Nov
15
    
Posted (Josh) in All Posts on November-15-2007


Yes, Ella and I get to have some one on one time. It was real good too. I was able to hold her while she was on the regular oxygen cannula. This is a lot easier to manage then when she’s on CPAP, even with all the other wires and tubes.

Ella is doing well today. She’s tolerated the “sprinting” so far. Just having 6 hours at a time off CPAP is a nice break.

We did get the results back from the upper GI, and it does look like her reflux is more on the severe side. This is to be expected, we were just hoping for other news.

We have not talked to Dr. Kays yet regarding the details, but I’m sure his opinion remains the same. We prayed for a clear indicator as to what direction we should take, and we consider this a pretty strong sign to go ahead with the nissen procedure and G-Tube.

While it’s not 100% official that we’ll be going down this path, it’s most likely the direction we’ll take. We know this will help Ella along with her progress and minimize the risk of infection due to aspiration.

On a positive note, this procedure could also help move us along quicker, allowing us to be home sooner. We’re in no rush though. We just want the best for our baby girl.

Some other good news, Ella was given a tiny bit of breast milk today by mouth! Now it wasn’t the best experience ever, she was a bit gagy, but the fact that they’re even trying this is encouraging. She’s still on her full feeds of portagen, so she won’t be missing any of her food.

I’m also feeling better today. I was wearing the mask as more of a precaution, but Ella kept looking at me funny, so I took it off a couple times to reassure her.

Tina is out of town until tomorrow night. She accidentally took both of our cameras with her so I had to rely on the camera they had in the NICU for our update. I’m just glad they had one here that I could borrow so we could have pictures to show. =)

Bun and I are missing Mom already, and we’ll be glad when she’s home.

Tracy Mitchell and her two boys will be coming down to visit tomorrow. We’re looking forward to seeing her again. We pray for her safe travels on the highway.

Lord, thank you for being with Ella tonight. We trust in your perfect plan, and we praise you for the privilege of having our baby girl well enough to take these next steps. We ask for wisdom and discernment in the coming days so that we may do what’s best for her.

We continue to pray for baby Par and Jonathan, and their respective families. May your peace be with them this evening.

Also keep the Mitchel family safe as they take the long 9 hour drive to Gainesville. In You Holy Name we pray. Amen.



The Laz Fam on November 15th, 2007 at 11:03 pm #

I am reading to my kids “The Little Prince” by Antoine de Saint-Exupery, one of my favorite books from childhood, and I read a passage tonight that made me think of your sweet girl, and your love for her. The Little Prince has just discovered that the little rose he loves is not, as he believed, the only rose in the universe. But he says, “To be sure, an ordinary passerby would think that my rose looked just like you, the rose that belongs to me. But in herself alone she is more important than all the hundreds of other roses: because it is she that I have watered; because it is she that I have put under the glass globe to protect her; because it is she that I have sheltered behind the screen; because it is for her that I have killed the caterpillars (except the two or three that we saved to become butterflies); because it is she that I have listened to, even when she said nothing. Because she is my rose.”

Blessings,
K

Kelsey Rupert on November 16th, 2007 at 12:38 am #

I’m happy to see tape on those chubby little cheeks! Glad everything’s going so well. Take care of Tracy for me! 🙂

Rachel & Ava on November 16th, 2007 at 7:38 am #

Ella looks so entranched by her daddy, so in love, I’m sure she is enjoying her 1 on 1 time with you but is also looking forward to her mommy coming home so y’all can all be together. I will continue to pray for her reflux and any procedure she has to undergo because of it. Don’t worry about the nissen or the g-tube, they aren’t that bad, and she seems to be eager to learn how to eat which is a really good sign, it took ava several months to even try to eat again. Good Luck, I see Ella already has her daddy wrapped around her finger, but how could you not want to be wrapped up with a little Miracle like Ella. Lots of love to your whole family and i’m praying for a safe return for Tina

Joel Snyder on November 16th, 2007 at 7:43 am #

Ella, You sure look good with your Dad and I had a great time with your Mom at dinner. I am praying for you and your friends Par and Jonathan to have a great day today. I will check with you later. Love, Grandpa

Char Snyder Jordan on November 16th, 2007 at 9:37 am #

You two look real nice together. It is so natural that it is hard to believe that Ella hasn’t always been with you. Love is a wonderful thing. You can see that love clearly in both faces. A clear connection parent to child. I once told you and Tina that after the baby you would never be the same. Never look at the world in the same way again. How true. Hold down the fort dad. Tina will be back soon. LOL Aunt Char and Jim

Joan and Steve Odell on November 16th, 2007 at 9:57 am #

Awwwwww, I sure love my Daddy – wonderful pictures – I feel bad that she has to have another procedure but if it will help her and move her on to better and quicker healing then so be it. The Lord knows the way and will be there for all of you. Enjoy the Mitchell family and Tina will be home soon – much love and always prayers and hugs to the West family – Steve and Joan

Heidi Ham on November 16th, 2007 at 10:47 am #

Such a sweet picture of Ella and her Daddy – travel safely Tina.

Roxie (Adrienne's friend) on November 16th, 2007 at 11:34 pm #

We think love doesn’t get any better, that we just couldn’t love our child anymore but by God’s miraculous grace it does and we do. Praising God for your family and praying for Tina’s safe return. Love to you, Roxie

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