Posted (Tina) in All Posts on December-4-2007

Ella had another great day of healing.

Her fentanyl has been decreased to 1.5 mcg/kg/min or .2 ml/hr. They plan to wean two more times at a rate of once every other day, except for weekends. This means that maybe in 5 days or so, they will have discontinued the fentanyl. This would be great. She has been on it since she was born. Although they have been tapering it ever so slowly, we will still be waiting to see if she has any signs of withdrawal.

Her CPAP stayed at a pressure of 5 throughout today. If she has a stable night, the plan is to wean it to a pressure of 4 tomorrow. They will monitor her for Wed, Thurs and Friday to see if she can tolerate that flow of pressure and keep her stats high. If all goes well, they will leave her on a pressure of 4 for the weekend, just so she can gain more strength. Then next week, they would look to wean it to a pressure of 3.

Ella’s feedings are going well. They started to move toward bolus feedings. Instead of a continuous flow of 20ccs per hour, they have switched it to 60ccs over 2 hours, wait one hour and repeat. Over the next several days, they will try 60ccs over one hour, then 60ccs over 30 minutes, then 60ccs in a bolus feed (all at once). This is the final feeding goal for her to reach before she can be discharged. Of course, we will need lessons on how to feed her via the g-tube and how to work on getting her to feed orally, but hopefully that part will not take too much time.

Her weight last night was 9 pounds, 1 ounce. Slowly but surely, she is gaining weight.

It feels good knowing that we are moving in the right direction and have a scheduled plan. Our hope and prayer is that she can stay on track and just continue to become stronger. It would be such a nice holiday gift to have Ella getting well enough to where going home is in the near future.

Speaking of getting well, Ella’s great Grandma has made improvements over the last 48 hours. As a matter of fact, she may be released from the hospital on Friday if she can continue to make progress. Thank you for the continued prayers. We still hope that great Grandma can hold on to meet Ella face-to-face someday.

I will be going on a business trip to LA for the next few days, but Ella’s daddy will be keeping all of us updated on the Bun. It is hard to leave her for several days, but she is in good hands.

I hope she can continue to sleep as soundly as she has been the past few nights…doesn’t she look peaceful?

Tiffani Grow on December 4th, 2007 at 9:41 pm #

Hi guys,
I can’t get over how adorable baby Ella is. She does look so peaceful. We can’t wait till you are home. I totally want Ella and Salem to meet and play together. I just read a little on you blog yesterday and you mentioned getting good care. Salem’s doctor is Steve Abman and his assistant (nurse) is Lucille Brown they are so awesome. He was the doctor St. Josephs called to get help with Salem’s situation when she was in the NICU. He is a specialist in pulmonology. To get a hold of Lucy call 720-777-2836 I hope this will be a start to getting great care. We also love our pediatrition. Do you have Kaiser? If so I would recomend her. You continue to be in our thoughts and prayers and we are so excite\d fro ella to be home. Sorry Salem insists on typing on the keyboard. love, Tiffani

Tiffani Grow on December 4th, 2007 at 9:43 pm #

Its me again Sorry, Dr. Abman is at Children’s Hospital in case you were wondering. Tiff

Kelli Billman on December 4th, 2007 at 9:48 pm #

Safe travels Tina. Ella looks fantastic! You all continue to be in our prayers daily.

Tammy on December 4th, 2007 at 9:49 pm #

Sleep well sweet Ella. You’ve worked hard for your rest! Mom and Dad, take care of you too!

God Bless

Gloria & Red Jacobsen on December 4th, 2007 at 10:29 pm #

So good to hear she’s on the up swing! Love & prayers. gloria & Red

Felix on December 4th, 2007 at 10:41 pm #

Love it, 9lbs and 1 oz!

Roxie (Adrienne's friend) on December 4th, 2007 at 11:26 pm #

Sweet Dream Baby Ella, heal, gain strength and know that you are so loved.

Julie Kirk -Saudi Arabia on December 4th, 2007 at 11:50 pm #

binky and pink monkey; what more could a little girl need to relax. She is an absolute baby doll. God Bless You Both as you grow nearer and nearer to taking your precious cargo home.

Laura Arneson (Adrienne' friend) on December 4th, 2007 at 11:50 pm #

Amen for growing babies!

Pat & Bob Hadden on December 5th, 2007 at 12:42 am #

Just transferred my files to a new computer so I haven’t been able to check on Ella (and her parents) for a while. Glad to see progress is being made for Ella AND her great grandma! We love you al.

Joel Snyder on December 5th, 2007 at 12:54 am #

Ella, I am at work and just got time to catch up on todays posting for you. I am so happy that you are making progress and feeling better. I am praying for you and your friends tonight and also for your Great Grandma. I will check on you tommorrow. Love, Grandpa!!!!!!

Barbara Sandner on December 5th, 2007 at 9:49 am #

Tina and Josh,
I’ve only been gone since Sunday, but it feels like weeks. I am so happy to hear of Ella’s progress. She looks as adorable as usual. Ella and great Grandma are always in my prayers. Can’t wait to see ya’ll again when I come back!

Auntie Shannon on December 5th, 2007 at 10:23 am #

Way to go Sweet Ella. So happy you are making steps foward.

Much love,

Shannon (Ella’s favorite Auntie) ; )

The Vodnik's on December 5th, 2007 at 10:45 am #

We cannot wait until you all can finally come home and we can meet this sweetheart! I know it’s been a long journey but rest assured you have lots of support!

Char Snyder Jordan on December 5th, 2007 at 12:54 pm #

Good Job Ella-girl. Great Job, Tina and Josh. It sounds so good. We will pray for continued progress toward home. Travel safe Tina. We will await your return. LOL Char and Jim

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