Jan
12
    
Posted (Tina) in All Posts on January-12-2008


The numbers really say it all. Heart rate: 207, SpO2: 86, Breaths: 80. Even right now, she is at rest sleeping and her saturations are 82 and her breaths are 110. She is on 1 liter of oxygen (the most available). I have not seen these kind of numbers in a very long time. Although she has a cold of some sort and her nose is congested (making it tough to breathe), I don’t think it accounts for this much strain on her system.

Dr. Kays has been notified. First, he ordered a chest x-ray. Once he takes a look, they may decide to give her lasix. Since she does not have access via IV, they would have to give it IM (intramuscular) which is somewhat painful. Poor Bun!

In addition, Dr. Kays stated that we can either increase her diuretic input or decrease her fluid intake (food). For now, he has ordered a decrease in food intake (58 ccs during the 5 daily feeds and 20ccs continuous for the 8 hour feed at night).

In the meantime, we are just sitting by her bedside and praying that she will remain comfortable during this latest challenge. Thank you for all the love, prayers and support at this time.

UPDATE – 3:00PM EST (by Josh):
We didn’t think she missed it that much, but we’re back in NICU 3. Since our last post, Ella continued to show signs of respiratory distress, and had a major event in NICU 2. She couldn’t catch her breath and required blow by oxygen just to bring her back up and calm her down. After getting her up to 3, she had another event that even took longer to recover.

Once she was stable, Tina and I consoled her while nurse Kelly placed an IV in her foot. They got the Lasix on board and hopefully Ella will continue an upward trend. If not, she may need to be put back on CPAP or re-intubated. At this moment she’s on 3 liters of O2 (1 liter is the maximum they give in the NICU 2).

They also have us in an isolation room, the same one we were in a couple months ago. Last time we were here just for the space. This time though we are taking extra precautions, just in case she does have some respiratory virus. They’ve taken a swab of her nose to do some analysis which normally takes 48 hours. Because of that, we also get to dress up in yellow gowns, masks, and gloves.

Thanks for the continued prayers.

UPDATE – 7:00PM EST (by Tina):
Ella has stabilized. She is still dealing with a virus of some sort with the largest symptom of a runny nose and overall congestion. But, she is in the NICU 3 and being monitored more closely.

Her oxygen was weaned to 2 liters and they will be trying throughout the night to see if she can tolerate less oxygen. The goal is to get her back to 500ml of oxygen.

The increased oxygen and dose of IV Lasix has helped and we are hopeful that she will not need to go back to CPAP or be re-intubated.

We can sense that she is feeling better. We were shifting her positions and Nurse Kelly started talking to her. Ella probably recognized the voice and thought the mask looked silly, so she gave a few grins.

One thing is for sure: she has perplexed everyone. No one has ever seen a baby have a tough switch from IV diuretics to PO diuretics, even with increased dosages. But there must be something…

Thanks for the continued prayers.

UPDATE – 10:30PM EST (by Josh):
We left Ella tonight and she was sleeping comfortably on 2 liters of oxygen with saturations at 99-100%. We hope to hear from Dr. Kays tomorrow about the next steps.

Thank you again for continuing to lift our baby girl up in prayer. Praising our Lord for the fact that He is in complete control.

Sleep well Ella Renae.

UPDATE – 5:00AM EST (by Josh):
Just called to check on Ella. She slept solid from the time we left (10pm) until 3am this morning! Her numbers looked like her normal baseline too (heart rate: 145-150, SpO2: 100%, breaths: 45-50). She’s also been weaned down to 1 liter of O2. Nurse Amy with the help of another nurse suctioned her when she started to stir, and got a lot a stuff out. Ella settled right back down and is behaving more like herself.

If there’s anything to learn about this, Ella just wants what she wants. Give her what she wants, and she’s happy. I can already see a pony in our future, and I’ll be praising God every time we have to pick up after it. 😉

 
Thank you Jesus for this restful night. Thank you for your peace, mercy, and grace. You are an awesome God and your name is above all names. We praise you in all things and desire to be obedient to you. Thank you for showering us with all these blessings and the love of so many others from around the world. You are a mighty God, worthy of our praise. Thank you Jesus! Amen



Lizotte Family on January 12th, 2008 at 11:26 am #

I’m praying for Miss Ella to come around soon and for her Tina and Josh to find strength from the Lord.

The Laz Fam on January 12th, 2008 at 11:34 am #

thank you for the update. i was hoping we wouldn’t have to wait until tonight to see how she is doing. our prayers are with you! philippians 4:6-8!!
love ~ ktjb

Eusey Family on January 12th, 2008 at 11:37 am #

Many prayers coming you way this morning. Richard and Claire are saying a prayers right now holding hands. “Dear Jesus please help Ella, we love her so much”.

XO

Rick, Shannon, Megan, Richard, Claire and Ryan.

ps. i know when Ella’s cousins get sick their systems totally experience difficult times. Ryan lately has been having labored breathing so they put him on a breathing treatment with a steroid. Not sure if this is at all helpful, but thought I would share.

Joel Snyder on January 12th, 2008 at 12:11 pm #

Ella, Grandpa is praying for you to get some relief from this latest challange. I will be checking on you all day today and tonight. Lord please help Ella and her caregivers to find the answers to this puzzle. Love,Grandpa!!!!!!!!!!

Liz, Rusty & Par Rich on January 12th, 2008 at 12:27 pm #

Oh Little Bun!!!! We are praying for you right now!
Lord, we come before you and beg You to give comfort to this precious little girl and to her parents. We know that Your will and timing is best for Ella–we ask that You give strength to Josh and Tina as they pray at their daughter’s bedside. We ask the You lay Your hands upon this family so they never forget that You are always right there. Give Dr. Kays a clear direction in which to act so he may not skip a beat while helping this precious angel. We know that You do miraculous work–we’ve seen Ella recover from these type of numbers–we praise You for the work you’ve already done in her and her parents–Your grace and mercy is amazing–all Glory and Honor is Yours, dear Lord. Amen.

Cliff, Diane and Sonic Blue on January 12th, 2008 at 1:12 pm #

We are wishing and hoping for the best at this time for Ella. Stay strong, all of you !
Love, Aunt Diane, Uncle Cliff and Cuz’ Sonic Blue

Kristen on January 12th, 2008 at 1:48 pm #

Praying for you!

Joel Snyder on January 12th, 2008 at 2:35 pm #

Ella, I am praying harder than ever for you. Love,Grandpa!!!!!!!!!!!!!

Laura Marold on January 12th, 2008 at 2:40 pm #

Oh My!! What alot for a little girl to handle!! Lucky that Dr. K is around this weekend–that part is so reassuring. I’m keeping you in my prayers and am praying for a great result to all of the new treatments. Love, Laura M.

Heidi Anderson on January 12th, 2008 at 3:49 pm #

We are praying for sweet little Ella… what a battle she is fighting at such a young age! You will have many stories to tell her when she is older!

laura blackwell on January 12th, 2008 at 3:54 pm #

Lifting you all up.

Barbara Mullins on January 12th, 2008 at 4:34 pm #

Oh Father God, God of all healing, God of all peace and comfort, would you please intervene again on behalf of this precious little one. Heal her please, Father, from the top of her sweet little head to the soles of her feet. Touch her lungs, touch stomach, touch her pain with your gentle healing hands. God of all peace, please comfort Josh and Tina as they wait patiently before you. Continue to give them hearts that trust You, and a your powerful peace that passes all understanding. Lift them up and plant their feet like hinds feet on high places and let them sense Your presence like a blanket surrounding them. God of all wisdom and understanding, please give Dr. Kays and this wonderful medical staff wisdom to make the right choices and right decisions; give them insight and discernment. For all this we thank You and give You praise and ask that through the story that you are telling with this precious family, You would receive ALL the glory and Your fame would be spread. We love you Jesus and we thank you for everything you have, are and will do. AMEN!

P.S. I don’t post often, but I read your posts and pray for y’all every day.

Char Snyder Jordan on January 12th, 2008 at 4:35 pm #

She looks so good. I guess I can’t really tell since it is via the computer. We are continuing our prayers for her complete recovery. Hang in there little West Family. We love you and you are in our prayers. lol Aunt Char and Jim

Michelle L on January 12th, 2008 at 4:51 pm #

I am so sorry to hear about this set back. I’m praying for Ella’s speedy recovery (and though I’ll miss you…) her quick return to NI2 and then home.

Williamsburg on January 12th, 2008 at 5:54 pm #

Can’t tell you how very much we wish we could do _something_ to make Ella all better – no more than you two, I’m sure. Meanwhile you are constantly in our hearts and prayers for His healing, wisdom, love and comfort. Blessed be His Name. XOXOXO

Lesli Richards on January 12th, 2008 at 6:55 pm #

I echo what my friend Barbara said, Lord, and pray in agreement with her. Amen, Lesli

leslee on January 12th, 2008 at 7:40 pm #

We are praying for your dear sweet little Ella!!

Keeping the faith –
Par’s cousins in NC

Joel Snyder on January 12th, 2008 at 7:41 pm #

Ella, I am glad to hear that you are feeling better and that your working on getting your breathing straightened out. Rest and I will check on you later. Love,Grandpa

Debbie Bennett on January 12th, 2008 at 7:59 pm #
Joel Snyder on January 12th, 2008 at 8:58 pm #

Ella, Goodnight sleep well. I will check on you tomorrow. Love,Grandpa!!!!!!!!!!!!!!!!!!!!!

Tracy on January 12th, 2008 at 9:08 pm #

So glad to read the latest post that she is getting a little more stable. Still praying for forward steps and stable numbers.
Tracy

tamara tessmer on January 12th, 2008 at 9:41 pm #

My heart is hurting for you right now. There is so much I want to say, but I will just give it all to the Lord. Please know we are praying for little Ella and for the both of you. Let me know if you need anything.
In Christ
Tamara

Tammy on January 13th, 2008 at 12:57 am #

Sweet Ella you are truly a trooper. You’ve all endured so much, and we can all learn from your faith, patience and trust in the lord.
My thoughts and prayers are with you all.

Joel Snyder on January 13th, 2008 at 7:28 am #

Ella, Now I know what the problem is you didn’t get your way so you let them have it. I am glad to hear that you are doing better and hope you have a better day today. I will check on you later. Love,Grandpa

Zandra on January 13th, 2008 at 7:34 am #

We are praying for you guys to have a much better day today!! May the Lord take care of precious Ella!!

Zandra

Julie Kirk -Saudi Arabia on January 13th, 2008 at 9:58 pm #

just checking the latest. I was concerned when i didn’t get an update yesterday or the am. I am so happy that Ella had some rest and is doing better.

Joan and Steve Odell on January 14th, 2008 at 7:58 am #

Rest well, sweet girl, – You have traveled quite a road this weekend and once again shown what you are made of. Bless you and your parents and know our Lord is holding you close to Him. More prayers and lots of love – Steve and Joan

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