Posted (Tina) in All Posts on February-24-2009

It was sunny and warm here in Denver today – 65 degrees. So, Ella had a chance to go on a walk and check out the neighborhood!

The day was also filled with her typical therapy exercises: sitting in a bath of pinto beans for tactile stimulation. We’re trying to get her to touch them and feel the beans. Normally, she does not like anything on her hands and will pull away if you initiate anything with her hands.

She tolerated her feeding sessions much better today, an improvement over yesterday. And it is a different child than last week when she was not feeling well. Wow, what a difference. Again, still meltdowns and whining about feeding but her toleration and self-calming was much improved. As I discussed with the OT, I think we just need to go back to basics. She agreed and so we have gone back to some very simple, basic feeding techniques and strategies to get Ella back on track with her eating.

Tonight after 3:30am, Ella will not be able to eat. Normally, her food pumps runs and feeds her continuously till 6:30am. So, I am sure that she will be a bit cranky from lack of food by the time we arrive at the hospital at 9:30am and are waiting for the procedure. Again, the procedure starts at 11:30am and is scheduled to last for 4 hours. We’ll do our best to keep the blog updated as the day unfolds.

We appreciate all the thoughts and prayers for the Bun.

Psalm 71:6 (NIV)
From birth I have relied on you;
you brought me forth from my mother’s womb.
I will ever praise you.

The Brittain Family on February 24th, 2009 at 7:09 pm #

Praying for Ella!

MOORE FAMILY on February 24th, 2009 at 7:29 pm #


katie mendoza (australia) on February 24th, 2009 at 7:52 pm #

praying for beautifull ella

Kristen on February 24th, 2009 at 8:44 pm #

Holding you up in prayer tonight and tomorrow. . . anxious to hear how it went!

Anne (CA) on February 24th, 2009 at 9:11 pm #

fingers crossed for a quick and uneventful procedure that accomplishes everything it’s supposed to and makes Ella a happy camper!

Debbie Bennett on February 24th, 2009 at 9:22 pm #

Sending prayers from South Carolina!

Amber Riley on February 24th, 2009 at 9:54 pm #

Praying things go well tomorrow…

megan on February 24th, 2009 at 9:58 pm #

Doodlebug I will see your mom and dad tomorrow I will say a thousand prayers for you!

Lesli Richards on February 25th, 2009 at 5:17 am #

praying praying praying today!

Marge (Indiana friend) on February 25th, 2009 at 6:38 am #

Prayers from Indiana…..for God’s healing hands on Ella and His comfort and peace to you Tina and Josh.

Anne F on February 25th, 2009 at 8:24 am #

Prayers coming from Gainesville

Jennifer Harris on February 25th, 2009 at 8:24 am #

We are praying for that beautiful baby girl!

jennifer & chelsea

Eve Johnson on February 25th, 2009 at 8:33 am #

Praying, praying, praying in Gainesville!

Motormouth on February 25th, 2009 at 10:06 am #

Ditto, ditto, ditto in Northampton, MA!

Heidi Ham on February 25th, 2009 at 10:19 am #

Lord please bless the doctors during the procedure. Let the process be successful and give Ella relief. Pray for her safety and comfort during the surgery. Huge prayer also for Josh and Tina as they wait. May you comfort them with your love. AMEN

Estela Williams on February 25th, 2009 at 11:59 am #

May God be with Ella during her surgery. Keep us posted.

Joel Snyder on February 25th, 2009 at 6:35 pm #

Ella, I never got a chance to answer this blog and have been thinking and praying for you all last night. I am glad you had a great day and enjoyed yourself. I will be checking on you all day tomorrow. Love,Grandpa!!!!!!

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