Posted (Tina) in All Posts on June-2-2008

We had 2 doctor appointments with Ella today, to meet and greet with pediatricians. We have another one tomorrow and are praying for discernment to make the right choice for Ella. So far, one stands out to us but there is still another pediatrician to meet tomorrow, so time will tell.

Also, Ella has her first appointment tomorrow with her new PT. We are excited that she will be coming to our home for the appointments, so that we do not have to drive.

Speaking of driving, Ella had one huge meltdown today in the car. I had to bump her up to 2 liters of oxygen to get her through it. It was so hard to hear her in the back and not be able to help her. Instead, Grandma was riding in the back and helping. But it is tough to think about how I will do all of this by myself in a couple of weeks. I asked my Mom after she experienced the episode how she imagines that I will handle this situation on my own. She simply shook her head and answered that she wasn’t sure; it is a extremely difficult thing to do solo.

In other words, it is just going to be really tough to get to wherever we need to go and try and manage her from the front seat. Heck, even being back at home and trying to switch her between 2 separate oxygen concentrators on different levels of our house, get her in and out of the car with the 50′ cords and pulse oximeter cords has been a challenge to me.

In between doctor visits today, we continued to unpack and move furniture. We were able to clear an entire room for Ella and I to hang out in during the day. This will give us the room to play freely and give us room for therapy appointments. Although it has been a lot of work and there is still more to do, it has been worth it.

Originally, Josh had planned to return to work today but ended up being so exhausted from all the travel this past week that he took today off work too. He was still unpacking and doing a lot around the house. Please pray that he will sleep well tonight and be rested for his first day back in the office at work.

The best part of the day was going out on our patio when the sun was starting to set. It was about 75 degrees with a slight breeze. Although they are building more houses across the street, we still have a view right now. It was great to enjoy the pleasant weather outside with the Bun.

It was the first Colorado sunset that the Bun has experienced…and boy, it was magnificent.

We’re just continuing to thank Him for our baby girl and trusting that He will guide us every step of the way in the future.

Matt, Abby, Austin & Caed on June 3rd, 2008 at 6:15 am #

God’s peace…is far more wonderful than the human mind can understand. His peace will keep your thoughts and your hearts quiet and at rest.
Philippians 4:7

Cast all your anxiety upon Him, because He cares for you.
1 Peter 5:7

“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.”
Matthew 11:28-30

Tina…make that boy take a break and get some rest. I don’t want to have to come to Colorado and straighten him out. 🙂 I know there’s a lot to do but it’ll get done. We’re praying for you three daily.

The WIlliams on June 3rd, 2008 at 6:41 am #

What a sunset! I am certain God will bless Ella with many more sunsets in her life. Tina you and Ella look beautiful. Hope your appt. today goes well. God Bless

Joel Snyder on June 3rd, 2008 at 7:57 am #

Ella, I just got home from work and read about your day. Sorry about the meltdown but I think things will get better with time. Good luck with the other Dr.’s appointment and the PT today. Tina one day at a time you are doing fine and all will work out. Josh good luck with work it will be nice to be back with your workers and friends. Grandma have a good day with the “BUN”. I will check on you later. Love,Grandpa!!!!!!!!!!!!!!!!!

Auntie Shannon on June 3rd, 2008 at 8:44 am #

Yah Ella. Love the sunset. So happy you guys are back to CO and things are going well.


Kara on June 3rd, 2008 at 10:25 am #

As for the car thing. You may just have to turn the oxygen up before you leave and then turn the radio up to cover the crying. I listened to a lot of loud radio when Deanna was a baby. Sometimes I just rolled down the windows and enjoyed the white noise and distracted Deanna with the breeze. It does end though. She will be better. You both just have to suffer through it right now. But, at the end of the day God paints the sky for you to remind you it is all in his hands from the great wide sky to the little girl you hold. He’s got your back. How cool is that?

Barbara Bour on June 3rd, 2008 at 3:22 pm #

Remember to have the PT call me if she wants a “heads up”. So happy that you are home and think of you every day. Ella was a star in class again today…more oooohs and aaaaahs from the audience. So glad I can stay with you on this journey via this lovely journal…thanks. Love,Barbara

Angie on June 3rd, 2008 at 3:23 pm #

What a beautiful sunset! I see why you guys couldn’t wait to leave “the sunshine state”! Glad you had an uneventful trip and made it home safely. Looking forward to watching Ella grow up – she looks wonderful and happy to finally be home. God Bless. ~Angie

Krista on June 3rd, 2008 at 5:24 pm #

The car rides will get better, but it is hard to tough them out. The weather sounds better there than in Florida. Glad the trip went well. Enjoy being home with your girl.

The Kuhn Family on June 4th, 2008 at 11:00 am #

How come you can’t put Ella in the front seat? I know that most cars have airbags, but you can have them removed or dis-engaged. I am sure any doctor would give you a “prescription” for a front seat baby. I know that it is said that they are safest in the back, but it seems to me that she is safer by you. It would be so stressful to drive and worry and try to “fix” Ella. The Powers-That-Be also say the middle seat in the back is the safest. So what are parents of more than one child (we have four) supposed to do? Pick their favorite one? LOL I would look into putting her right there in the front with you. JMHO. LoriAnn and The Boys

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