We had a bit of a scare with Ella this morning. She started retching pretty bad and couldn’t catch her breath. She began to turn purple and it looked like she was going to pass out. I was about to get her emergency oxygen mask to administer blow-by when I noticed that one of her oxygen lines was not plugged in. Instead of plugging it back into the limiter, I plugged it directly into the concentrator and cranked it up to 3 liters. She started catching her breath…she calmed down…and her color returned.

This has NEVER been easy to watch. Her retching episodes are tough enough to get through, but they’re intensified when she can’t catch her breath. I pray that she’ll will outgrow the retching at some point. It’s so hard to watch. Thank God she recovered though.

Tonight she was being her smiley self for me. Grandma, Tina, and I played some Yahtzee while Ella looked on.

Grandma heads back to California tomorrow night, and boy we’re going to miss her. She’s spoiled us good with the cooking and cleaning.

We’re still trying to get into a routine. Hoping we can soon because I think this will help all of us.

God Bless our sweet little Bun.