Dec
07
    
Posted (Josh) in All Posts on December-7-2007


Ella had another good day. I was able to spend a lot of great awake time with her today which really lifted my spirits. She was very smiley and happy and we had a great time together.

There was some times where I thought she may be breathing a bit heavier, even when she was resting. In the past, this has been a precursor to her going down a not so good path. I may have jumped the gun a bit in this though. In fact, the nurse taking care of her thought I might have been too hasty in this thinking as well. Once I put Ella to sleep tonight, her stats were down where I was used to seeing them, and she seemed relaxed.

The bottom line: clinically speaking she looks great. She was very happy and overall has a very good temperament. She’s one heck of a sweetie. Fun to kiss her cheek and have her suck on the tip of my nose too. That makes everything all better. =)

Ella also had her fentanyl weaned again, and she had her phenylbarbital discontinued! This was a bit of a shock to me, because I figured she may be going home with it. This is her anti-seizure medication she’d been on for awhile. The dose she’d been on these days was not considered therapeutic at all, so they just stopped it. They’ll watch to see if she has any seizure activity, but the really don’t expect any. Very cool!

So here’s some other incredibly positive news. My grandmother was released from the hospital today! I just talked to her on the phone about 30 minutes ago. She was sitting in her chair, next to the fire, watching grandpa cook dinner, and feeling pretty good.

Honest to God, I’m in a little bit of shock over this. I mean, grandma was really not doing well a week ago, and now she’s back home. Now, she’s not fit enough to go dancing, and I was sure to have a talk with her regarding this, but the fact that she is home, and in good spirits is just awesome.

Praise God for the fighting spirit my grandma has. I now see one of the sources of were the Bun gets it from. Not that I had any doubt though.

Baby Par is cranking on too. He seems to be doing well with his feeds and continues his forward progress. So great that he’s taking to the food. Still praying for continued positive steps for this sweet boy.

Jonathan is still in a critical state. I saw Jasmine for a moment, but did not end up connecting with her today. I want to be able to be there for her, but also be respectful of what she’s going through and give her space. Please continue to pray for baby Jonathan as well as his parents.

Hebrews 13:20-21
May the God of peace, who through the blood of the eternal covenant brought back from the dead our Lord Jesus, that great Shepherd of the sheep, equip you with everything good for doing his will, and may he work in us what is pleasing to him, through Jesus Christ, to whom be glory for ever and ever. Amen.

UPDATE 8:00AM (EST): My grandfather called this morning to let me know that grandmas was re-admitted to the hospital. She was having a hard time breathing last night and started coughing pretty good. It sounds like she just needed to be on oxygen, but we’ll see.