Posted (Tina) in All Posts on October-10-2008

Today was a good day for Ella.

We are sticking with 28 k/cal formula and kept it at a continuous rate of 32ccs per hour. Starting tomorrow at 6am, they will stop the food and give her a break. From there, we will feed every three hours, starting at 9am. We will still use the food pump and work with the rate, with the goal of moving towards bolus feeds.

We are still targeting hospital discharge for Monday, assuming Ella can stay on track. Clinically, she looks great. They have labs scheduled for Sunday morning. It will be interesting to see if she remains dry. So far, her BUN has remained the same this entire week (33-34).

We had so much help this week to prepare for the move. My dear friend Terri came all the way from Dallas to work her tail off. She also helped to arrange all the volunteers that helped out through the prior days. And let me tell you — there is no way this move would have happened without everyone’s help. A special thank you to all those friends that helped and supported us this week.

Also, a huge thank you to Kelly. She stayed at the hospital with Ella the past few days while I went to the house and packed with all the volunteers. This allowed me to help answer questions and move the process along faster. Moreover, I was able to see my friends. Heck, we did not get a picture, but Terri even found a way to treat me to a spa pedicure and high tea at the Brown Palace. So even though we were working hard and packing, we still found lots of girl time. It made me feel great to get out of the hospital and feel like a normal person. That would not have happened without Kelly.

I felt overwhelmed yesterday when I sat back and thought about all the love and support we have received this week. We’re just very thankful and still in awe of how God works in our lives.

The move is scheduled to start at 8:45am tomorrow morning. It is supposed to be raining and cold. Somehow we’re hoping that the weather report is wrong….very, very wrong.

Please pray that Ella’s health will remain strong for a Monday discharge. Also, that the move tomorrow will go smoothly.

Psalm 62:5-8
Let all that I am wait quietly before God,
for my hope is in him.
He alone is my rock and my salvation,
my fortress where I will not be shaken.
My victory and honor come from God alone.
He is my refuge, a rock where no enemy can reach me.
O my people, trust in him at all times.
Pour out your heart to him,
for God is our refuge.