Mar
30
    
Posted (Tina) in All Posts on March-30-2009


Ella slept well last night – she only woke up twice. Although she was wired until 11pm. She is turning into a night owl!

The cat woke me up around 4:30am and I could not fall back to sleep. It was annoying. So 2.5 hours later, I was finally tired enough to dose off.

Ella and I ventured out this afternoon to visit Dr. Perry. It was great to catch up with him and fill him in on all the details since the SVC procedure. He thought she looked fantastic and was impressed with her recent weight gain. This morning, she weighed in at 10.17 kilos. He showed me her growth chart…drumroll, please…and for the first time ever, Ella made it into the “normal” growth curve. Although it is near the bottom (the 25th percentile), it is the first time that she has ever been in the curve. Very good progress for the Bun.

If Ella remains stable, Dr. Perry feels comfortable waiting until the end of July to see her again…near her 2 year birthday. That is HUGE. We normally visit approximately every 6 weeks. And if you remember, her pulmonologist wants to see her in early June. Another long stretch for Ella. Most of it will depend on her appointment on April 16th with the cardiologist for her chest xray and echocardiogram to check on her SVC. We’re praying she checks out well, that she can stay healthy and keep on a steady track of weight gain with no fluid retention.

We’re excited to have Grandma Eusey come and visit us this week. She shows up tomorrow and is dying to love on the Bun! It should be a good time.



Joel Snyder on March 31st, 2009 at 4:37 am #

Ella, Yippee!!!!! on the normal curve and moving on. You and Mom look terrific and I guess I am going to have to get that cat some sleeping pills. I am praying that you keep up the steady progress. Say hello to Grandma for me and have a great week. Love,Grandpa!!!!!!!!!!

Jennifer Harris on March 31st, 2009 at 8:43 am #

Wonderful news! Her gorgeous photos reveal her feelings and her eyes look bright and cheerful.

Heidi Ham on March 31st, 2009 at 11:13 am #

Hello West Family – just had to play catch up for four days. So glad to hear things are moving more in the positive side and you are all getting some extra sleep. Hopefully that will continue as well as Ella’s good weight gain. I still just find it so curious as to her not liking to eat food orally – me personally never have that problem – lol I am sure that will improve as well. And to Tina I can totally relate to the cat – one of mine has taken to waking me up in the morning about 2:30 to 3:00 a.m. wanting to get in bed with me and get some petting. Who knows the mind of a cat. Have a great week!

Loren L on April 1st, 2009 at 1:47 pm #

OH my goodness! Ella finally hit the growth chart. How exciting is that! As for the cat, sorry I’m a dog person! OHH Joy!!! Great job Ella.
Big hugs and kisses for you!
LL

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