Posted (Tina) in All Posts on June-6-2008

Thank goodness today has been somewhat low key.

Last night, we turned down Ella’s oxygen per the directives of her new pulmonologist. She was at 300ccs. That was all fine and dandy except that every time she moved during the night, the pulse oximeter would alarm. Each time, I would run into her room thinking that her cannulas had come out of her nose. Finally, I began to notice a pattern. It was simply the action of her moving over; it is that sensitive. Needless to say, I am running on low steam since I was up pretty much all night.

We received a call today from the pulmonologist. First thing, I asked about the pulse oximeter alarming all night while trying to maintain saturations of 92-94. Also, I told him that we’ve tried to keep her on 500ccs liter while she has been awake, but she dips down into the mid to high 80’s too often. So, the plan is to try 750ccs while she is awake today and 500ccs tonight. I’ve changed the settings on the pulse oximeter to try and minimize alarming, but am hoping that her oxygen level will simply be adequate and we will not find ourselves running into her room countless times throughout the night.

The pulmonologist reported that Ella’s echocardiogram yesterday looked great. The anatomy of her heart appears normal, it is functioning well and there is no sign of pulmonary hypertension. This simply means that her heart medicine is continuing to do wonders for her.

Speaking of heart medicine, Josh was a great husband and ran to the compound pharmacy all the way across town early this morning before work. This eliminated a trip that Grandma & I would have needed to make with Ella, just to give her early morning doses.

It was an absolutely beautiful day in Denver – – the weather was just perfect. This morning, it was slightly crisp, but it was warm in the sun. You could see the snow capped mountains and downtown from our patio. We decided to lounge back in the patio chairs. Ella fell asleep while we were reclined together in the chair. It was just the relaxing moment that I needed.

Later, it became a bit warmer and Grandma and I decided that we needed to get out of the house. I took the time to put together a new jogging stroller that I received last year as a gift and thought we would try it out. I figured that it might work well for Ella since the seat is more reclined. After all, The Bun’s favorite position is lying down.

As we neared our 15 minute stroll to Super Target, Ella fell asleep in the stroller. So cute…

Grandma went inside to get a few groceries for our dinner tonight and I just stayed outside on a bench watching Ella and noting all the busy people coming and going. As I looked out at the urban city and watched the buzz of activity, it did feel good to be back in familiar surroundings.

I’m looking forward to tomorrow. Josh is going to give me a break. It starts with as much sleep as I want in the morning and a day of running around with my Mom.

Thank God it’s Friday…and each day we thank Him for our precious girl.

Eusey Family on June 6th, 2008 at 10:13 pm #

She looks precious. Those lips are so kissable. She also seems like she has gained some weight – has she?


Lesli on June 7th, 2008 at 4:35 am #

What a blessing those little “normal” things are, like running to Target with your baby! I am praising God with you for the gift of Ella!

I wanna go to Colorado. Especially now that the humidity has hit GA.

Love, Lesli

Joel Snyder on June 7th, 2008 at 6:52 am #

Ella, Thank goodness that your tests tuned out well. I am sure you and Mom and Dad are going to enjoy those walks to Target amd that beautiful park next to your house. Tina great to hear that a normal day appeared and I am hoping that you have a great Saturday with your Mom. I will be out in the yard with Taco and Manny and enjoy this weather before it gets to warm. I will check on you later. Love,Grandpa!!!!!!!!!!!!!!!!

Williamsburg on June 7th, 2008 at 7:31 am #

Tina, I hope you are sleeping even as we write – in my book, sleep is one of THE top gifts anybody can give me, 2nd only to a truly picture perfect day like we had yesterday – we are so thrilled you two and that tiny, precious princess are here to enjoy it – each day is a miracle. Smooch and hug each other for us. XOXOXO

makayla--8 years old Frostproof on June 7th, 2008 at 7:41 am #

I love your baby. She is so cute.I look at her pictures every day. Iam so proud God got you home safe. I hope you have a good weeked with each other. loved makayla

Barbara Bour on June 7th, 2008 at 6:07 pm #

I am so proud of Ella; she looks great in her swing; sitting up so straight. Such a sweet girl. Her Carmen Miranda impression pic was up on show again last Friday for a talk I did for the profs. They loved it. Good to be home, for sure. Love, Barbara

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