Posted (Tina) in All Posts on June-3-2008

Today was another busy day for the Bun. In between the madness, she had some time playing with Grandma.

In the afternoon, we went to the Children’s Hospital and tried out the Special Care Clinic for Ella’s primary care. The new facility is amazing.

The doctor ordered labs which required drawing blood. That is never Ella’s favorite thing to do but she did need to have it done. Here, they finger prick to get the blood. We had never tried this before. Since it is hard to locate a vein on her, I was hopeful that it might be a better experience….wrong!

I was asked to hold a warmer on her hand to help bring blood to the area. When they pricked her finger, the fighting and crying from Ella started. The nurse continued to hold pressure on her finger and have the drops of blood go into two vials. I’m sure it was not a long process, but it felt like an eternity to me, so it had to feel that way for Ella too. That was one of my least favorite parts: the process took too long.

I was trying to hold Ella down and her finger was bleeding profusely. The gauze got soaked, so the nurse asked me to hold it in place while she got more gauze. Then, my fingers became bloody and I was trying to console and hold down Ella with a dirty hand. The nurse mentioned to not use the warmer next time, as Ella doesn’t need help to bleed. By the time it was finished, I even had blood on my clothing. Needless to say, I was not impressed by the experience.

While we were there, the doctor ordered for a nutritionist to visit Ella too. She looked at her overall nutrition and caloric intake and recommended that we change the formula to add more calories. We mix Alimentum to 24 calories. The nutritionist suggested mixing it to 26 calories.

In the end, we did not decide to go with the Special Care Clinic. Instead, we met a private doctor yesterday, Dr. Steve Perry. My mom and I were clearly impressed with him, but wanted to meet and greet with all 3 of the doctors before making a decision.

Unfortunately, the PT had to cancel for today’s session. We hope to reschedule for a new date very soon.

I’d love to write more, but I will have to save it for another post. I’m drifting off to sleep as I write this entry…

Kelli Billman on June 4th, 2008 at 5:54 am #

Did you decide to go with Dr. Perry? He is our son’s doc and he is awesome!!! Please let me know if you have any questions about him or the clinic, we’ve been going there for 6 1/2 years.

The WIlliams on June 4th, 2008 at 6:46 am #

Wow Ella sure looks like Josh. What a beautiful face. Grandma is in town, how fun for Ella and you two. Eachother and hope to see all of you soon. Love ya.

Gloria & Red Jacobsen on June 4th, 2008 at 6:48 am #

Wow! so happy to see you made it to Colorado! Been out of circulation with my surgery,but now on the mend. Seeing Ella’s smiles makes my day. all the best! Gloria & Red

Steve and Joan Odell on June 4th, 2008 at 6:55 am #

So glad you are home and settling in – things will definitely be better if you are home and know you stay there. Prayers – Steve and Joan

Anne on June 4th, 2008 at 7:27 am #

Well, other than a finger stick and LOTSA blood, it looks like Ella’s enjoying being in her Colorado home…(such great pictures!) Things will settle down once you get into a routine!

Matt, Abby, Austin & Caed on June 4th, 2008 at 8:03 am #

We’re still praying for you three to adjust quickly and for the Lord to lead you to the Doctors and staff Ella needs. I know it’s a lot of work and can be frustrating but God is in control.

Joel Snyder on June 4th, 2008 at 8:33 am #

Ella, Sorry about the finger prick that is part of the deal. Tina sorry you had to endure that but I am sure things will level out. Looks like Grandma is having fun and hope you guys can slow down and get some rest. I hope things are going well for Josh and that all is well. Love,Grandpa!!!!!!!!!!!!!!!!!!!

Grandma on June 4th, 2008 at 10:07 am #

OK! GRANDMA So glad you are there to help. But make sure you leave some suggar for me. Ella baby girl I can hardly wait to hold you and kiss those little hands and feet. What a wonderful blessing you are to all of us See you soon! Grandma West

The Kuhn Family on June 4th, 2008 at 10:55 am #

Ella looks so happy to be at home. I am glad y’all made it safely. I know it’s hard to pick out any doctor, so this makes it even harder when it involves special care. I have stopped going to certain doctors over the past who simply didn’t seem to care. With four boys, I go to the doctors A LOT! LOL If they don’t treat me or my children with respect, I’m outta there. I loved the pictures with Grampa and love the ones with Gramma. What a blessing to have someone there to help out and to just keep you company. The more support, the better. I can see by Gramma West’s comment that their is some jealousy!! I would be jealous too. I love to kiss babies feet. It must be a “chick” thing. LOL Love and blessings to you family and friends. I like that you had some people that came over to “stock” your house. I also LOVE your house. What a bathroom! Y’all are great at decorating! LoriAnn and The Boys (sounds like a band!)

George Starks on June 4th, 2008 at 11:47 am #

Josh. Beautiful –

the Lizotte family on June 4th, 2008 at 12:41 pm #

Ella you still look fabulous! blood work is never fun no matter how old you are.
Tina and Josh you guys are doing a great job!

Merrilee June on June 4th, 2008 at 7:30 pm #

Hi sweet little precious angel.
Not you Mary, little Ella I am
speaking to!! You look just darling
seeing how happy you are with
your Grandma Mary, take care, and
lots of prayers to you from

Dana on June 4th, 2008 at 9:30 pm #

Hello Sweet West family- It’s been a while since i’ve posted a comment, but still look at your website and pray for your little family everyday. I can’t wait for the day i get a phone call telling me you all are in California for a visit. We will be patiently waiting.
Hugs and kisses-
Dana (and family)

Merrilee Batchelor on October 24th, 2008 at 6:54 pm #

Hi little Baby one, Mary, Tina
and Daddy.
I hope your flight was good and you
find all is well with your little family in Colorado. Love and blessings
to you all as you move this week.

Have a good time.

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