Aug
11
    
Posted (Tina) in All Posts on August-11-2008


It was another great day with the Bun.

We took a field trip down to the Super Target near the house. We are not really supposed to go inside with her, but it was a necessity. Since we were at the hospital last week and Josh is out of town, the refrigerator and pantry were empty. I could have likely eaten cereal for 2 days, but we were out of nursery water for Ella’s formula. So we took the plunge and walked to get some groceries. I opted to use the Baby Bjorn and give Ella a view of her surroundings. This way, the oxygen tank and groceries could be place d in the stroller on the way back.

It was a beautiful day outside, nice and sunny. Ella sported her navy dress with a cap and sunglasses. She looked adorable. It was great exercise for her to hold her head upright while we walked. Plus, it was unseasonably hot in Colorado for the past few weeks. So we have not taken a walk in a long time. Today, it was a normal temperature. The high was 88 and it has cooled down to 69 degrees this evening. It was nice to get outside with her again. I think she really likes it.

We heard that a new PT and OT have been assigned to us from Developmental Pathways. It will be interesting to see how things go over the coming weeks with the new therapists. And although it will not be quite as consistent, we are still going to try and pursue a different PT and OT through a home health care agency too. Between therapy from both angles, we should be able to give Ella what she needs.

Tomorrow, we get to go back to the Children’s Hospital for blood labs. They want to check all her electrolytes and other levels. It will be interesting to see where her BUN falls. I think it might be a tad lower than the last draw which was 23. But we’ll see.

Once we’re done with labs, we are going to see Dr. Perry. We haven’t seen him since a week ago. He went out of town last week, so we did keep in touch with colleagues from his practice. But it will be good to see him again and come up with our plan for Ella over the coming weeks.

When I put Ella to bed tonight, she was still on 1 liter and saturating 100%. I may try weaning her oxygen once she is really asleep. This way, I can see if the extra oxygen is truly making a difference. It seems like she might be ready to go down a little bit since she has been at 1 liter for 3 days now.

The picture below is so cute. This was earlier in the evening when she decided to take a snooze. I just love how relaxed she is and that she likes to cross her legs, even when she is catching up on beauty sleep.

We’re missing Josh and can’t wait for him to come home.



Johnny and Mary Lou Brantley on August 12th, 2008 at 4:14 am #

Jo’h, Tina, and Ella,

We’re so happy Ella is out of the hospital and returning to normal. The pictures are adorable!!! We’re praying for the new therapists and that she will grow stronger each day. Keep up the good work! You’re doing a great job.
Love, Johnny and Mary Lou

Kristen on August 12th, 2008 at 5:32 am #

Love those sleeping beauty pics! What a sweet doll baby miss Ella is. Looking forward to her lab updates.

John & Estela Williams on August 12th, 2008 at 6:45 am #

She looks beautiful in blue… I am so glad to hear you two are doing better and that Josh is coming home today. Have a blessed day at the Hospital/Dr.’s visits. Love The Williams

LoriAnn & The Gang on August 12th, 2008 at 7:30 am #

I am so glad you are back home; bummer that Josh isn’t also. The Bun does seem happier and healthier at home. Hope all goes well today and that you like her new PT. Blessings to y’all. LoriAnn and the Gang

Jennifer Harris on August 12th, 2008 at 9:58 am #

Beautiful, and again, we know that GOD is control and WILL show us HIS miracle workings. Please call me, at any time, if you need me to provide services for you. I am available to do grocery shopping and other chores for you. Peace and Blessings to you and your family. Our prayers will continue to be with you.

Roxie (Adrienne's friend) on August 12th, 2008 at 10:26 am #

So glad to hear that you girls got out of the house and went for a walk…and to Target…one of my favorite stores. God’s Blessing on you three. Roxie

Joel Snyder on August 12th, 2008 at 12:11 pm #

Ella, What great news that you and Mom got to go to the store and a nice walk. I am hoping that the labs are O.K. and that you have a great visit with Dr.Perry. I will be watching for the results of your busy day. WOW!!!!Dad comes home tonight that will be fun for you and Mom. Catch you later. Love,Grandpa!!!!!!!!!!!!!!!

Krista Chiefa on August 12th, 2008 at 9:22 pm #

Dear Tina, Josh and Ella, I just received the information packet from Developmental Pathways for Ella’s physical therapy. I just had to check out Ella’s blog! I look forward to meeting you all soon.
Sincerely, Krista Chiefa, PT

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