Wow, can you believe that the Bun is 7 months old today? It is hard for me.
First, it seems strange because she has only been home with us a total of 17 days. Second, she is just so petite for her age. She is still wearing size “3 month” or “3-6 month” for her daily fashion statement. Finally, this is the Bun we are talking about…the one that has been through so much. Sometimes I just sit in awe. Only time will truly reveal all that God has planned.
Today was so much better for Ella. It started off last night when she slept a solid 6 hours without stirring. She has only done that a few times before when she was feeling better. Then, today she was up most of the day versus earlier this week when she was sleeping 4-5 hours in the middle of the day.
Josh took care of her most of the day while I ran errands with Grandma Eusey. While Ella enjoyed her time with Daddy, we stocked up on food and goodies for the next 10 days since we will be spending most of our time in the apartment.
Today, Ella took another 40ccs via bottle (20ccs one time, 10ccs two other times). That is so amazing!!! Even though she coughs and retches sometimes, it is reassuring to see her come back to the bottle within a few minutes and desire to eat more. We just hope that we can continue each day and slowly have her take more and more.
We are excited to see Dr. Kays on Tuesday. We are curious to see if her blood lab work has continued to improve (we found out that her BUN on 2/12/08 was 19. Ideally, we want to see 20 or higher). Also, we need some maintenance on the g-tube – – some granulation tissue has surfaced again and needs to be burned off.
It was a gorgeous Florida day, so we went for another 15 minute walk around the community. Only towards the very end of the walk, she decided to become fussy. Although in her defense, she got the hiccups and wanted to be held. I think I would want to be held too.
It was so nice to see Ella smile and feel like herself today. It was just the refreshment we needed after a string of rough days in a row.
Thank you for the prayer support. We thank Him for our journey, the good days and the tough days. We know He has a plan and look forward to seeing Him reveal His glory day by day.
Psalm 8
O LORD, our Lord,
how majestic is your name in all the earth!
You have set your glory
above the heavens.
From the lips of children and infants
you have ordained praise
because of your enemies,
to silence the foe and the avenger.
When I consider your heavens,
the work of your fingers,
the moon and the stars,
which you have set in place,
what is man that you are mindful of him,
the son of man that you care for him?
You made him a little lower than the heavenly beings
and crowned him with glory and honor.
You made him ruler over the works of your hands;
you put everything under his feet:
all flocks and herds,
and the beasts of the field,
the birds of the air,
and the fish of the sea,
all that swim the paths of the seas.
O LORD, our Lord,
how majestic is your name in all the earth!
