Posted (Tina) in All Posts on October-27-2008

Ella didn’t seem to feel as good today. She seemed to be coughing and sleeping more than usual.

In the morning, she was acting like herself while she played on the mat. But then, she seemed to get tired easily and would have a change of mood with no real warning. The afternoon was harder. She was resting during the 2pm hour when the PT arrived. So Kelly tried to wake her up and coax her into a PT session. First, she seemed okay and then she simply decided that she did not want to have anything to do with PT. After a major meltdown and lots of cuddling with Kelly, she went back to sleep.

We’re hoping and praying that the sickness subsides and does not get worse. So far, it appears to all be in her head area versus her chest and lungs. This is much better, but not ideal.

Sometimes it just hits me and I wish I could make it all go away for her. It just seems like she rarely ever gets a break. It always seems to be some medical condition that is ailing her.

Her increased food seems to be going well. We increased to 29ccs per hour (24 kcal) last Friday. I’m thinking we might try increasing soon, maybe tomorrow. We’ll see how she does tonight.

When she had enough of the day and decided to retire, Grandma Eusey was there to cuddle and rock her to sleep.

1 Peter 5:7 (Amplified Bible)
Casting the whole of your care [all your anxieties, all your worries, all your concerns], once and for all on Him, for He cares for you affectionately and cares about you watchfully.