Posted (Tina) in All Posts on July-22-2009

Ella had both OT and PT today. She was a bit cranky during both sessions, but each therapist was able to get a little bit done.

I didn’t mention it in the last post, but Ella passed out last night. All the color left her face and she arched her back and passed out. It took about 10-20 seconds. That is the first time that she has passed out in a handful of weeks, since her meds were increased. We’re on the lookout for other clinical symptoms that might indicate fluid retention.

Ella has shown a bit of weight gain, but it has been steady over the past few weeks, so we’re not convinced it is from fluid. As of this morning, she is up to 11.49 kilos or 25.27 pounds. So she’s gained 1 pound since we increased her meds. The signs can be so subtle and happen over time, so we’re just trying to pay real close attention.

In anticipation of Ella’s birthday, we wanted to get her a baby doll – her first one. I looked and looked at stores, but could not find one that was going to work. Then I remembered that I still have a box of my baby dolls. I had some specifics that I wanted and Grandma West decided to help make it happen. Today, she started getting the baby ready by cleaning her body and hair. Then, putting her hair in pony tails and decorating with ribbons. The main idea that I wanted to make sure of: that we could make the baby doll have a scar and g-tube just like Ella. We’ll have to take pictures of the final product, but the pictures above show Grandma West in action!

And of course, the Bun in action too…

Amber Riley on July 22nd, 2009 at 9:57 pm #

What an awesome idea!! Cannot wait to see the final product!

Jenn M on July 22nd, 2009 at 10:14 pm #

Yay! Can’t wait to see Ella’s baby! Sad to hear about her passing out, come on Bun, no worries just before your birthday, please!
Thinking about y’all a bunch!

Anne (CA) on July 22nd, 2009 at 10:35 pm #

gotta love those Cabbage Patch Kids!!!

kristin on July 22nd, 2009 at 11:24 pm #

What a wonderful idea! A doll for your doll!!!

Scary about the event of last night. I hope that is something the docs can figure out and clear up fast!

Can’t wait to see the birthday celebration : )


loren lizotte on July 23rd, 2009 at 4:23 am #

awww I love it. I sent Ella a little something… But I don’t think it will make it in time for her bday. I need to tell you that I had to turn it off for shipment.

Joel Snyder on July 23rd, 2009 at 6:35 am #

Ella, Sorry that you passed out. Maybe we can find out just what is causing that and get it fixed. I hope you have a better day today. Love,Grandpa!!!!!!!!!!!!!!!!

Eli Brown on July 23rd, 2009 at 6:47 am #

I love the doll idea. She is going to love it.

Joan and Steve Odell on July 23rd, 2009 at 7:48 am #

Dear Ella, prayers for your health — Mom what a special idea for her birthday. You are the best!!! Hugs – Steve and Joan

Julie on July 23rd, 2009 at 10:18 am #

My little girl loves her baby doll. Hope Ella loves her, too!

Laura Huene on July 23rd, 2009 at 4:45 pm #

She is so sweet…scary night you had! What a great idea for a little doll. You are an amazing mama!

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