Feb
16
    
Posted (Josh) in All Posts on February-16-2009

Ella has been really cranky the last few days. While Tina’s been nursing a badly sprained ankle, I’ve been on Ella watch during the night which has made me a bit of a cranky bear too. The last couple nights, Ella was up almost every hour after 2am. Most of the time, it’s just a request for her binky and frog. Sometimes it’s for a drink. Other times, it’s because she’s pulled her cannulas out.

I do think we have some rationale for her insomnia the last few months which really started after her last hospitalization. Through some online research, it’s our thought that one of her meds could be contributing to her restlessness. We’ve identified her increased coughing as a side effect of Captropil which may also be keeping her awake. This is not something we can modify at this time though due to the positive impact this med is having on her heart and the rest of her pulmonary system. Hopefully the procedure on the 25th will be successful and will reduce the needs for this kind of medication. We’ll just have to see though.

She did gain weight rapidly over the past 5 days, 9.06 kilos to 9.42 kilos. Plus, today has been 2 weeks since we gave her a dose of Bumex. So like clock-work, we gave her a dose of Bumex at noon to see if we could get some of the fluid off. We’ll have to watch her weight over the next few days.

With me having Presidents day off, I was able to escape with Tina for some one-on-one time for a good few hours this afternoon. We enjoyed lunch together and people watching at Wash Park. What a gorgeous day.

Thank God for our baby girl, even though she’s been quite a cranky butt.

“There is no Ella, there is only Zuul.”


sherry martinez on February 17th, 2009 at 10:32 am #

you guys are doing such a great job. you will sleep again it just seems like you wont. hang in there. hugs from ca from baby cayden and sherry

Jennifer Harris on February 17th, 2009 at 11:21 am #

She looks so precious and we love the teeth. My children had a rough time teething and often kept me up throughout the nights fussing and cranky. We know Ella is strong and loved and GOD will turn her health matter around to show us HIS work!
Peace & Blessings
jennifer/chelsea

Steve & Veronica Johnson on February 17th, 2009 at 11:22 am #

β€œThere is no Ella, there is only Zuul.”

What a lovely singing voice she must have! πŸ˜‰

Williamsburg on February 17th, 2009 at 1:33 pm #

Sorry for your visit from the Cranks – they’ve left a little non-love at our house, too lately πŸ™ I like the Zuul approach – might have to give that one a try.
We love you. XOXOXO

Kara on February 17th, 2009 at 3:48 pm #

Cranky and rolling her eyes. Welcome to my world. She’s just warming you up for those wonderful teen age years. It is so much fun. NOT!

Joel Snyder on February 18th, 2009 at 1:57 pm #

Ella, I just love your picture rolling your eyes. Sorry to hear that you have been out of sorts and not sleeping to well. I am praying that you will do well on the 25th and maybe the mystery will be solved. Catch you later. Love,Grandpa!!!!!!

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