Posted (Tina) in All Posts on June-17-2008

Ella was in a good mood today.

It does seem that her congestion has lessened the past couple of days. She still has it, but not quite as bad. I’m hoping she is simply adjusting to the Mile High City better each day.

We are having to place aloe vera gel on her cheeks and lips each day. We can’t use traditional lotion or anything with oil due to her oxygen therapy. So, we have found that pure aloe vera is working good (100% natural and non-toxic). After only a few days in dry Denver, we noticed that her skin was looking a bit chapped and needed the moisture.

Her oxygen levels have been good. Now she is on 500ccs throughout the day and a bit lower around 350ccs at night. So, I think that Ella is already starting to adjust to the altitude. Keep in mind that this is with the lower saturations that her pulmonologist wants to see.

Yes, I still have to bribe her for tummy time exercises. Fortunately, the Mickey Mouse Clubhouse works well. Macy came downstairs to hang out with us too.

And when Daddy came home from work tonight, Ella was sure glad to see him. They had a good time playing together.

We’re still praying for new tenants for our home. Things slowed down a bit with Father’s Day this past weekend. We’re hoping we can have it rented for July 1st, although based on the response so far, that might be a stretch.

Although it is only my third day alone with Ella, it is quiet. I’m still getting used to Josh being at work. In Florida, he was always in the other room working (telecommuting), but just having someone in the apartment felt different. Also, we would always have lunch together. So, I’m still getting used to being by myself with Ella. I’ll admit, it’s been tough for me.

I just keep reminding myself that this is what He called me to do for this season of life. And I’m trying to enjoy the quiet time before all of Ella’s therapy sessions start up again.

Psalm 119:57-58
You are my portion, O LORD;
I have promised to obey your words.
I have sought your face with all my heart;
be gracious to me according to your promise.

Jim and Char Jordan on June 17th, 2008 at 10:27 pm #

As usual you are doing great Tina. A little stress for the changes that must occur is so normal and expected. Everyone would have some adjusting to do. It is not pleasant, but it will pass. You are a wonderful mom for Ella and Josh is a great dad. Things will settle down soon. You will get used to being alone with Ella and more things will keep you busy. I wish so very much that I could help. It saddens me that I cannot. We will pray for good things for you and the little family. All our LOVE, Jim and Char

Joel Snyder on June 18th, 2008 at 2:24 am #

Ella, Tell Mom that she better enjoy the quiet moments that she has because things might get alot busier if I know you. You look great with Macy and your Dad and seem to be adjusting just fine. I will check on you later. Love,Grandpa!!!!!!!!!!!!!!

Kristen on June 18th, 2008 at 11:30 am #

Lonliness was a surprise to me as a mom. No body talks about it, but it is very real and overwhelming at times. Does Denver Children’s have a network of moms with CDH kids that you can plug into? Even over the phone? A Stephen’s Minster who could visit you from EHCC? Just ideas. Hey have you tried Craig’s List for renting? Most people list on Friday early morning and keep posting so the listing won’t get “burried.” From what little I know, I think your house sounds very nice. So you might have to look and see if there are comparisons out there. But we had great sucess with this resourcewhen it was time to rent ours! Praying you through this season. Kristen

Matt, Abby, Austin & Caed on June 18th, 2008 at 2:12 pm #

It sounds like Ella is adjusting really well. I’m glad to hear it. We’re thinking about you three and praying for you every day.

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