Posted (jooosh) in All Posts on December-29-2007

Tina and I spent most of the day with Ella and she looks good. Ever since she was put back on her regular dose of diuretics via her IV, she has felt more comfortable, and her numbers have improved.

The only issue over the last 48 hours has been her elevated temperature. Ella’s heart rate also increases when she has a fever, anywhere from 20 to 30 beats per minute. I saw it hover between 200 and 210 beats while I was holding her. Probably not a good idea for her already very warm father to be holding her. I can help her if she’s cold, but I don’t think I’m helping her out when she’s this hot.

They ran another round of tests (CBC, etc.) and all came back negative. It doesn’t look like she has an infection. We think she may be showing signs of teething again, which she did a few months back when she spiked a fever (something a few of you have suggested). She doesn’t really seem more agitated either, which is also a good sign.

Tina and I are getting more comfortable with her G-Tube. In fact, when we’re there, we try to get involved as much as possible with her care. Ella had a new nurse today, but it was great because she was really open to learning more about our girl (her likes, dislikes, her fav sleeping positions, etc.).

The nurse was also very encouraging by letting us take charge of feeding Ella, which is great practice for when we go home. Venting her G-Tube before feeds, setting the pump for the feed, venting afterward, administering her PO medications. This is all stuff we’ll be doing at home, so why not let us start getting the full hang of it now.

After putting Ella down for the night we had dinner with a family that has a CDH baby in the NICU as well. We had a great time hanging out with them and their boys for dinner.

I so want to take our baby girl home. Knowing that the day of being released from the hospital is so close, is making every day we continue to be there even more tiring. We do trust in God’s perfect timing, and there is peace in that, but my flesh is also weak, and I want to be done with the hospital. I can’t wait for the sunlight to fall on my baby girl’s face for the first time and have her see the world outside.

I know the day will come, but right now it just can’t come soon enough. Until then, we will continue to rejoice in the Lord for all he has given us, and for the blessing of so many other CDH babies going home. We also mourn the loss of those who have left to be with Jesus, but take comfort that they are in His arms.

Praising God for this day, and the many days to come with our baby girl, Ella Renae.

Thank you for your continued prayers, and God Bless.

Joel Snyder on December 29th, 2007 at 10:19 pm #

Ella, I think you look fantastic with your Dad. I will pray again tonight for answers to your fever and relief. Keep up the progress forward. Tell Dad that you will be going home soon. I will be checking on you soon. Love, Grandpa!!!!!!!!!!!!!!!

Roxie (Adreinne's friend) on December 29th, 2007 at 11:39 pm #

Oh my goodness!!! Ella Bun you are getting so big! I have been able to check on you a couple of times but not able to take the time to post a note. You guys are getting closer and closer to going home I’m excited for you. Ella looks wonderfully well and Sooo Beautiful! Praying for your continued progress and maybe just maybe you’ll have a tooth soon you little Cutie Pie! May God bless your family. Love Roxie

Kelsey and Benny Rupert on December 30th, 2007 at 12:25 am #

I’ve been checking in for awhile and just wanted to say hi. Ella is looking cuter than ever and you guys are officially the most positive people I know. I wish you could see me running around my house holding Ben’s vent tube in my mouth while chasing the other two! Then you’d know you have nothing to fear! Let me know if you need anything and I will let you know when Ben’s next appointment is in January, but hopefully you’ll be long gone by then! Buy yourselves some ice cream and pretend it’s from me!

Gloria & Red Jacobsen on December 30th, 2007 at 5:07 am #

Ella ,takes such cute pictures!! She is a beautiful baby! We’re praying her temp returns to normal and “Going Home Day” comes real soon!

Jim and Char Jordan on December 30th, 2007 at 11:41 am #

All oour love to you this day in December when we look forward to a new year and wonderful times with Ella. Take your time. God knows when the time is right. You are just warming up to the real thing. Love Always, Char and Jim

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