possible place, in the BEST possible human hands, and most importantly, being cradled in God the Father’s hands right now.

Joan Odell on August 27th, 2007 at 12:13 pm #

Constant prayers are with all of you – He is there with Ella and the doctors. Hugs

Melissa Morris on August 27th, 2007 at 12:47 pm #

Wow Tina!! I can’t even imagine. I am praying for God’s peace to be upon you right at this moment. Fight Ella, fight!! God is on your side and so is everyone else. I am waiting to hear the results and continually lifting everyone involved up in prayer.
Hold tight.
Love, hugs and prayers… Melissa

Jane Starks on August 27th, 2007 at 12:59 pm #

Josh and Tina,

Got into Houston late last night. Waiting pretty much this a.m. for Georgie’s tests before surgery tomorrow. Just finished attending a worship service in the chapel. The minister had us sing amazing grace, then gave a nice talk about the strength we can receive when God is our rock, our strong hold. All else in our lives can pass away but He is our Constant Source of Life. Why is it we seem to rely so much more on His Providence & care when we find ourselves so helpless with our own resources & efforts? It really is out of our control, but thanks goodness we are held close in the palm of His Almighty Hand. Hang on to that strong faith & hope, your daughter in some mysterious way absolutely knows & is counting on all of us to continue to storm heaven on her behalf…and we certainly will all continue with the prayers. May God be with us all. (the picture of Christ in the operating room will be a help tomorrow I am sure) Love to you all.

Jane & Georgie

Laura Marold on August 27th, 2007 at 1:07 pm #

I’m praying for Ella. Please give her just a little more strength to make it through this procedure today. Please put your arms around Josh and Tina to comfort them.

Williamsburg on August 27th, 2007 at 1:37 pm #

Hope you’ve heard about Josh King’s story of the The Two Ellas from his preaching last week – her influence continues to widen. We are indeed, as Josh reminded us to be in all circumstances, praying without ceasing, trusting in the heart of the One who made us all. Praying continued rest and healing for Tina as well. Love every minute – the Williams.

Char Snyder Jordan on August 27th, 2007 at 3:22 pm #

Steady now Josh and Tina. Grandma is there too. Praying for wonderful news about such a brave little pumpkin. All our love to you. Aunt Char and Jim

jan Costas on August 28th, 2007 at 1:14 am #

You’ve been on my heart for months. I’ve just finished reading your incredible story of God’s faithfulness–wiping away the tears that flow so freely. I pray that little Ella stabilizes, that the numbers go up or down as they are supposed to, that you both get rest, and continue to sense his presence, and that Dr. Kays be given special insight for this special little girl. Josh, I loved the selection you read from “Gentle Thunder” on Aug 8th. Thank you for allowing me (us) to come alongside you on this bumpy road. I wish you God’s peace. jan

Jenny Talbott on August 28th, 2007 at 9:13 am #

So happy to know sweet little Ella is staying strong and pulling through each new challenge… she, as well as all of you, continue to stay on my mind and in my heart…

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