Aug
30
    
Posted (Tina) in All Posts on August-30-2007


We went to see Ella tonight. When we arrived, she was turned on her left side hugging her pink monkey, Julep. It was cute. Although her bow was missing, so we had to make her another purple bow.
 
These days, they are trying to switch her to different sides every 4 hours or so. Since she was on her left side when we arrived, all the fluid in her head had shifted, so her left eye was swollen shut.
 
While we visited, the nurse shifted Ella onto her right side. By the time we left, the fluids had started to shift and she was able to open her left eye too.
 
Her blood gas levels tonight were in range: 57 on the cO2 and 94 on the pO2. The cO2 is still a bit higher than they would like to see, but is still in the acceptable range. The nurse mentioned that Dr. Kays had called in this evening to check on her too and was pleased with her stats for the evening.
 
Roger, Ella’s former ECMO technician, stopped by to visit and see how Ella was progressing. If you remember, he is the one that went and found the pink and purple material that Ella has been wearing for headbands and bows.
 
Roger made mention that he thought Ella might need some other color choices for bows. He walked back with some orange material with blue happy faces on it. He mentioned that he thought Ella should have a new bow on Saturday, given that it is the first Gators game (the team colors are orange and blue).
 
In case you do not know, Gainesville is a HUGE college town and the University of Florida Gator fans are everywhere, even in the NICU. We might just have to humor Roger and make Ella a new bow for Saturday, so she can show her Gator spirit too.
 
We are trying to be patient and wait on the Lord for the results we would like to see. Please continue to pray for reduced fluids and swelling along with continued strength for Ella’s lungs.
 
Thank you so much for your support and prayers.
 
Hebrews 4:16: “Let us then approach the throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need.”
 
Romans 8:25: “But if we hope for what we do not yet have, we wait for it patiently.”



Joel Snyder on August 30th, 2007 at 9:56 pm #

Hey T&J, Just getting ready for bed. Yeah I know confusing but they do give me a day off every once in awhile. Sounds like Ella is just cookin along. I am still hard at prayer for the new medicine. I can’t wait to see the Gator headband. All my Love!!!!!!! Grandpa

The Brittain Family on August 30th, 2007 at 10:07 pm #

Go little Gator Girl, we’re praying for ya!

Pat Hadden on August 30th, 2007 at 10:29 pm #

Just about every morning, I check. And just before I go to sleep. To see how all three of you are doing. Thank you for the updates. With all you have going on, it’s amazing you are able to take the time for the rest of us who can’t be there. Bob and I send you much love, always.

The Laz Fam! on August 30th, 2007 at 10:56 pm #

Thank you for all the pics. She’s so beautiful! We are praying that every day will show improvement. For a baby, even baby steps are progress!
Love, TKJB

Liz Mueller on August 30th, 2007 at 11:10 pm #

Dear Josh and Tina,
Chris has kept us posted about your beautiful baby and her incredible journey.My prayers go to the Lord daily for her recovery and also for both of you.I finished reading your entire sight and it’s so uplifting to read how you both are so strong for your daughter and for each other.Our prayers will continue daily for you.
Keith and Liz (Chris’s parents)

Christina DuHart on August 31st, 2007 at 4:56 am #

Hi Josh and Tina I haven’t posted anything in a few days. Things have been a little crazy for me however when I read about everything that you are going through it puts things in perspective. I think about Ella everyday and pray that she just keeps getting stronger and stronger. She is so darn cute, and so lucky to have such great parents. My family sends their Love to all of you.(even the monkeys.=)
Hugs and Kisses to the Three of you.
Christina

Liz Mueller on August 31st, 2007 at 5:52 am #

Dear Josh and Tina,
After reading your entire site last evening I was moved to tears.What an incredible journey you and your beautiful daughter are on.Our prayers will be with you plus I sent your site to my relatives in Wisconsin who are facing a similar journey with another baby named Eva.
We are Chris’s parents(your former Colorado neighbors)
If there is anything we can do besides prayers let us know.
Keith and Liz Mueller

Janet Brannberg on August 31st, 2007 at 6:30 am #

I’m a friend of Mike & Jan Costas in Denver – just wanted to let you know I’m praying for you all –
I’m asking the Lord to give the doctors wisdom and to blanket you all with His Peace and Hope.

Eusey Family on August 31st, 2007 at 6:44 am #

Good morning Sweet Ella, Josh, and Tina. Hope Ella had a good night.
We may have to send a cardinal and gold bow (for Uncle Rick’s team).

Hope the meds are working for the swelling. Prayers from RSMRCR

Char Snyder Jordan on August 31st, 2007 at 6:44 am #

I was wonderful to see the light in Ella’s eyes. Your scriptures are enlightening and informative. I find waiting very difficult. I find that my human side, just like most folks is very impatient. We must learn to wait patiently. We are praying for you always. Strength and faith will show us the way. Have a good day Ella. Go Girl. Love, Aunt Char and Jim

Williamsburg on August 31st, 2007 at 7:37 am #

Gators, huh? Well, black and gold (Go Buffs!) aren’t exactly baby colors, so I guess you’re off the hook on that one, Ella. I keep remembering that a “light unto our feet” only means the very next step we have to take, not the whole path, and how much more trust that requires, and patience indeed. Keep taking care of yourselves in the meantime, Mom and Dad. All our love. XOXOXO

Eusey Family on August 31st, 2007 at 8:06 am #

I will send Ella a USC colored bow. I am sure Roger will love it. Lots of love from Newport.

Cliff, Diane and Sonic on August 31st, 2007 at 8:59 am #

School Colors? Orange and Blue (Gators)… Cardinal and Gold (USC) … heh … Is Ella going to have a choice in any of this?? LOL Seriously, we think of all of you there in Florida everyday . Prayers and wishes are being sent often to you. We hope you stay strong and that each day is better than the one before, that goes especially for you Ella !!!

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