Posted (Tina) in All Posts on March-11-2009

Ella seemed to be in a bit of a better mood today for Kelly; she was more willing to play and do some of her exercises. And it wasn’t until late afternoon that she was tired and wanted a nap. Maybe getting more rest last night caught up with her.

The OT session went okay and the PT session went well. Just the same types of exercises day-in and day-out to try and get her eating food and stronger physically so she can move on to the next milestones.

Man, a side effect of these teeth that we were not expecting is grinding of the teeth. Ella’s been doing this for a few weeks now, especially as the top teeth have started to emerge. She doesn’t do this at night, only during the day when she is awake. Most articles I’ve read online say to not worry about toddler teething, and that it will go away with time as the toddler gets used to having teeth. But boy, it makes a lovely sound! For now, we try to simply encourage the binky in her mouth instead.

And Ella’s hair is getting a bit out of control! We’re trying to let it grow out overall, so we can convince someone to drop by the house and cut it into a style. For now, it’s free reign except for the pigtails and/or headband.

After two nights, it is looking like Captopril plays a significant role in sleepless nights for Ella.

Yesterday, she took the last dose of Captopril at 6pm (3 hours closer to bedtime than the day before). She fell asleep at 10pm and woke at 12:45am and 1:45am. Both times seemed to be nightmares of some sort. She started screaming and it could have been played off that she was in some type of pain, but as soon as I went into her room and picked her up, she stopped immediately. After a minute, I laid her down and she went back to sleep. Way too quick of a recovery for any type of pain for Ella, so maybe a nightmare?

I administered Captopril at 6am. Then, she woke coughing at 6:30am and 7:30am. So, once again there was no coughing until Captopril was given and she woke 4 times total: 2 prior to Captopril and 2 after Captopril. We’re still going to fine tune and try some other tweaks. And it is high on the list of discussion points for our next pulmonology appointment.

Deuteronomy 7:9 (NIV)
Know therefore that the LORD your God is God; he is the faithful God, keeping his covenant of love to a thousand generations of those who love him and keep his commands.