Posted (Tina) in All Posts on September-15-2008

Ella was up every hour last night. It seemed that the food was bothering her. This made for little sleep. I tried venting her. Two of the times, it seemed to help. The other times, she just seemed uncomfortable.

We think that the discomfort throughout the night is because her tummy is not getting a break before the continuous feeds start overnight. Since each of her 5 feeds during the day is taking so long to complete, we are running into the nightly feed without a break.

On that note, we tried shortening the time frame of the feeds today. We fed 80ccs over one hour (instead of an hour and a half). This left more time between feeds. She seemed to do better. Tonight will be telling.

This morning, Ella was not looking great. It seemed like she was showing all the signs of being fluid overloaded. While she was sleeping, her heart rate was 150. Her labs came back with a BUN of 14. They took a chest xray and told me that it did not look that bad (not sure what that really means). As they did rounds, they were trying to decide whether to increase her diuretics or the Captopril. Since her chest xray did not look too bad, they opted to keep the diuretic dose the same (aldactazide) and increase the Captopril. The nurse will be monitoring her blood pressures throughout the night to make sure that they do not dip too low.

We are noticing that her heart rate still seems to high…and it doesn’t seem to make a difference if she is too wet or too dry. We want them to figure that out before we go home. This morning, they talked about getting a follow-up echocardiogram tomorrow. They want to see how her heart is functioning since she has been on the Captopril.

This evening, she seemed more comfortable. And as she is sleeping, her heart rate has dipped down to 110 – 125, which is closer to her baseline. That is really nice to see those types of numbers. We’re hoping that the increase in Captopril is the answer.

Even if it is the answer, we still feel like we will be here longer while they test out the waters with each change. Once they think they have it figured out, we will want to sit and remain stable for 2-3 days to make sure that it is not a fake honeymoon period. We would rather invest the time now and not return to the hospital for a long time.

As the sun sets on this Monday, we reflect on all He has done for us. We feel so blessed to have our baby girl in our lives.

Psalm 95:2
Let us come to him with thanksgiving.
Let us sing psalms of praise to him.

The Riches on September 15th, 2008 at 10:26 pm #

and we are blessed to have your family in ours…

Joel Snyder on September 16th, 2008 at 1:54 am #

Ella, I had a great time with you and Mom this afternoon. I am so glad to hear that you are feeling better tonight. I thought you looked and felt better today. I am praying that the medicine will soon get you better. I will catch up with you tommorrow. Love,Grandpa!!!!!!!!!!!!!!

The Brittain Family on September 16th, 2008 at 3:59 am #

Blessings upon you, West family. You’re doing great. Keep up the good work!

Kathy on September 16th, 2008 at 5:33 am #

I’m so sorry she is still have problems. I will continue to pray for her, for ya’ll, and for the medical staff.

Anne on September 16th, 2008 at 7:47 am #

ditto on the comment by The Riches…

Jennifer Harris on September 16th, 2008 at 7:52 am #

Ella’s eyes seem to look brighter and our prayers are for her complete recovery. “Even though on the outside it often looks like things are falling apart on us, on the inside, where GOD is making new life, not a day goes by without his unfolding grace”
~jennifer & chelsea

LoriAnn & The Gang on September 16th, 2008 at 8:19 am #

Our family is praying nightly (that’s the only time when I can get all eight kids settled in one spot) for your Bella-Ella. She looks so beautiful; what a gift from God. We will pray for more answers and more rest.
LoriAnn and the Gang

Terri Trainer on September 16th, 2008 at 10:12 pm #

Hey guys! Tonight I click on the Map of Love and was moved to tears. I’ve look at it before, but tonight as I scrolled over the world and saw the little heart markers across the globe I was amazed…amazed at what God has already done in your life and the lives of every person you come in contact with…amazed that He isn’t finished with you yet…amazed that He can use a computer to spread His good news across the world making the Bun and her parents an example of His awesome power and love. Amazing!
You’re in my prayers daily and loved more than you can know. T

kristin on September 16th, 2008 at 11:21 pm #

Wow! Sweet Ella…so many things are tangible and intangible. I’ve been a big proponent in believing that it is necessary to trust in what we can’t see because it makes what we can see even brighter and clearer. Your eyes do look brighter and might I add that your cute tongue sticking out almost matches that twinkle in your eye that familiarly looks like what I’ve seen in your Mother.

I would offer to sing to you but I don’t think that would afford you or your parents any needed rest…I could do a wild air drum for you which would lead to giggles and set those endorphins out to the Universe. Hmmmm which drum solo to play…tell me what you want to hear and I will get busy my sweet!

Rest tonight West family. Restore and repair your bodies and your minds. Your hearts are working overtime so let us help you out there. We pray to our amazing Father. He covers you all in a blanket so soft and so secure that there is no option but to have sweet sleep. We love you all so very much.


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