Sep
02
     
Tomorrow’s a big day!(Day 406)
Posted (Tina) in All Posts on September-2-2008

Thankfully, Ella has remained stable and is ready for surgery tomorrow. She still has congestion, but time will tell how much of that is due to her inflammed lungs and the hiatal hernia.

In preparation for surgery, her last dose of IV Lasix will be at 2am. So far, it has worked well at keeping her dry. We’re hoping that the IV remains viable through tomorrow for surgery. So far as of 6pm tonight, it has lasted. Usually right about now (48 hours) is when the IV starts to go bad. Pray that it can stay in place!

She has to stop having formula via her food pump at 5am. Normally, it delivers food until 6:30am. To help make up the difference and keep the IV in a good condition, they are going to start IV drips at 5am, once her formula stops. She can have water by mouth until 9am. The surgery is scheduled for 11:45am, but we’ll see how prompt they are with the schedule.

We did not hear or see Dr. Partrick which is a bummer. We were hoping to see him prior to the surgery. Maybe it will happen in the morning. We were just wondering how long the surgery is anticipated to last, given her medical history. Also, we wanted to see if he had any thoughts on extubation (does he normally extubate post surgery right away unless there are complications? or can we expect to see her intubated and on the vent?). Although Ella always calls the shots, we were just curious to hear his thoughts.

Thank you for the outpouring of support and prayers. It means so much to know that there are lots of you out there wishing the best for the Bun.

Along with Ella’s surgery, we have so many other facets of life that seem to be up in the air. We’re trying our best to be patient and just listen.

Please pray for our spirits and emotions as we go through tomorrow. Once again, we are asked to surrender. We’re doing our best to eliminate any anxious thoughts. The Lord will be there with Ella, guiding and directing the surgeon’s hands. We need to trust in Him, completely.

As we face another valley, we pray for Him to be glorified. We pray that Ella can be used as an instrument to bring about hope and truth.

This is certainly not a journey we would have chosen for ourselves, but rest in the truth that He chose us to be Ella’s parents. Now, we’re simply trying our best each day to fulfill the job He’s given us.

Psalm 143:8
Let the morning bring me word of your unfailing love,
for I have put my trust in you.
Show me the way I should go,
for to you I lift up my soul.


John & Estela Williams on September 2nd, 2008 at 7:05 pm #

Ella, Mommy and Daddy… we will pray for a safe/productive surgery tomorrow. Love The Williams

Kristen on September 2nd, 2008 at 7:11 pm #

Praying you and Ella through. Another milestone and another provison from the Lord. . . a Children’s hospital that specializes in the care of little ones. xoxoxo

Jennifer on September 2nd, 2008 at 7:20 pm #

Lots of thoughts your way!!!

sherry martinez on September 2nd, 2008 at 7:21 pm #

have faith and hope ella is a very strong little girl. I will be praying the lord gives you both strength. I also will pray for her to come up extubated as that will make for a speedy recovery. baby cayden and I send our love. god bless you all

The Riches on September 2nd, 2008 at 7:40 pm #

Oh precious Ella! We will be praying for you throughout the day–we pray for steady hands and a clear mind for the surgeons, doctors, nurses who will be taking care of you. We praise God for your life and for the witness you have been to so many. We thank God for your parents and there faithfulness. We pray they may remain calm and peaceful during your surgery. We love you!
Liz, Rusty & Par
(and Tiffany and her unborn puppies)

Eve Johnson on September 2nd, 2008 at 7:49 pm #

My heart-felt prayers and love will be with you all – Josh, Tina, Ella, Grandma West, Grandpa Snyder, the doctors nurses and assistants – all day tomorrow. May our Lord grant you peace, assurance and confidence throughout the coming days.

Eusey Family on September 2nd, 2008 at 7:52 pm #

Sweet Ella and her precious parents,
The Euseys are lifting you all up in prayer. It is true that our loving God has a great plan for little Ella. Wishing you much love,

Shannon, Rick, Megan, Richard, Claire, and Ry

Kim Chavez on September 2nd, 2008 at 7:54 pm #

My prayers are with you all. Thank you for keeping us up-to-date with your posts. I don’t know how you two find the time…or energy. You both are amazing parents and Ella is lucky to have such a wonderful Mommy and Daddy! I love seeing the pictures of her, especially smiling or snuggling up to you. She is a beautiful little girl. We all love you.

Anne on September 2nd, 2008 at 8:54 pm #

Prayers for an easy, successful surgery and a speedy recovery for Ella and for her parents.

Laura Arneson on September 2nd, 2008 at 9:03 pm #

Prayers and Blessings to your sweet family. Take special care of each other.

Naz on September 2nd, 2008 at 9:10 pm #

I am thinking of your family and hoping for a beautiful tomorrow!

megan on September 2nd, 2008 at 9:16 pm #

May all the angels surround you tomorrow in surgery and remember that God will have his hand on the surgeon =)

Schultz Family on September 2nd, 2008 at 9:19 pm #

May God protect and quickly heal her during and after the surgery. Peace to you all, and rest!
Tracy

Jill E G on September 2nd, 2008 at 9:33 pm #

Praying for a safe, successful surgery and a speedy recovery. Praying for guidance for all your doctors to do their best work. I’m praying for you and Josh to have continued strength and peace.

I sent you an email forward because I thought you would like it.

kristin on September 2nd, 2008 at 9:33 pm #

The sun will come out tomorrow…bet your bottom dollar that tomorrow…Ella you need to hear some show tunes girlfriend! Tomorrow, as Dr. Patrick and team fix you all up know that our Lord is guiding each step of the way.

Tina and Josh…HANG TOUGH! I know you are restless. God is blessing you all. I pray that he keep you safe in all your emotions and spirit. Peace be with you all.

Love,

Kristin

Michelle Herman Skeels on September 2nd, 2008 at 9:35 pm #

Try and get some rest – Ella needs you both in good shape! She really does look so much better – and very cool to have her first tooth coming in! …what timing! 🙂

The Weir Family on September 2nd, 2008 at 9:59 pm #

We continue to lift up you and your sweet little lady in our prayers! Blessings to you as you all rest tonight and an extra measure of peace to you tomorrow.

Alicia on September 2nd, 2008 at 10:18 pm #

Praying for a successful surgery and quick healing!

The Laz Fam on September 2nd, 2008 at 10:19 pm #

what a beautiful girl ~ makes me think of the song: strength for today, and bright hope for tomorrow!
Joy and Blessings to you all!

Jim and Char Jordan on September 2nd, 2008 at 10:19 pm #

Praying constantly that things will go as the Lord wants and that all things will go to your satisfaction.
Keep the Faith. Jim and Char

Julie Kirk on September 2nd, 2008 at 11:25 pm #

Prayers from Saudi Arabia all day long…

Lesli on September 3rd, 2008 at 2:39 am #

Praying today in Georgia. We love you. The Richards

angie on September 3rd, 2008 at 2:48 am #

praying for ellas surgery today

Barbara Mullins on September 3rd, 2008 at 4:10 am #

Heavenly Father, we lift up Ella, Josh and Tina to you. We know, Lord, that there is nothing beyond Your reach and that You are sovereign. Lord I pray that you will manifest your presence to Josh and Tina during this time, outpouring your peace and assurance. I pray for Ella, that her body would remain strong and that You would bring her through this surgery with victory and that You would get the glory. I pray for Dr. Patrick and those assisting him, that You would give wisdom and discernment. LORD GOD, put Your hands in the doctor’s gloves and be JEHOVAH RAPHA to Ella. We thank You for what You will do and praise You that you are the Sovereign God.

11:45 your time is my lunch hour back east, so I’ll be praying during the surgery (and throughout the day, of course). “Thou will keep him in perfect peace whose mind is staid on Thee” – keep focused!

Blessings!

Barbara

The Brittain Family on September 3rd, 2008 at 5:01 am #

prayin’

Ramondo's on September 3rd, 2008 at 5:16 am #

Love and prayers…
Michael, Sue, Addie and the boys

Christe Mitchell on September 3rd, 2008 at 5:20 am #

Guidance
When I saw “G: I thought of God, followed by “u” and “i”.
“God, “u” and “i” dance.”
God, you, and I dance.
As I lowered my head, I became willing to trust
that I would get guidance about my life.
Once again, I became willing to let God lead.
My prayer for you today is that God’s blessings
and mercies be upon you on this day and everyday.
May you abide in God as God
abides in you.
Dance together with God, trusting God to lead
and to guide you through. My thoughts and prayers are with
you all today! Praying for Miss Ella and the medical staff, also
praying for comfort, strength, and peace for Josh and Tina.
God Bless, Christe

Sherl on September 3rd, 2008 at 5:21 am #

Dear Lord, Please wrap your arms around all who are involved with Ella. Please bring them peace and give them the strength during this difficult time. You are an amazing family. Your faith is so strong. Many prayers from the land of 10,000 Lakes.

Joel Snyder on September 3rd, 2008 at 5:22 am #

Ella, I am at work and have been thinking and praying for you today. I will be checking on you later. Josh and Tina I am praying for you also that you can be strong for Ella. Lord please guide Dr.Partrick and his wonderful team as they repair the “BUN” and help her to recover. I will check on you later. Love,Grandpa!!!!!!!!!!!!!!!!

Kathy on September 3rd, 2008 at 5:58 am #

My prayers are with all of you today, and I know that God has Ella in the palm of His hand. I will be praying for the drs and nurses as well. God bless all of you!

Steve and Joan Odell on September 3rd, 2008 at 6:34 am #

Praying for all of you each and every moment today – also the medical team. Hold tight to His word and love. Lord Bless and hugs – Steve and Joan

Elizabeth Norman on September 3rd, 2008 at 6:38 am #

We are praying for precious Ella’s surgery to go well and for guidance for her doctors as well as comfort for you mom and dad.

Williamsburg on September 3rd, 2008 at 7:31 am #

Love and prayers with you always. XOXOXO

Anne on September 3rd, 2008 at 7:32 am #

Thought and prayers are coming to the three of you from Gainesville.

Nancy Costas on September 3rd, 2008 at 7:33 am #

Josh, Tina & Ella, you are in our thoughts and prayers today for a successful surgery. Ella, you would never know that you haven’t been feeling well. What a brave little girl you are! Josh & Tina, if there is anything you need or anything we can do for you, please let us know. Love, Lyle, Nancy & Amaya

Marge (Indiana friend of Keith & Liz Mueller - Chris' parents) on September 3rd, 2008 at 8:16 am #

Thoughts and prayers from Indiana; may God hold Ella in His loving and healing hands; may He give peace, comfort and strength to you, Tina and Josh.

Loren on September 3rd, 2008 at 8:30 am #

Our thoughts and prayers are with you!

Brian and Cassi Reed on September 3rd, 2008 at 8:49 am #

I just found your site through baby Owian’s. Will be thinking of you today, as our CDH baby Elli (13 days old) has her 4th surgery in 2 weeks. Positive thoughts headed your way

Adrienne (Melissa's sister) on September 3rd, 2008 at 9:56 am #

keeping you lifted up as the surgery is getting ready to start…. take care of each other….. love and prayers across the ocean.

Kara on September 3rd, 2008 at 10:17 am #

Those high kicks she was doing are amazing. Kailee would be jealous. I’ll be praying for her surgery today. A little surgery today and tomorrow the dance team. It’s going to be great! Love you all.

Jennifer Harris on September 3rd, 2008 at 11:56 am #

Our prayers of courage, strength and trust are with you two and that beautiful and precious baby Ella will be fine!
Peace & Love of Our Father be with you
~Jennifer&Chelsea

Laura Marold on September 3rd, 2008 at 12:12 pm #

Keeping all three of you in my thoughts and prayers today. Love, Laura M.

Fran on September 3rd, 2008 at 12:39 pm #

You are all in my thoughts and prayers. The Lord is looking down over you. Love, Fran

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