Dec
12
    
Posted (Tina) in All Posts on December-12-2007


It was a BIG day for Ella.
 
At 10:15am, they decided to take her off CPAP and let her try the nose cannula!!! Her oxygen support is set at 500. Maybe the third take on the nose cannula will be her ticket.
 
They are still feeding her at 64ccs over 1 hour, but now they are venting her g-tube over 1 hour too. The goal is to give feeds all at once (a bolus feed) and let her g-tube vent for 5-10 minutes. This is what we will do when we take her home.
 
Ella woke up when she heard our voices this evening. Dad decided to hold her first and was enjoying his time with the Bun. It was a bit concerning because it seemed that it was taking a lot of effort for her to breathe. You could visibly see and hear her breathing rapidly. She sounds like she might have some congestion in her nose too, which can’t be helping.
 
The labored breathing is not different than the last 2 times that she has been on the nose cannula. However, the biggest difference is that when she fell asleep in my arms tonight, and when we put her down before we left the NICU, her stats were awesome while she was sleeping (heart rate around 160, saturations pegged at 100, breathing still high at 80 breaths per minute). We have never seen stats that strong while she has been on the nose cannula.
 
We are hopeful that she will not have to go back to CPAP and that she will be able to tolerate this change. Maybe it will just take some more time for her to gain strength over the coming days.
 
The remainder of this week will be very telling. The first time that she tried the nose cannula, it was only 24 hours and her left lung collapsed. The second time, it was 5 days before she started showing major signs of distress and by 7 days, she was re-intubated because both lungs had collapsed. We’re hopeful that this time will be different.
 
We did not see Jasmine and Chris today, although they were supposed to take Jonathan off ECMO. At this point, we are not sure what to think. Please continue to pray for him and his family.
 
Par is making amazing progress. At this rate, he may even get to go home before Christmas! We are still not sure what type of activity is going on between him and Ella after-hours, but as you may have read on the Rich’s blog, Par’s mitten was under Ella’s crib last night! Mysterious…
 
Please continue to pray for Ella’s strength. It would be amazing for her to not have any major set backs. She deserves that much for her first Christmas!
 
Ultimately, we know that His plan is the best.
 
Psalm 27:14
Wait for the Lord;
be strong and take heart,
and wait for the Lord.

 



Laura Arneson (Adrienne' friend) on December 12th, 2007 at 11:58 pm #

Sweet Ella, we are praying for you and your tiny little lungs, fill em girl! We are continually blessed by praying for you.

Roberts Family on December 13th, 2007 at 12:47 am #

I’ll be praying for strong lungs for Ella and peace and wisdom for Jonathan’s family.

Gloria & Red Jacobsen on December 13th, 2007 at 6:18 am #

I always love the pictures of Ella,she’s so cute! But what amazes me is how she is so attentive ,and looks right at you! she is one smart little girl, I feel and pray she’ll do well with the nose cannula and soon won’t even need that! Prayers of course for you and Josh and all the dear babies and thier parents.

Lizotte Family on December 13th, 2007 at 6:55 am #

We’ll be doing lots of heavy praying for you Ella babe!

Char Snyder Jordan on December 13th, 2007 at 10:27 am #

Our hearts ache for Jonathan and his parents. We will continue to pray for the best result. Go Ella, we will pray for continued progress. We love you and are looking forward to meeting you some day. LOL Char and Jim

Joan and Steve Odell on December 13th, 2007 at 10:44 am #

Oh sweet girl – prayers for your success with these new steps. My heart breaks for Jonathan and his family. Prayers will continue for their strength and understanding. Hugs and Lord Bless – Steve and Joan

The Dirirm Family on December 13th, 2007 at 11:31 am #

Yeah Ella!!! We are praying for strong lungs. Thanks for continuing to share your journey with us. Lord willing we would love to meet you all face to face someday. Until then know that there are many of us here in GA lifting you up to our heavenly father. Blessings.
The Dirrim family

Auntie Shannon on December 13th, 2007 at 12:39 pm #

Go Ella, Go Ella, Strong Lungs Strong Lungs! So glad the sweet girl is making progress. Many prayers to you guys this week.

Hugs,

Shannon

Char Snyder Jordan on December 13th, 2007 at 4:54 pm #

Josh and Tina,
I just returned from Carlsbad and ran into a NICU nurse from San Diego Children’s Hospital. She, by coincidence? runs the ECMO machine at Children’s in San Diego. She was very positive. I asked if you could call her to see if she would share information about your life after leaving the hospital and if she had any recommendations. She said that if you have a Children’s HOspital in Denver that would make great sense. I am not aware of any hospital in Denver much less a Children’s Hospital. I asked if she would mind if you got in contact with her to ask any questions. She told me that it is very likely that Ella would have lung issues the first few years. She said she would be glad to hear from you. She has a baby of her own. We were in a Baby Boutique called “Ella Grace and Clark’s Place” funny huh? Hope you get some direction. So glad to see Ella doing better. LOL Aunt Char

Katy on December 13th, 2007 at 8:05 pm #

She is so cute! I pray her lungs hold up this time and she remains strong. My love to both of you – your strength is amazing!

Joel Snyder on December 13th, 2007 at 9:10 pm #

Ella, You are really looking good today and I am hoping that you can keep up the steady progress. I went to your house in Lone Tree today. I will check on you later. I am saying my prayers for you and your friends. Love, Grandpa!!!!!!!!!!!!!!!!

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