Posted (Tina) in All Posts on December-16-2007

Today was just “okay” for the Bun.

She had a new nurse that was trying her best to console her and keep up with her demands to be held and talked to! But sometimes when the nurse has 2 other babies to care for, it doesn’t make Ella happy! She wants all the attention. And since the nurse was not able to do that, Ella was frustrated and had some episodes that required increasing her oxygen to settle her down.

So when we arrived in the early afternoon, the nurse was quite happy to be relieved. Ella was immediately better upon seeing familiar faces. Josh and I took turns holding her while she took naps. She was so tired from working so hard all day to fight for attention that she was exhausted!

They are still feeding her 64 ccs of Portagen once every 3 hours. Unfortunately, they have been letting the feeding tube vent all the time again. If you remember, they tried venting for 1 hour afterwards and then decreasing it to 30 minutes after each feeding. When they did this over the past few days, Ella started to retch and experience more discomfort. Instead, they decided to vent the tube all the time for now and try to move towards the other milestones more slowly. They are thinking that maybe Ella’s tummy just needs more time to stretch out.

Other than that, the Bun is doing incredibly well on the nose cannulas. We can’t believe that it has already been 4 days and she has tolerated it! This is definitely the strongest that she has been. We’re so thankful.

Thank you for your continued prayers for Ella and her roommates. Please continue to pray that Ella’s lungs will gain strength. We want to see her continue on the nose cannulas and make progress with her feedings. Par is doing great and just needs to make further progress on his feedings so that he can go home!

Please pray for strength and endurance. It hit us hard today…We are just so tired of the hospital. Plus on top of it, we are really missing the staff in the NICU 3 that we had developed relationships with over the past 20 weeks. That is making the hospital time even harder for us…and Ella too(she is missing all those nurses that got to know her so well)!

Above all else, we praise God for His perfect plan. We submit to Him and trust that He will give us the strength to endure the coming days.

2 Thessalonians 2:16-17
May our Lord Jesus Christ himself and God our Father, who loved us and by his grace gave us eternal encouragement and good hope, encourage your hearts and strengthen you in every good deed and word.

Eusey Family on December 16th, 2007 at 9:37 pm #

She sure looks sweet. The hospital MUST be getting tiring. We continue to pray for Ella’s strenght and pray too that the time will be soon when you all get to come home.



Kelli Billman on December 16th, 2007 at 10:09 pm #

Happy Belated Birthday Tina!! Sorry I haven’t posted in a while, I’ve been in Mexico and then came home with some fun food poisoning, but I’ve been keeping up with the Bun every day! It’s great to hear she is doing well and I can understand how tiring the hospital must get. Someday you’ll look back at it and feel like it went so fast…
Hang in there West family, you are doing the very best thing for Ella and before you know it, she’ll be off to the prom! (sorry Josh!)
Love and prayers.

Chambers Family on December 16th, 2007 at 10:26 pm #

Does Ella still have her pic line? She is looking cute and chunky. Give us the stats when you have a chance.

The nurse thing is hard! I totally get that from our NICU days and we weren’t there for 20+ weeks!

You guys are amazing!

Tammy on December 16th, 2007 at 10:29 pm #

Thia is a tough time of transition from familiar faces and comfort, to the sometimes uncomfortable “regimen” of a daily hospital “routine”. Ella feels the change and expresses it loud and clear. She will look to her parents now, as any baby would, for comfort and cuddles. You are her eyes, hears and voice in her new surroundings. Don’t be afraid to speak up and ask questions when it doesnt’ feel right or when you feel that Ella’s needs are not ALL being met. It’s ok to let others know how you feel and your concerns. It’s been a long hard road, and you begin to run on empty. Yell help when you need it!!!
God Bless

Joel Snyder on December 17th, 2007 at 6:46 am #

Ella, I am glad to hear that you are spoiled and giving anyone who will listen a bad time. Good for you!!! I am at work and getting ready to go home and take care of Taco and Manny for the day. I will be praying for more progress with your lungs and feeding. Josh and Tina hang on I know how you feel it will get better and improve with time. Love, Grandpa!!!!!!

Dawn Franck on December 17th, 2007 at 12:12 pm #

Hi Josh and Tina, I’m glad to hear that you have made your decision to stay in Florida and you seem at peace with it. I know that must have been a hard decision. You are doing the best thing for baby Ella. You are both such great parents! She looks so much like Josh in that photo, what a cutie! Take care and give her lots of hugs and kisses.

Donna Seward on December 17th, 2007 at 1:39 pm #

Hi Tina,
I just heard the news. I did not even know you were pregnant. I am so happy for the two of you. I know you have gone through a lot to have your preceious Ella. What a miracle God has given you. Please e-mail me with your phone number so that I can call you.


Donna Seward

Lisa Correia on December 17th, 2007 at 2:29 pm #

Hi Guys,
You guys have come such a long way. I look at the pictures of you giys now holding a big ol’ baby and can’t believe she is so big already. I know this has to be so tough on you guys and I’m sure when the day comes that you are all home and life is “normal” this is all going to seem like a dream. I’m praying for you guys and go to bed every night after I get my “Ella update”. God had been so good to you guys and I just know he has BIG plans for that tough little of yours. Do you guys have a mailing address there? We would love to drop something in the mail for you guys. Have a great day!! We’re thinking about you!

deanna snyder on December 17th, 2007 at 6:48 pm #

that is so sweet cant wait till u come home
deanna snyder

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