Posted (Tina) in All Posts on January-27-2008

Ella had another good night. There was only one minor crises this time.

Ella’s saturation monitor went off, so we were both up. The light was somewhat dim in the room, making it tough to see. After a bunch of theories as to why her saturations were lower (we must have switched the pulse oximeter three or four times, increased her flow, etc.), we turned on the brighter light and noticed that the cannulas had fallen from her nose. Well, that was another nice drill!

Aside from that, Ella slept through the night. She did wake up a bit earlier than normal due to her nose being stuffed up. When it gets blocked too much, she can’t suck on her pacifier and get enough oxygen through her nose at the same time so she gets frustrated and irritable. At that point, Daddy decided to pick her up and cuddle her in an upright position to help drain her sinuses (she is still having remnants of the cold that started 2+ weeks ago).

A home nurse service came again today to check on Ella. The nurse took vital signs and listened to her lungs. Everything checked out good.

Ella was in her normal mood until later in the day. Once she woke up from her afternoon nap, she seemed more fussy than normal. We think that it is because her digestion of the 100% formula is slowing things down and making it tougher for her to stool. Since she has been switched to the 100% formula about 5 days ago, her run rate is once every 36 hours (on breast milk, it was 1-3 times per day). So she remained fussy from 2pm on today. Once again, it is tough to watch her hurting and not be able to fix it for her. She is on special medication to help with digestion, and I think she will adjust, but it is just going to take time.

We tried going outside for a walk for the first time with the Bun. The weather was beautiful and we thought we would introduce Ella to the sun and breeze. At first, we tried placing her in the stroller. She did not want to be in there and pitched a fit. We immediately turned around and tried the Baby Bjorn instead since it seemed like she wanted to be held. Since Ella felt close to my heart, she relaxed and then fell asleep while we took a short stroll around the apartment community.

Tonight we had a nice surprise. Nurse Janet stopped by with dinner and came to hold the Bun for about an hour. That was so sweet of her to think of us and come to visit Ella. She too experienced Ella being fussy and confirmed that she thought it was likely the stool issue too.

As you may have assumed, I’m already feeling the effects of exhaustion that all new moms experience. Tonight, I’m not feeling 100% either. I hope that it is just lack of sleep and that I can get rid of the ill symptoms soon. More importantly, if I am catching anything, I do not want Ella to get sick (that could mean going back to the hospital).

Ella’s grandpa will be coming to visit in another week, but until then, I will be on my own each day with Ella while Josh is working. Please pray for me: I need endurance to keep up with Ella’s routine (I don’t want to get sick from the lack of sleep), and pray that I will be able to feel successful in taking care of her solo. There are many times that I could use a third arm!

All I can do is rest in His promises. Once again, that seems to be the theme during this whole journey.

Isaiah 41:9-11
I took you from the ends of the earth,
from its farthest corners I called you.
I said, ‘You are my servant’;
I have chosen you and have not rejected you.

So do not fear, for I am with you;
do not be dismayed, for I am your God.
I will strengthen you and help you;
I will uphold you with my righteous right hand.

We are so blessed by our baby girl; we just want to do everything we can for her.

Thank you for the continued prayers. We appreciate the love and support from each one of you.

Kelli Billman on January 27th, 2008 at 10:06 pm #

Oh the joys of being home with a new baby! I hope you’re not getting sick Tina, take care of yourself and nap whenever you can! It’s so exciting for us that you’re out of the hospital setting. One step at a time, one day at a time.
I have to giggle at your “drills”, as a parent, we know exactly what you mean, although your situation is certainly more complicated than most, that feeling is similar! Remember not to lose your sense of humor, which is difficult on little sleep. God Bless you!

Joel Snyder on January 27th, 2008 at 10:20 pm #

Ella, I am glad to see that you are at your normal pace of baby steps in adjusting to home life. Tina I am praying for you and Josh to get used to the new schedule. I will be there soon and see if I can lend that helping hand that you need. Love,Grandpa!!!!!!!!!!!!

Tracy Schultz on January 27th, 2008 at 10:33 pm #

About her nose, she may have some getting used to with the cat and different air quality than the hospital. She’ll eventually get used to it, it just may take a bit.
Yes, formula is great for causing constipation. I hope the meds work for that, too!
She is so adorable! Thanks for sharing her with us! :0)

Kristen on January 27th, 2008 at 11:27 pm #


You are such a precious woman, wife and mother. Please don’t be too hard on yourself. We are ALL so proud of you! I am praying for you specifically that you would be well and find moments to rest and catch your breath. Great idea of take a stroll, that is nearly a miracle sure for all grumpiness at our house too. 🙂 Add it to the daily routine and you will both enjoy the change of scenery. Blessings, Kristen

Becky on January 28th, 2008 at 1:00 am #

Oh My Gosh…Ella has gotten soooo big and is soooo beautiful…God will look after all of you and will give you the strength that you need…p.s. sleep when Ella does…

Julie Kirk -Saudi Arabia on January 28th, 2008 at 6:10 am #

boy how well i remember the exhaustion. try to sleep when she sleeps during the day and let the house go. It will be there later.
She really looks well
God Bless

Gloria & Red Jacobsen on January 28th, 2008 at 6:18 am #

Tina & Josh,I remember with my 7 children the first three months were the hardest as I adjusted to my new baby’s routine and them to me.Also the first baby is a somewhat scarier, but always at the end of 3 months and sometimes sooner things became so much easier. My big rule was to sleep whenever the babt slept and the heck with the house or anything else. then it all comae together. We’re praying you stay healthy. I love the pictures of Ella what a adorable baby and she smiles so much,I feel she is going to have one dynmite personality!! God Bless! Gloria & Red

Lizotte Family on January 28th, 2008 at 7:11 am #

Take your vitamins everyday. And oranges are always tasty in Florida! Take Gloria’s advice “My big rule was to sleep whenever the baby slept and the heck with the house or anything else.” Tina and Ella look so beautiful together. Love all the pixes. Practice makes perfect don’t worry you have about 18 more years to get it right.

The Chambers' Family on January 28th, 2008 at 7:15 am #

There is no worry like a mothers worry when you bring your baby home from the hospital. Especially a NICU baby. There is always a feeling of how do the other Moms do this? And they aren’t dealing with a CDH baby. So — tired, worried and not feeling a 100% make you an official Mommy. But we all know that the joy of being a mother makes it all better.

You are doing a great job – don’t worry about this blog. Just enjoy being a Mom.

“She is precious in his sight”

(unless it is therapeutic – because we would all have withdraws!)

Andrea Thibault on January 28th, 2008 at 8:41 am #

I am so happy that the three of you are finally all home together! I missed a couple of days, so I have caught up this morning – tears of joy for you all! God will be with you through every step. Many hugs!!!

The Rowe Family on January 28th, 2008 at 8:49 am #

We are so happy for your family and are soo awe struck at the hand of our Lord!!!! You 3 are such fighters and we are praying today that God will increase all that you need ie… SLEEP STRENGH more pampers….we love you and thank you again for letting us all be apart of this amazing story!! With Great Love and all the blessing God has to offer We love you guys Angela and Brian Rowe

John & Estela Williams on January 28th, 2008 at 8:56 am #

Tina you will be ALL the mother Ella needs. Enjoy all the moments with her.. good and bad! You and Josh are awesome and it’s a blessing to see her home. Love you guys and God Bless.

Char and Jim Jordan on January 28th, 2008 at 9:28 am #

Tina, you need to nap when the baby naps to keep up on your sleep. You are 100 percent right that it is not good for anyone to get sick around the “BUN”. You will do fine. You are a great mom. It is a bit daunting to face a baby with such complicated problelms. You and Josh are Heavenly Father’s choosen couple for this special baby. What a gift. He thinks enough of you and Josh to care for a very special spirit. Things will calm down in a while. Remember, when Marc was a baby and you were about 11, well he had pheumonia almost a dozen times in his first year, and viral spinal meningitis too. Follow your heart and use your head and all will be well. Count on your Heavenly Father to quietly prompt you. Listen to the still small voice. Mom’s know!
May I say one more time, we are so very proud of you and Josh and Ella. You have done all that is required of you and much more. You took the road less traveled by, and that has made all the difference. We are thrilled that your dad will get the opportunity to come to Florida. He is such a wonderful man. He surely needs to hold his granddaughter and love her. It will be good for him to see you and Josh. I can see a very special relationship happening with Ella and her granddad. All our love, Aunt Char and Jim

Fran Jarrett on January 28th, 2008 at 11:35 am #

Tina you are doing such a wonderful job! Listen to all the other Mom’s and rest and sleep when Ella does!
So happy to hear that your Dad is coming to visit and will be able to hold his Grandaughter!

Michelle L on January 28th, 2008 at 2:46 pm #

Hey! I’d love to come for an hour or two during the day and give you a break to rest Tina. I have Friday off work and would love to come in the early afternoon (maybe 1ish). If you feel comfortable with that and could use the help, just e-mail me. I miss Ella but I’m so glad you see her doing well at home 🙂

Carl and Cathie Firestone on January 28th, 2008 at 6:48 pm #

Isaiah 41:10 is the verse Carl and I claimed during my pregnancy with Luke and still do today. What a beautiful sight to see sweet Ella out in the sunlight! Tina…I know how daunting this motherhood task seems…you can do this!!! Please call if you ever need another CDH mom to listen, complain to, cry to, etc! We continue to pray for all three of you and are praising God for His goodness! With Love, Cathie Firestone

Crystal Coldiron on January 28th, 2008 at 8:45 pm #

When I am up with my baby during the night I will definitely keep you in prayer!

Post a comment

Name:  (required)
Email:  (required)