Posted (Tina) in All Posts on December-28-2007

For some reason, Bun did not sleep that much last night. This morning, she was wide awake and had a great time with Nurse Andrea. About noon, she became fussy and overtired. Also, she had a slight fever most of the day (temperature of 100). While she had the fever, her heart rate was elevated to about 180-200.

Finally about 6:30pm, I was able to get her to a solid sleep. The good part is that once she really fell asleep, her heart rate dropped to around 150, which is more normal for her. That was the first time I had seen that all day.

I’m not sure why she had a fever today. We will see how she does overnight and whether or not it was a fluke (there was a time before when she was getting unexplained fevers).

Besides the fever and being overtired, Ella’s saturations looked great today. They were pegged at 100 solid all day. This means that her lungs are feeling better. She stayed at 750ml of oxygen.

Dr. Kays came around and asked about her progress. She is still fighting off the fever, so he opted to leave everything as-is for now. He mentioned that she is supposed to have labs again in the morning. If she is looking more like she was before this recent set back, he may look to wean her oxygen again.

Par made it home safely last night and Ella is missing him! She even put on her cute bow tonight, hoping that it would lure him back. It didn’t work, but at least we enjoyed it.

We are so excited to take the Bun home some day. Please pray that day will come sooner versus later. We think she will make so much more progress in the home environment versus the hospital.

Thank you for your continued prayers.

Jim and Char Jordan on December 28th, 2007 at 9:00 pm #

What a cutie pie. Take heart Tina, you will make it home. It is just that it has been so long. But that matters not. She is here and going in the proper direction. You have access to the people who know her best and can take action on a moments notice. Dr. Kays knows you understand about Ella. That in itself is a great help. When you and the family are finally on your own he will believe you. That counts. We have to remember that Ella has had a difficult journey. She is not the easiest that Dr. Kays has seen. But she is improving. That counts too. You are ready to be the Mom and Dad. You will have your turn without all the medical stuff. But if you need them they will be close. Any baby is fragile in this world. Ella more than most. You have educated yourself and your time will come. And THAT is a blessing. We love you and are proud of everyone’s progress. Lol Aunt Char and Jim

Kathy on December 28th, 2007 at 9:29 pm #

I think your precious “bun” gets cuter everyday. My Ellie longs to see new pictures of Ella each time we check the site, thanks for making her happy. =) You must promise to keep posting once you do make it home, I know many of us will go through major withdrawals without our Ella fix! We are praying!

The Lee Family

Anne on December 28th, 2007 at 9:34 pm #

Ditto on what Kathy said! What would we do without our “Ella fix?” We’ll look forward to postings from her “home environment!”

Joel Snyder on December 28th, 2007 at 9:52 pm #

Ella, Sorry to hear about the fever and hope it will pass soon. You are looking terrific and I will be praying that those baby steps forward continue. I went to your house in Lone Tree today and checked everything. Say hello to your Mom for me. I will check on you tommorrow. Love, Grandpa!!!!!!!!!!!

Julie on December 28th, 2007 at 11:10 pm #

You probably checked for this, but any chance she’s teething?

Laura Marold on December 29th, 2007 at 8:48 am #

I am so excited for you. It’s going to happen soon. Still praying for you. Love, Laura M.

Tammy on December 29th, 2007 at 12:47 pm #

Sweet girl….you are beautiful. Love your bow! The lord is faithful and will see you home!

God Bless

Sheila Par's aunt on December 29th, 2007 at 5:47 pm #

We look forward to reading about Ella. She is a beautiful little girl. The grandchildren pray for her just as they do Par. God’s blessings to you.

Kim & Brian Brennan on December 29th, 2007 at 8:18 pm #

Josh and Tina, We think about you constantly and Josh between the web site and your Mom, I am kept up to date on your lives. May 2008 bring you all health and happiness. Keep the faith and keep smiling. Ella is so beautiful. XOXOX

Kara on December 30th, 2007 at 2:58 pm #

Any chance she’s cutting teeth? She is 5 months and both my girls ran fevers with their teeth. Kailee would spike up to 104 for 24 hours with each tooth. Deanna ran low grade fevers for a couple of days.

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