Jul
29
    
Posted (Tina) in All Posts on July-29-2007

Ella continues to be stable – – praise God!  They reduced the ECMO earlier today, as Josh mentioned.  They took it down from 220 to 200.  I know that may not mean much, but it simply means that they slowly decreasing the amount of work that the machine is doing to see how Ella responds.  So far, Ella is doing amazing.  Her vital stats and blood gas levels are remaining the same – – this just means that her body is doing that extra bit of work.  This is what we want to conitinue to see as they decrease the levels…we want her to become stable enough so they can perform the surgery of moving her abdominal contents out of her chest.

No drastic changes are ever made overnight.  So, they will wait to hear from Dr. Kays in the morning.  However, if she has remained stable throughout the night, they will most likely look to reduce the ECMO machine levels even further tomorrow.

Enjoy the pics…I know that I enjoyed staring at my baby girl.  The swelling has definitely decreased since they gave her the meds earlier today.  A few times, her right eye started to peek open when I was holding her hand or touching her head.  Also, I felt a few tugs back from her gripping.  Although these details are small, they mean a lot coming from Ella.  I can’t wait until she begins to feel better and really begins to respond and look around. That will be fun…



Terri Trainer on July 30th, 2007 at 6:44 am #

EXCELLENT!! I’m so happy to see that you can touch her. It’s not the same as holding, but at least she knows that mom and dad are near by! What a cutie. Hard to belive we were ever that small!!

The Williams on July 30th, 2007 at 6:50 am #

Thank you for showing us your smiles as well as pics of Ella; can’t imagine the effort this is requiring from all three of you, but praise God for stable stats, tiny touches and wise doctors. XOXO

Joan Odell on July 30th, 2007 at 7:17 am #

Dear Josh, Tina and Ella: I am Kelli Billman’s mother in law and we live in rural north east Oklahoma. Kelli has emailed our entire family and we want you to know there more prayers going to our Lord for all three of you. The three of you are very special and beloved children of the Lord and I know He is holding all of you in His wonderful hands. Ella is a beautiful baby with a beautiful name. Your touches will continue to strengthen and encourage her. Touch is so important. Our prayers are also with Jonathan’s family. I pray this day brings more strength to Ella and she continues to stabilize and that both of you continue to be strengthened as well. Our prayers and love to you in Christ – Joan and Steve

Joel Snyder on July 30th, 2007 at 8:03 am #

Ella keep up the good work. Grandpa is watching you and praying that you will continue to get better. Love and kisses. Grandpa

Bob Yarnall on July 30th, 2007 at 8:45 am #

Josh, We spent time with Sue R in PA yesterday and she filled us in on Ella’s progress and the journey that you and Tina are on. Our thoughts and prayers are with your family.

Your blog brought back many memories of our journey through the NCIU weeks with our triplets. The journey is a difficult one, but you do not walk it alone.

Ella is a cutie and sounds like quite the fighter. Those small fingers wrapped around your finger mean the world to her as much as they do you.

May God continue to bless you.

If you need anything, please feel free to call …even to just chat

Bob

Todd Katler on July 30th, 2007 at 8:51 am #

Tina and Josh – I am so proud of you both! And I can’t tell you how happy we are that little Ella is responding so well. We love you all and wish you all the best!

Auntie Shannon on July 30th, 2007 at 9:35 am #

She is so beautiful. I love the pic where she is blowing bubbles. ; )

Okay, I can’t stand it — please let us know when we can come visit.

Craig Glendenning on July 30th, 2007 at 9:52 am #

I am so Glad that Ella has been able to take a bit of the work off the ECMO. My wife and I are praying for her continued progress, Tina. Ella has no idea how many hearts she has touched.

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