Ella does not look good.
When we visited late tonight, she looked puffy. Her oxygen was at the highest flow on the nose cannula at 1 liter and her saturations were low to mid 90s. Also, her breathing looked slightly labored. She had weight gain of 50 grams which is high and indicative of fluid retention.
Dr. Kays came by earlier around 5pm and her oxygen was at 800 ml – he thought that was too high for her, so he began questioning the nurse about why it was set high. He wants her to be able to maintain at 500 ml or below. If she isn’t, something is wrong and she is headed down the wrong path. Since he didn’t think she looked that great (she looks worse now), he wrote an order for an additional dose of bumex (.25 mg every 8 hours).
We’re hoping that when she receives the additional bumex at 2am, that it will do the trick. Fortunately, Dr.Kays is around this weekend and we hope to see him at some point.
Please pray for our baby girl. It’s so hard to watch her struggle to breathe. The Lord knows just what it will take and we need His wisdom.
Proverbs 2:5-7
Then you will understand the fear of the LORD
and find the knowledge of God.
For the LORD gives wisdom,
and from his mouth come knowledge and understanding.
He holds victory in store for the upright,
he is a shield to those whose walk is blameless.