It is the end of the week and we are happy for the weekend!

Ella was restless last night and I was constantly getting out of bed to tend to her. When 7am rolled around, Josh tried to give me a break so I could catch some shut eye before his work day started. About 15 minutes later, he came into the bedroom confessing that he needed my help: Ella had a full blowout all over her outfit, blanket, play mat, etc. Indeed, it was messy and I could see why he needed an extra hand!

Overall, Ella did well today. We had an appointment with the OT and worked on bottle feeding again. We were able to get her to take 35ccs over 40 minutes. It was the second session with the OT where he watched her feed. He commented that he does not think she has true oral aversion. He can tell that she wants the bottle. His diagnosis is that she is just having a tough time getting the sucking and swallowing technique down and that it will simply take practice. Between all her sessions today, she took 70ccs. This is a high amount compared to recent days, but we also added a very small amount of brown sugar to the formula. The sweetness seems to be working!

The OT thinks that we should try and thicken the formula the slightest bit by adding some rice cereal. Again, just the slightest amount to make the formula a touch thicker, but where it will still easily flow out of the nipple.

We were bummed to not get an update from Dr. Kays today. So, we still don’t know how dry she is or which oil to start adding to her feed. I guess we will try to get an answer again in Monday.

We are also trying to not make too many changes to food until we hear back. But we have been able to get the 550ccs in her each day, so hopefully she is still gaining weight.

Ella is starting to take notice of the cats which is fun to witness.

She did great last night and today on 400ccs of oxygen. That is a really good sign. We’re hoping that she can maintain this until we go to see Dr. Kays. I’m sure he will be happy to know that we have made progress in that regard too.

All we know is that we are in love with The Bun. She is so cute and sweet!

Thank you for the thoughts and prayers. They mean so much to us and definitely have an impact on our lives.

James 5:16
Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective.