Posted (jooosh) in All Posts on December-19-2007

Whew…what busy a day. My work schedule was jam packed and in between I had to take Tina to the airport, and then, oh yeah, go see the cutest Bun ever!

Ella’s had quite a bit of activity in the last 24 hours, so she’s even more worn out than usual. She had a blood transfusion yesterday, an MRI today…ahh, you know what I really think is wearing her out though? These days, she has to sneak all the way across the NICU to see her friend Par without anyone seeing her. I thought the bottom of her socks looked a bit dirty…hmmm.

Overall though, Ella had a so so day.

She wasn’t real excited about having the MRI done and for this to be affective, they need her to keep still. Nurse Marla tried everything to keep her calm, short of crawling into the MRI machine with her. If it was actually OK for Marla to do this, I know she would not have hesitated =). For this reason, they gave Ella a small dose of fentanyl to calm her down. After this, she was nice and relaxed.

Dr. Kays ordered the MRI, not because there is anything wrong with Ella, but instead to proactively check for any other potential brain issues before she’s discharged. We don’t have any results yet, but look forward to hearing what the radiologist has to say.

When I went to see Ella tonight, she was awake, but she looked a bit tuckered out. Her breathing appeared to be a little labored as well, and her saturation wasn’t as good as I’ve seen in previous days (95-98%).

I spent some time, holding, rocking, and singing to her. She started to settle down but couldn’t quite get comfortable. I laid her down in bed, and noticed that her G-Tube button looked a little inflamed. The nurse said that it needed to be cleaned, so she took a damp cloth and did just that.

Our girl wasn’t too excited about this process. I think the skin around this area has broken down a bit, due to small amounts of stomach acid, which make it sensitive. Even part of her scar seemed a bit more inflamed from it. It doesn’t look like infection, and the nurse practitioner and attending doctor are aware of it.

After her belly was cleaned up, I suggested an idea another nurse planted in my head about putting Vaseline around the button. Ella’s nurse was thinking the same thing. After applying the ointment, Ella requested to be held again.

I finally was able to get her in a comfortable position and she went out! Totally fell asleep. The nurse then removed her feeding tube, and closed off her button. Ella barely noticed.

I held her for awhile, then figured it was safe to put her back in bed. I was able to lay her down, she woke up for a second, and fell right back to sleep. She looked very comfortable, and her numbers did too. I then looked comfortable myself (heh).

I then said my goodbyes and headed home to the apartment. While driving back I started thinking about our journey. I can’t even begin to process all that we’ve been though. There’s part of me that doesn’t believe we’re even here. Another part of me feels like time has flown by so quick, and yet another part feels like it hasn’t gone fast enough!

It’s amazing to look at this miracle girl and ponder all that she’s been through. We are so blessed to be Ella’s parents, and we praise God for giving us the privilege of loving this wonderful girl.

Laura Blackwell on December 20th, 2007 at 1:54 am #

Josh and Tina, Just returned from a trip. I was anxious to check up on your girl. I love the picure at the conclusion of the post. More prayers.

Laura Arneson (Adrienne' friend) on December 20th, 2007 at 3:38 am #

Parenting…not at all what we anticipate or think about when we are pg. You all have had more than your share of parenting stress so early, it gets better and harder and better and harder and it is so worth it. We think back on all the infertility issuses our family had the prayers, the joys and the sorrows. Now three boys later (and a little girl waiting for us in heaven) we are beginning to realize how much God gave when He sent Jesus, how much He loves us and how the plans that He has for us as parents are the same plans the He has for our earthly children. Ella is blessed, you are both blessed. Thank you for reminding me of the privilege we have of sharing this love with our children.

Tammy on December 20th, 2007 at 7:31 am #

Oh Ella you look like one sleepy girl! The binky out of the mouth says it all (so sound asleep it’s not even missed). What a journey you have been on! The lord is so awsome…..

God Bless

Lizotte Family on December 20th, 2007 at 7:32 am #

My goodness, she really was tuckered out! Nurse daddy to the rescue, I’m so proud of you. You 3 really are something special. I will continue praying for you!

Melissa on December 20th, 2007 at 8:22 am #

Wow!! You guys are just moving right along. I pray that the results of the MRI will come back and there will be no issue.
Praise God for your little bundle. What a precious gift from up above.
You all have been through soooo much. Way more than most people go through their whole life. I mean, we’ve been to the ER 3 times for Mitchell’s split open head and we’ve had to call 911 two or three times but really it hasn’t been too bad. Hopefully you are through the worst of it and God has totally healed Ella. I pray, Lord Jesus, that when Josh and Tina are able to bring Ella home that they are able to rest and enjoy her and the fact that they are now parents. Please protect them and strengthen them as a whole family unit. What an exciting place You have brought them to. We praise you for your sweet miracle in Ella. Lord, I also lift up Par and his family as they get ready to take their little baby home. What a joyous time. This also brings tears of saddness as we remember Jonathan and his family. They will not be able to take their baby home because You already did that. Jonathan did what he needed to and you called him home. I pray that you would continue to be with his parents and guide and comfort them through their journey. Thank you for the chance that Josh and Tina had to get to know them.
Lord, we thank you for your strength and the peace and comfort that comes only from you. We thank you for the gift of your only Son. Especially as we draw closer to Christmas… may we be reminded of the sacrifice that You made so that we may be free.
Have an awesome day. So, Josh you are wifeless again? Where did Tina go? I hope that you all have a very Merry Christmas. I can’t believe it is less than 1 week away. You truely have the best gift of all!!

Love, Melissa

Laura Marold on December 20th, 2007 at 8:22 am #

Just catching up on the blog and am so happy to see the word “discharge”!!! Keeping you in my prayers. She looks so healthy!! Fantastic news!! Love, Laura M.

Megan Eusey on December 20th, 2007 at 8:48 am #

WISHES COME TRUE!!!!!!!!!!!!!!!!!!!

with love,

Joel Snyder on December 20th, 2007 at 9:25 am #

Ella, I just got off the computer talking to your Dad. I am happy to hear that they are giving you all your shots and tests so you can go home. I am going to dinner with your Mom tonight so I will be able to hear all the news about you. Manny and Taco are waiting to see you when you come home to Colorado. Have a good day I will check on you later. Love, Grandpa!!!!!!!!!!!!!!!

Angel Powell on December 20th, 2007 at 11:33 am #

Hey, Josh and Tina:
This is Christian’s mom. We were in the room next to you. I am so glad to see and hear that Ella is doing well. So, when is the projected date of going home? Christian is doing amazingly well, like nothing was ever wrong with him. I will send you a pic o your email. Thank you to God that he was watching out for our little ones and knew what they needed to get better. Talk to you later. God Bless You.

Kara on December 20th, 2007 at 12:05 pm #

Those cheeks are so screaming KISS ME! KISS ME! I can’t wait for the day I get to cover that little one in kisses. I want to crawl through the computer and do it right now. You’ll have to give her one on each cheek for me.

Jim and Char Jordan on December 20th, 2007 at 12:55 pm #

Such chubby cheeks. Such love to be had. We are praying for continued success and steps to a healthy beginningd.LOL Jim and Char

Jeff Jacobson on December 20th, 2007 at 2:52 pm #

Merry Christmas to you all. We’ll be praying for you.

Gloria & Red Jacobsen on December 20th, 2007 at 11:19 pm #

Gosh! She is a darling! Won’t she love the lights of the Christmas tree,when she comes home! I remember my babies always did,even at that young age. We’re praying the MRI turns out, just perfect, Lots of Prayers!! Gloria & Red

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