Posted (Tina) in All Posts on December-18-2007

Ella had a good day with Nurse Marla. She had a bath, they played and talked. Ella weighed in at 9 lbs, 7.5 ounces.

Due to her weight, they increased the Portagen to 65ccs every 3 hours. Also, they increased the caloric density in the Portagen up to 30 calories (up from 24 calories). Hopefully, this will help Ella gain even more weight which she needs (she is behind the curve for weight at nearly 5 months old). They are still venting 10 minutes before, 30 minutes of feeding, and 30 minutes of venting afterwards. Ella has been retching a little bit at the end of the feeds, but not enough to be concerned. It is just something for us to monitor.

Another HUGE change: they decided to start giving Ella her diuretics (lasix & diamox) via her g-tube. Since her nissen surgery, she has been receiving these meds via the central line. They are switching it because they want to remove the central line by the end of the week. Please pray that she will tolerate this change.

Also, they want to administer infant shots to Ella this week. They want to give her the following vaccines: diptheria, tetanus, acellular pertusis (DtaP), pollo (IPV), hepatitis B (HBV), haemophilus influenzae type B (Hib), pneumococcal conjugate (PCV) or Prevnar, and synagis to prevent Respiratory Syncytial Virus (RSV).

When they drew her blood this morning for labs, her hematocrit count was low (the hematocrit count calculates the percentage of red blood cells per micro liter of blood). So, they ordered some blood for her. The good news is that her potassium has come into a normal range, so they have discontinued the potassium supplement that she was getting. Now, they plan on just administering a multi-vitamin via her g-tube.

The day was uneventful until 6pm. Nurse Marla went to give Ella the blood infusion via the central line and it wasn’t working. The theory is that there were written orders to flush the central line once every 4 hours while Ella was in the NICU 3 and that maybe that has not continued with the same consistency since her switch to NICU 2 a week ago. In any case, after several attempts, they opted to give her the blood via IV.

That took 3 tries on her left foot to get the IV placed properly. Apparently, Ella did not tolerate this whole idea too well. She was upset, fussy, sweaty, saturations dropping, so they increased her oxygen to 1 liter to get her through the ordeal. Although, who can blame her? I am not sure that I would love an IV in my foot (it ended up being in the bottom of her foot. In order to keep it in place, they had to tape her foot to a board. That could not be comfortable!)

When I visited Ella tonight, the transfusion was still taking place and she was resting. Even though she was asleep, her stats did not look great. Her heart rate was 175 at rest and her saturations were 95-97. This is not normal for Ella these days. I wondered if it was due to the blood transfusion, although the nurse was not convinced that the transfusion would cause that response.

To help subside Ella’s fussy behavior from the discomfort of the IV, I held and rocked her for the remaining 30 minutes of the blood transfusion. During this time, I became a bit concerned as I watched the monitor. Her saturations were not getting better, but actually worsening a bit.

Once the transfusion was complete, diaper changed and positioned comfortably in bed, she fell asleep again. Almost instantly, her heart rate dropped to 140-145 with saturations pegged at 100! That is what we have been used to seeing lately. Just to be sure, I continued to watch at her bedside for 1+ hours until I could hardly keep my eyes open! I left feeling assured that she is still making progress and gaining her strength. The decreased stats were definitely tied to the blood transfusion – – thank goodness!

All the changes today prompted a call from the nurse practitioner. If Ella continues her path of steady progress, she wanted to discuss discharge being possible in the next couple of weeks. Can you believe it?!?!? This came as a shock. When I asked the nurse practitioner last Friday (a different one that had been tracking Ella’s file for the past several weeks), she indicated an estimate of 4 weeks. So, this came as such a surprise…but what an AWESOME surprise.

Par is doing really well with his feedings this week. We pray that he will continue to make greater strides forward by the end of this week. Going home soon might be happening sooner versus later for Par too!

Please pray for Ella to continue to gain strength and remain strong in the coming days, so we can take her home for the new year! That would be amazing!

We trust in the Lord for His timing and praise Him for how far He has brought Ella and us.

Psalm 40:2-3
2 He lifted me out of the slimy pit,
out of the mud and mire;
he set my feet on a rock
and gave me a firm place to stand.

3 He put a new song in my mouth,
a hymn of praise to our God.
Many will see and fear
and put their trust in the LORD.

The Laz Fam on December 19th, 2007 at 12:04 am #

Oh that glorious word “discharge”! We praise Him for His gift of hope, and continue to pray for His perfect timing, and for your perfect trust. We pray also that this Christmas season, your first with a little one, is a blessing to you.
We love you ~ KTJB

Joel Snyder on December 19th, 2007 at 7:37 am #

Ella, Keep up the steady progress and you will be home with Mom and Dad before you know it. This is the best Christmas ever for me with your baby steps forward and looking to go home from the hospital. I am praying that things keep getting better for you and your friends. Josh and Tina you both are unbelievable and I hope this news will help you with the challanges ahead. I will check on you three later. Love, Grandpa!!!!!!!!!!!!

Zandra on December 19th, 2007 at 8:08 am #

It is so wonderful to see Ella doing so well!! Praise be to God!! She is such a precious angel!!!!!

John & Estela Wiliams on December 19th, 2007 at 8:08 am #

Oh My Lord… that is awesome. What a blessing. God is good!

Love you guys!

Joan and Steve Odell on December 19th, 2007 at 8:45 am #

Thank you, Lord for all the wonderful things you do for precious Ella – We are so excited for you all – what beautiful words to hear. Prayers and thoughts continue for all of you – Lord Bless and hugs – Steve and Joan

Lisa Correia on December 19th, 2007 at 11:48 am #

What great news!!! That would be a great belated Christmas Present Huh!!!
Ella looks so big asleep in the pictures today. I can’t believe that 21 weeks have gone bye already. Still praying and looking forward to the day you get to come home to CO!!
We love you guys and hope you have a great Christmas!!!
The Correia’s

Cherie Faulds on December 19th, 2007 at 11:54 am #

I’ve been thinking about you guys and sometimes I just find myself hummin’ the Ella song. Hope Ella can come to CA and meet Sonic someday -Cherie

Auntie Shannon on December 19th, 2007 at 1:52 pm #

Great News!

Hugs to Sweet Ella.


Lori LaBruna on December 19th, 2007 at 2:44 pm #

I am so happy for all of you. For Ella, her parents and everyone who has been praying for her. I’ve always thought how blessed she is to be so loved by so many. Now, look at how powerful that love is! God bless you all.

Katy on December 19th, 2007 at 4:45 pm #

That is incredible! The idea that she will be sleeping soundly at home next to you and Josh in a couple weeks warms my heart. I can not believe how far she has come and all that you have overcome. She is truly a treasure…a very cute, strong treasure.

The Rainey Family on December 19th, 2007 at 9:10 pm #

Hi Guys. I hadn’t checked in in awhile, and I am so excited to read the word “discharge”! How exciting! I have kept you all in my prayers. I hope that you are able to bring your precious girl home very soon!! Merry Christmas and Happy New Year!!

Jim and Char Jordan on December 19th, 2007 at 9:24 pm #

This is truely a season of miracles. We are hopeful that all will go well. We will still take baby steps as positive progress forward. We could not be happier for you. LOL Jim and Char

Avery Kronz on December 20th, 2007 at 10:47 am #

well, I did’nt get to see Ella’s pictures because it never came up. our computer has some problems. but,it sounds like Ella was very sleepy! MERRY CHRISTMAS! Love, Avery Kronz

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