The weather in Denver is frightful, but the Bun is so delightful.
They discontinued her fentanyl today – – that is HUGE. This is the pain medicine that she has been on since birth. They are going to wait a few days just to make sure, but if all goes well, it means that her central line will come out soon. It is a potential source for infection, so the sooner it is removed, the better.
When we came to see her, she was just getting ready to shut eye. She must have felt our presence, woke up and decided to hang out. It was great to see her and hold her. You could tell that she was tired, but the excitement of her parents was too much.
She tried taking cat naps, but never really fell asleep in my arms. Therefore, 2 hours later, she became over tired and quite fussy. Finally right at shift change, she fell asleep. Thank God!
At shift change, we left and had dinner with Par’s parents – – that was fun. Of course, our conversation is centered around the babies and the NICU. It is such a blessing to have friends that we can talk with at that level…and they really understand. Please pray for Par this week – – that he will make progress with his feedings. Also, he is likely going to have his upper GI test which will test to see if he has reflux. We’re praying for a good outcome.
We have not seen Jasmine in a couple of days and our heart is heavy for her and Chris. Jonathan is still struggling to hold on. We hope and pray that he can overcome this mountain and begin to get better.
Ella has been on CPAP with a pressure of 4 and holding on well since last Wednesday. The plan is to wean her CPAP down to 3 tomorrow. We pray that she will hardly notice the change in pressure. Keep in mind that the next step after a few days would be trying the nose cannula with just oxygen support.
As you know, we are earnestly seeking the Lord’s will for our next steps. Please continue to pray that he will give us strength, endurance and wisdom concerning the decisions we need to make for Ella’s care. Are we to stay local for a little while in Gainesville or move back to Denver right away? As much as we want to go back home yesterday, our true joy comes in knowing that we are in His will and following His plan for our life. Whatever the outcome, we want it to glorify and honor Him.
John 15:5,8
“I am the vine; you are the branches. If a man remains in me and I in him, he will bear much fruit; apart from me you can do nothing. This is to my Father’s glory, that you bear much fruit, showing yourselves to be my disciples.”
p.s. Yep, you guessed it. Pumps likes the Christmas tree too!