Posted (Tina) in All Posts on December-7-2008

I can’t believe the weekend is over. I just needed one more day. Don’t we all feel that way? With the holiday season upon us, I did not get the decorating around the house completed like I wanted to…bummer! And the weekdays are just so busy!

This week, Ella has an appointment with her pulmonologist on Thursday. We have to get labs again and see where she is at fluid wise. Her weight last week on Friday was 8.12, down from 8.14 two weeks prior. It makes you realize that she definitely had fluid on board. For this past week, she has been behaving great and seems like she is nice and dry. We will see what the labs show. But, she is not gaining weight like she should, so know we have to come up with a new strategy for the next steps.

Ideally, she would take 100ccs per kilo, per day of formula. Currently, she is at approximately 94ccs per kilo per day (100ccs – 120ccs per kilo, per day is what is recommended for weight gain). It would seem like an easy decision to simply give her 1cc extra per hour for 24 hours (24ccs extra per day) to help bring her to the right amount. However, it could throw off her fluid balance. After talking to the pulmonolgist on Thursday, we might go this route. Either way, we want to ask if her meds need to be adjusted. The amounts are based off her weight when she left the hospital and she has gained weight since mid-October.

We just found out that Grandma West is going to come out and visit us over Christmas. She found a good deal on a direct flight and decided to come and join us. It has been a long time since we spent Christmas with her, so it will be nice. Plus, no one from our family has ever flown out for Christmas in Colorado. It will be good for her to have some time around Ella.

Tonight, I was invited to a dinner with my friend to celebrate our upcoming birthdays. We share the same birthday and she will be out of town on our celebratory day. So it was really nice for Josh to watch Ella so that I could go out to dinner with my friend and have some girl time.

As we start another week, I am reminded of God’s faithfulness.

Isaiah 25:1 (NIV)
O LORD, you are my God;
I will exalt you and praise your name,
for in perfect faithfulness you have
done marvelous things,
things planned long ago.

Daphne Close on December 8th, 2008 at 12:13 am #

That’s my daughter Madeleine’s Bible verse. Her middle name is Marvel. One of our prayers for her is that she will be a woman of great faith.

Joel Snyder on December 8th, 2008 at 4:57 am #

Ella, I am praying that your appointment with the Dr. goes well and they can figure your next steps with your formula and weight gain. You look terrific with your Mom and I love your outfit. Great news that Grandma West is coming for Christmas that will be fun for all of us. Tina glad you got a break and some time with your friend. I will check on you later. Love,Grandpa!!!!!!!!!!!!!!!!

Estela Williams on December 9th, 2008 at 8:50 am #

Thank you Tina for sharing OUR pre-birthday celebration. I had a wonderful time and will always treasure my gift “A devotional Bible for Woman”… just love it and love you guys!

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