Posted (Tina) in All Posts on September-7-2008

Ella is definitely feeling better today. Her saturation and heart rate were in check and she was smiling a lot.

This morning, she looked a lot better but I could still sense that she is holding onto more fluid. During rounds, they discussed leaving the IV Lasix the same (3 doses per day). I pushed that they give her more IV lasix while we still have an IV. So they ended up giving her two extra doses of Lasix. We’re hoping that will make her dry by tomorrow. Also, the IV in her right hand that they placed during surgery was not viable by this afternoon. I cannot believe we still have the IV in her left hand – – it has been there for over a week!

We’ve worked up to her 800ccs of food each day from a volume standpoint. We are going to take the next several days to incorporate bolus feeds again. For now, we are spreading it out over a longer period of time with the food pump.

She has been weaned off pain meds and is just taking Tylenol every 4 hours. We will likely move to dosing it on an as-needed basis soon.

Thanks for all the thoughts and prayers. Continue to pray that Ella will dry out overnight. We want her to be in a good place for rounds tomorrow morning, so they can discuss a strategy for her diuretic mystery.

Nahum 1:7
The Lord is good,
a strong refuge when trouble comes.
He is close to those who trust in him.

Roxie (Adrienne's friend) on September 8th, 2008 at 12:10 am #

It’s a good morning here is Arabia and even brghter when I check on you guys and see your smiling faces! Today we will be praying for a drier Ella. Happy to see you entering Feel- Good Land

The Dirirm Family on September 8th, 2008 at 3:48 am #

Yeah GOD!!! Yeah Ella!! Our prayers continue to be with you all. Hope you all are starting to catch up on a little bit of sleep. Beautiful picture.
Love- The Dirrims

The Brittain Family on September 8th, 2008 at 4:44 am #

cute “do”, Mom. thanking God for answered prayers and trusting Ella into the hands of
him who holds all mysteries!

Debbie Bennett on September 8th, 2008 at 5:29 am #

Looking Good! God Bless!!!!!

Paul on September 8th, 2008 at 6:56 am #

Ella’s “do” is still the best (sorry Tina!). Hang in there guys!

lisa on September 8th, 2008 at 7:03 am #

There’s that smile! We’ll be praying for a nice, dry Ella and for that amazing, long lasting IV to keep on holding on!

So happy to see Ella looking like she feels better. And I have to agree, that is some “do” on that child’s head!! 🙂

Christe Mitchell on September 8th, 2008 at 7:23 am #

Oh Sweet Ella, love to see you smiling. I glad you are feeling better. I pray you continue to get stronger and healthier each day. God Bless you all.

Megan on September 8th, 2008 at 7:36 am #

Love all the smiles! That is a great pic of you the two of you. I am so happy that God is hearing all our prayers. Hang in there kiddo!

Jennifer Harris on September 8th, 2008 at 7:42 am #

Praise the Lord!!! It is a pleasure seeing Ella’s beautiful smile. Glory to GOD!
Jennifer & Chelsea

Jim and Char Jordan on September 8th, 2008 at 9:16 am #

Good to see the girls smile together. One more baby step. Go girls go…….

Deb Carnsew on September 8th, 2008 at 12:06 pm #

Other than seeing my own grandbabies smiling, Ella’s smile is the best! I continue to keep you all in my prayers and send positive energy your way.

Ani on September 8th, 2008 at 3:32 pm #

I love the pic of you and Ella…so cute!

Terri Trainer on September 8th, 2008 at 6:31 pm #

Girls, you’re looking great! Who would guess the trials you’ve been facing? PTL for cosmetics and styling products…for mom, that is. Miss Ella, you’ll have to wait a few years.
So glad things are looking up. I miss you guys – T

Joel Snyder on September 8th, 2008 at 8:53 pm #

Ella, I am so happy to see you doing so much better. I am praying for the answer to your fluid problem and I am confident that the doctors are closing in on it. I will check on you later. Love,Grandpa!!!!!!!!!!!!

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