Posted (Tina) in All Posts on December-30-2008

Well, the Bun still didn’t look good by this morning according to her numbers. So in-between meetings at work, I paged the pulmonologist. He wants to make sure that it is not something else that is causing the lower saturation, increased heart rate and moodiness. After talking, he agreed to give her one more dose of Bumex. Afterwards, she had a huge diaper and that was it. So, maybe we have dried her out now.

But when we put her to bed tonight, her numbers still didn’t look great. We’ll see once she is really fast asleep. If she gets worse over the coming days, the pulmonologist asked that we call back. He wants to make sure that it is not some other sort of illness that is causing these symptoms.

Yep, Ella was going at it in the exer-saucer again today. She also had physical therapy today as well. The notes from the therapist indicated that she is rolling from her belly to her back on a consistent basis. Ella still needs to gain upper body strength, so the PT asked that we continue to make Ella reach mid-line for toys and grab for things when we are holding her to build her shoulder/torso strength. Also, she requested that Kelly give her several sessions of tummy time throughout the day. Right now, Ella only tolerates 3-4 minutes at a time.

And of course, we are still working on oral foods. Looks like sweet potatoes to me!

We’re just thankful for where Ella is at today…we are not at the hospital. We have a wonderful doctor that we can call and try to manage her care from home. I can’t imagine if we had to take her to the doctor every time she showed symptoms. We would be having doctor visits 2-4 times per month. That would be a drag…and living at the hospital is a drag.

So although she is not doing as good today as other days, we praise Him for where He has her and continue to pray for her increased strength and health.

Joel Snyder on December 31st, 2008 at 2:39 am #

Ella, Keep up the steady progress and I will be praying that the Bumex does the trick. Kelly thanks for the work with the “BUN” on PT and OT. I must say that I am also thankful for what progress has been made and looking forward to more. Take care and I will catch you later. Love,Grandpa!!!!!!!

Williamsburg on December 31st, 2008 at 9:04 am #

Precious Ella-Bun and beloved West family, I thank God for each one of you every day, not only for the tremendous blessing you are and have been in my life, but for how God has used all three of you so mightily in the lives of others. Not a day goes by that we don’t ache for your struggles and praise Him for the blessing. All our love and prayers for 2009. XOXOXO

lisaR on December 31st, 2008 at 9:21 am #

Ella looks great! So does the house! I love how you’ve painted the rooms…from what I can see! Hope you are having fabulous holidays! All is wonderful here in Seattle, We have had a blessed season, and the girls are good!

Fran Jarrett on December 31st, 2008 at 10:19 am #

Ella is really checking out that one toy on her exer-saucer! The progress she has made is good and thanks go out to Kelly, the PT and OT for the work they do during the day.
Hope that Ella starts to feel better with the extra dose of Bumex. Although she doesn’t feel well the Bun always seems to have her beautiful smile for us.
Prayers and love go out to the West family and Kelly for 2009

Jennifer Harris on December 31st, 2008 at 1:53 pm #

Ella looks so beautiful and her eyes are sparkling again! May the New Year bring grace, peace and love to your family.
jennifer & chelsea

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