Mar
31
    
Posted (Tina) in All Posts on March-31-2011


Today is March 31st, so we think that you should mark your calendar today and every future year, in honor of Ella and all her comrades.

This is Congenital Diaphragmatic Hernia (CDH) Awareness Day.

If you see someone wearing turquoise today or sporting a turquoise ribbon, you’ll know why!

Babies born with CDH have about a 50% chance of survival, depending on how big the hole is in the diaphragm, how many organs moved into the chest, and how small the lungs are at birth. For many parents, this is a sad day as they are reminded of their angels that did not make it.

We weren’t sure if Ella would survive either. But after lots of surgeries and six months in the NICU, she beat all the odds.

Ella continues to battle CDH as it impacts her health and development each day of her life. Please continue to pray for her as she is still having complications since her most recent surgery in January.

We praise God for the blessing of Ella Renae and how He has already used this little one to impact so many. We look forward to seeing how His vision continues to be carried out.

Please take a moment to pray for all the CDH babies out there, for the families where their CDH babies didn’t make it. Praise God for the CDH miracles that are here with us today and pray for the families impacted. Lastly, please lift up all the CDH babies that are in their mommy’s bellies or in the NICU fighting the battle right now for their very lives.

Above all else, we know God is sovereign and has a plan for each of these CDH babies:

Psalm 139:13-16 (NIV)
For you created my inmost being;
you knit me together in my mother’s womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be.



















































































































































































































































































































































































Heidi Ham on March 31st, 2011 at 1:53 pm #

What a wonderful collection of pictures over the years of Ella! Thank you for sharing!

Loren Lizotte on March 31st, 2011 at 2:27 pm #

OMG I love her! Always thinking about you guys!
xoxo

Melissa on March 31st, 2011 at 3:17 pm #

Love them!!!! I had not seen many of the early ones

megan on March 31st, 2011 at 3:37 pm #

There are no need for words when you can follow an incredible journey through pictures. Thank you for sharing Doodlebug and your hard, beautiful, never ending journey with me. I feel so blessed and keep you all close to me. She is an amazing little girl! Miss you guys so much! Hugs and prayers always…

tara hayes on March 31st, 2011 at 4:15 pm #

Wow, each picture is a reminder of so many nights and mornings of praying for Ella, and a reminder of just how great our God is! She is absolutely beautiful. I’ll never forget when you first announced no more daily Ella updates. I honestly would wake up with a feeling of void not knowing what specifically to pray for:)

Steve and Joan on April 1st, 2011 at 6:25 am #

Thank you Lord for this precious, precious child. Please continue to grace her and her parents with your love, protection and guidance. Be with the families who have or will have a child with this issue and give them strength and guidance. Amen

Chastity Gomez on April 3rd, 2011 at 8:46 am #

LOVED seeing the journey in pictures!

Jennifer Harris on April 4th, 2011 at 8:51 am #

WOW…thank you for sharing these amazing photos. Peace & Blessings

Michael Ramondo on April 6th, 2011 at 9:26 pm #

Beautiful!

virginia on April 7th, 2011 at 10:41 pm #

love the photos! 🙂

Devon on April 12th, 2011 at 5:49 pm #

enjoyed those!!! =)

Laura Marold on April 13th, 2011 at 7:05 am #

What an amazing journey the three of you have been on. It’s really just incredible. Love, Laura M.

shannin strom-henry on May 4th, 2011 at 7:32 pm #

Beautiful pictures. Brings back many many memories. Thinking about you guys and sending happy healthy thoughts Ella’s way.

Shannin

BRANDY BRYANT on May 7th, 2011 at 2:00 pm #

BEAUTIFUL LITTLE GIRL…MY SON WAS BORN ON 4/29/11 WITH CDH MY LAST ULTRASOUND WAS AT 20 WEEKS AND NEVER SHOWED ANYTHING AND I DIDNT HAVE ANYMORE ULTRASOUNDS. I WAS NOT AWARE OF HIS CONDITON UNTIL HE WAS BORN…WE ARE IN THE NICU AND YOUR STORY HAS REALLY GAVE ME HOPE THAT EVERYTHING WILL BE OKAY AND THAT GOD HAS A PLAN FOR HIM.

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