Dec
16
     
Peace!(Day 510)
Posted (Tina) in All Posts on December-16-2008


Last night, Ella had a great night of sleep. She only woke up twice which is really good for her.

She had OT and PT today. The OT had a great suggestion for Ella’s retching. She recently read a study that showed that if you grasp and place pressure on the head of the child for a few times in the moment when they would normally retch, it can subside the retching (showed favorable results for 70% of patients in the study). Even though there is a huge margin of error, we are willing to try anything.

So this evening, Josh and I were both trying this new method anytime you could sense that Ella would normally retch. And amazingly, it did seem like it helped her. We’re trying to not be too optimistic, but the initial signs looks good. Anything to reduce the retching is great; it has to be one of the toughest daily things to encounter.

We purchased this Z-Vibe tool that is supposed to help with oral aversion and the signs have been promising after only two sessions. Along with that, the OT has instructed for us to have 3 feeding sessions per day. We’ve opted to use apples since those used to be her favorite. We’re hoping that we can make progress sooner versus later.

Yes, the dog is still on my mind. I found myself waking up throughout the night consumed with sadness. But today was a new day and although I still miss her, I know that it will get easier as the days pass.

Thanks for all the thoughts and prayers. It means a lot to know that there are so many out there supporting us on this journey.

Lamentations 3:25 (NLT)
The Lord is good to those who depend on him,
to those who search for him.


Loren L on December 17th, 2008 at 6:39 am #

I love applesauce!!!! I’m excited.
Don’t forget to try the puffs. Those little finger foods for baby’s to practice self feeding. I think Ella would enjoy seeing what she can do with her hands. Little Dave loves finger foods, although he is still working on his aim.
God Bless you

megan s on December 17th, 2008 at 8:15 am #

Peace… That is a nice thought for all of us this time of year. Peace in our hearts when they are breaking from loss. Peace in travels this holiday season. Peace for Ella’s body to mend. Thinking of you all and hugs too!~

Jim and Char Jordan on December 17th, 2008 at 8:36 am #

Go Ella, Go Tina, Go Josh. So sorry about Joslynn. Our hearts go out to Josh and your dad too. It seems that the full range of burdens have been sent to strengthen your little family. We are praying for comfort and relief for Ella. Love,

Grandma on December 17th, 2008 at 10:20 am #

Kids! just a thought. Both Josh and his sister would not let you put any thing in thier mouth they had to do it themselves I do relise Ella is Quite a different little case. but Lorens sugestion of finger food reminded me of this . you might have tried this but maybe if you let her stick her fingers in her applesauce and you taste them from her fingers she might do the same. Anyway I can hardly wait to see you all for Christmas SOOOO sad over Joslynn
Praying for som piece Lots of love Mom

Joel Snyder on December 17th, 2008 at 12:52 pm #

Ella, It sounds like you are receiving alot of good ideas and I hope they work for you. I am also excited that you are sleeping better at night. I am home with Manny and he is doing O.K. although he is still looking for Joslin. He like Grandpa will get over it. I will check on you later. Love,Grandpa!!!!!!!!!

Laura Marold on December 17th, 2008 at 9:40 pm #

So very sorry to hear about Taco. Pets have a special place in all our hearts. They love us unconditionally and are always happy to greet us when we come home. My sympathies to Josh and Joel, but especially to Tina who lost her best girlfriend on her birthday. That really sucks!!

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