Posted (Tina) in All Posts on February-22-2009

Ella had a relaxing and smiley day. This is after she slept last night from 10:45pm – 6am straight!!! That was a miracle. It is not normal, but we were both appreciative of the extra zzzzzs.

She was exploring her voice a lot today – she wasn’t saying anything with meaning, but just making lots of loud, strange noises. It’s almost like she was exploring and realizing that she has control over her voice. It must have been entertaining to her because it was constant over several hours. It did make us laugh at several moments.

When we weighed her this morning, she lost a bit of weight and is back down to 9.3 kilos (she was up at 9.5 kilos the other day). We’ll see what happens over the next few days. She has been requiring 1.5 liters of oxygen when she is awake, but ever since we reverted back to 26 k/cal EleCare food, she has been a much happier child. Again, we’re not sure why she is requiring more oxygen but hopefully it is not a bad sign as she prepares for her surgery.

Only a few days until Ella’s procedure. We’re not sure if she will be hospitalized afterward. A lot of it depends on how the procedure goes and if they are successful at placing the stint. At this point, we are packing a bag and preparing for an overnight sleepover at the hospital.

Trying our best to not be anxious about the procedure, but looking to Him for peace.

Philippians 4:6 (NIV)
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God.

The Dirirm Family on February 23rd, 2009 at 5:20 am #

Way to sleep through the night!! We will be praying for your procedure.
The Dirrim family

Lesli Richards on February 23rd, 2009 at 5:30 am #

Yay! I’m glad you got some sleep. We are praying that God is laying the groundwork, even now, for those doctors to have wisdom in placing the stint and opening that vein, and that once and for all, Ella’s fluid issues will be behind her! Love, Lesli

Joel Snyder on February 23rd, 2009 at 6:26 am #

Ella, I am hoping that you continue to discover new things like your control of your voice. Nice to hear that you are sleeping better. I will keep up the prayers for your procedure on Wednesday. Have a good day and keep up the good work with PT and OT. Love,Grandpa!!!!!!!!!!!!!

Marge (Indiana friend) on February 23rd, 2009 at 6:33 am #

May the peace of the Lord be with you all as you prepare for Ella’s surgery!
Praying for success in the procedure as He guides the doctors and all caregivers. Looking forward to seeing Ella’s beautiful smile soon after.

Christe Mitchell on February 23rd, 2009 at 12:02 pm #

Hey Sweet Baby Girl. You are getting so big, where has the time gone? You are a beautiful little girl. Praying you and all have a Wonderful Day!God Bless!

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