Aug
11
    
Posted (Tina) in All Posts on August-11-2008


It was another great day with the Bun.

We took a field trip down to the Super Target near the house. We are not really supposed to go inside with her, but it was a necessity. Since we were at the hospital last week and Josh is out of town, the refrigerator and pantry were empty. I could have likely eaten cereal for 2 days, but we were out of nursery water for Ella’s formula. So we took the plunge and walked to get some groceries. I opted to use the Baby Bjorn and give Ella a view of her surroundings. This way, the oxygen tank and groceries could be place d in the stroller on the way back.

It was a beautiful day outside, nice and sunny. Ella sported her navy dress with a cap and sunglasses. She looked adorable. It was great exercise for her to hold her head upright while we walked. Plus, it was unseasonably hot in Colorado for the past few weeks. So we have not taken a walk in a long time. Today, it was a normal temperature. The high was 88 and it has cooled down to 69 degrees this evening. It was nice to get outside with her again. I think she really likes it.

We heard that a new PT and OT have been assigned to us from Developmental Pathways. It will be interesting to see how things go over the coming weeks with the new therapists. And although it will not be quite as consistent, we are still going to try and pursue a different PT and OT through a home health care agency too. Between therapy from both angles, we should be able to give Ella what she needs.

Tomorrow, we get to go back to the Children’s Hospital for blood labs. They want to check all her electrolytes and other levels. It will be interesting to see where her BUN falls. I think it might be a tad lower than the last draw which was 23. But we’ll see.

Once we’re done with labs, we are going to see Dr. Perry. We haven’t seen him since a week ago. He went out of town last week, so we did keep in touch with colleagues from his practice. But it will be good to see him again and come up with our plan for Ella over the coming weeks.

When I put Ella to bed tonight, she was still on 1 liter and saturating 100%. I may try weaning her oxygen once she is really asleep. This way, I can see if the extra oxygen is truly making a difference. It seems like she might be ready to go down a little bit since she has been at 1 liter for 3 days now.

The picture below is so cute. This was earlier in the evening when she decided to take a snooze. I just love how relaxed she is and that she likes to cross her legs, even when she is catching up on beauty sleep.

We’re missing Josh and can’t wait for him to come home.