Posted (Tina) in All Posts on April-1-2009

Well, Ella was seen with beads and a boa today during her play time. I’m not sure if she was trying to play an April Fool’s Day joke on me…or not. Actually, her occupational therapist recommended it for the tactile stimulation. And I just happened to have the gadgets stashed away in my closet. It certainly brought back memories of business trips with colleagues in New Orleans!

Ella slept amazing last night. It has been 1 week since we discontinued the Captopril. Her sleep has been SO much better and more consistent. Mostly, she wakes up a few times per night and she only had one really bad night where she woke up multiple times. We have not had this type of relief since last summer. I am SO thankful that she is no longer on that medication and that the successful SVC procedure allowed her body to no longer require it. Sleep is a huge blessing, for all of us.

She also had a good occupational therapy session today. Although she still had retching and complained, her temperament and tolerant of the feeding exercises was better. She was in the chair for about an hour. That is a long time for her.

Grandma Eusey and I escaped for a pedicure this afternoon and hurried back home before the snow storm hit the Denver metro area. We went for a special treatment that lasted about an hour and fifteen minutes, including a sugar scrub and masque for the feet. It was nice and relaxing.

Looking forward to another evening of hanging out with family and watching the snow fall outside.