Jul
28
    
Posted (Josh) in All Posts on July-28-2007


I’m sitting in the NICU conference room writing this entry. I just saw our little girl and she continues to do well on ECMO. All her blood gas levels are where they should be which is allowing her lungs to mature even in their compromised state. The hope at this point is for her to keep going on this track, build strength and stability, come off ECMO, stabilize again, and then have surgery to move her organs that are in her chest back into her belly. That order may change, but at this point that’s the current path.
 
To give you some perspective as to the magnitude of the challenges with her disorder: picture the Dr. going into a room with 1000 knobs. As far as knowing which knobs to turn, he has only his experience, gut instinct, the knowledge he has about the human body, and what that baby’s body is currently telling him. For this reason, he has to make an educated guess on which ones to turn ever so slightly. If he turns the knobs just right, he’ll be able to proceed to the next room with 1000 knobs. A wrong turn could take him back to a previous room, or…worse. On top of this, every baby responds differently when the knobs are turned, increasing the challenge.
 
This process requires a lot of patience and a willingness to let things get worse sometimes so that they may be better in the long run. Fortunately, right now, things have been going very well, but Tina and I both know that things could turn at any moment and we trust that we have the right guy turning the knobs, and the God who spoke the entire universe into existence on our side.
 
Thank you Jesus for blessing us with Ella Renae.



The Laz Fam! on July 28th, 2007 at 10:18 pm #

Thank you, thank you for letting all of us be a part of this. We love you and wish we could be with you. His strength and blessings to you all!
Love, Tony, Kirsten, Julianna & Bodie

Eusey Family on July 29th, 2007 at 9:34 am #

Josh,

So nice to talk to you this morning. We wish we could be with you right now and give you all a big hug. You tell us when and we will be in Florida – well a few of will be there. ; ) You guys are so amazing and sweet Ella sounds like she is getting a ton of strength from her Mom and Dad. Keep up your strength and know we are praying.

xo
Rick, Shannon, Megan, Richard, Clarie and Ryan

Grandma West & Grandpa Richard on July 29th, 2007 at 11:08 am #

We are so proud of all three of you I know God has his hand in this whole thing and it will be a wonderfull testament to his power and Glory no matter how things go. We send our love and prayers to you and we are here for you if you need us .I cant wait to get my hands on her she looks so precous Love to you all from us both. Please thank the doctor For us what a truley amazing man. God Bless Him

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