After sleeping overnight in Orlando, we had breakfast with the Boemler Wareings before making the 2 hour drive back to Gainesville. It was nice to hang out and visit with friends.
The Bun had a great day hanging out with Nurse Marla.
Over the past day or so, her congestion has flared up a bit again. Hopefully it will be gone completely in a few days.
Aside from that, Ella looks great clinically. She seems so much more relaxed. It is almost not believable that she is doing so well. I think we are just so used to seeing her sick and not feeling well.
They have not moved Ella out of NICU 3 yet. We don’t think it is because she is not ready; the NICU 3 is just not busy and the nurse practitioner that has her case is not back until Wednesday.
Ella is having an abdominal ultrasound tomorrow (Tuesday). Please pray that all goes well. They will be checking to see if she shows any signs of clotting around her IVC, where it was partially occluded. We would really love to see her low molecular heparin treatment discontinued (clotting medicine that has to be given via subcutaneous shots). Her poor legs are all bruised from being pricked with a needle each day.
Although we did not capture an image, Ella really liked the Minnie Mouse that we brought back from Disney World. We can’t imagine the day when we can take her there for the first time.
Speaking of first times, we are looking forward to our first time of leaving the hospital. Although we have not been given a final date, it seems around the corner and could be as early as sometime this week.
Along with that comes the anxiety of being new parents…and being new parents with a baby that has special needs. Please begin to pray that we can continue to trust in Him, and fully rely on Him for our needs as we learn to take care of Ella each day.
Philippians 4:6-7
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
