The website for Shands Hospital in Gainesville, FL has provided the most hope over the past few days. Now, it is time to get some more information. I go to the main page for the CDH program and decide to write for more information. I write:
My husband and I just found out that our unborn daughter has been diagnosed with Congenital Diaphragmatic Hernia. I am 21 weeks along in my pregnancy. Thank God for your website – – it is the only resource I can find nationally that is offering our baby a true chance at life. Locally, the doctors have taken the stance that we should end the pregnancy, which is simply not an option for me and my husband. We want to give our daughter her best chance at life. Reading about Dr. Kays gives us the impression that he has a true passion for this abnormality and that he is there to “fight” with us, leveraging his talents to achieve the best outcome possible. I would love for someone to contact me so I can find out how your program for CDH works and what “next steps” you recommend.