Posted (Tina) in All Posts on December-16-2009

Yep, even though it is not an enjoyable activity, we still try foods here and there. The OT asked us to stick with whipped cream for now. The faces that Ella makes are unbelievable! You would think it tasted really bad…this just shows you how an oral aversion really can taint your experience with food. We’ll keep trying!

Ella received her H1N1 booster shot last Friday. So glad that we were able to get her vaccinated. Also, she visited the ENT for a follow-up appointment. The ENT prescribed Prevacid twice per day. Dr. Kelley noted that since Ella got a cough with the daily Nasonex treatment, it is likely that stomach acids might have played a role. While Ella is laying flat sleeping, the Nasonex was greatly helping to drain her sinuses. However sometimes the stomach acids can also travel up and irritate the esophagus and larynx, even though she has a nissen (the nissen is there to prevent food from refluxing and to make sure Ella gets nourishment. However, the nissen doesn’t tie off the esophagus and stomach opening 100%, otherwise she would not even be able to swallow her secretions). Since Ella had this reaction to the Nasonex, this is the most likely cause.

The ENT asked us to give Nasonex every other day for 1 week, then switch to administering Nasonex every day too. We started last Friday and we’re just about ready to give Nasonex each day starting this Friday. We’re hoping that makes the difference because so far, things have not improved for Ella. She still struggles each day, especially in the morning hours, with secretions and mucoids so thick that they occlude her airway. We have another follow-up appointment in January to see if this has worked or if we need to try something else.

The other day, we just captured a family moment. Ella wanted to play with her computer and Lola wanted to be close and watch.

I had a great birthday yesterday, hanging out with Josh and Ella. Below you can see the snuggles I rec’d from my girl.

Enjoying the holiday season and looking forward to celebrating Christmas in 9 days!

Amber Riley on December 16th, 2009 at 10:11 pm #

Ella is such a doll! Merry CHRISTMAS!!!

Kim Chavez on December 16th, 2009 at 10:14 pm #

Beautiful girls! Tina you look fabulous and I love Ella’s curls and beautiful smile! I miss you….hard to believe it’s been 5+ years since we were sharing the carpool lane.

julie kirk on December 16th, 2009 at 10:55 pm #

so happy to see this post…precious, just precious. Wishing you a Merry Christmas and a Happy New Year filled with blessings!

Marge (A Friend in Indiana) on December 17th, 2009 at 7:24 am #

Ella, glad to see you; you are getting so grown up and are beautiful; still love that smile. Happy Birthday (late) Tina and Merry Christmas to you all. Take care!

Tracy on December 17th, 2009 at 7:40 am #

Glad you had a great birthday Tina ~ love Ella’s little curls =)
Hope you all have a wonderful Christmas

Love, The Mitchell’s

Eve Johnson on December 17th, 2009 at 12:42 pm #

Merry Christmas to you, West family. May the Spirit of the Lord fill you with joy.

sherry martinez on December 17th, 2009 at 2:18 pm #

merry christmas ella is looking great hugs sherry and baby cayden

Katy on December 17th, 2009 at 3:18 pm #

Merry Christmas! What an incredibly cute family.

Tara Hayes on December 18th, 2009 at 6:55 am #

she is a beautiful girl. merry, merry Christmas!

Jennifer Harris on December 18th, 2009 at 9:45 am #

Thank you for sharing and we wish you a very merry Christmas..peace and blessing for the new year!

Sheila Wright on December 23rd, 2009 at 1:31 pm #

Merry Christmas to the West family. We still continue to keep up with Ella. What a beautiful little girl. May 2010 be a year of many blessings for you all.

Chris Moore on December 27th, 2009 at 3:46 am #

Hey how is it going guys I am not sure if u guys remember me…but we met in Florida when our kids were in the hosptia;. I was just checking in to see how guys were doing and to wish you all happy holidays……

Joel snyder on March 8th, 2010 at 1:54 am #

Ella, What great pictures of you and Mom. Get ready Santa is on the way. See you soon. Love,Grandpa!!!!

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