The Bun had a pretty good day today. This morning, she and I had some one-on-one time while mom caught up on her sleep.
Ella took her first feed well with minimal discomfort (g-tube only). Her feed with the bottle at noon was probably the best she’s done in awhile from a disposition standpoint. She only took 20ccs, but didn’t put up much of a fight. She also did well at her 3pm feed, but had a major meltdown at the 6pm feed. I’m guessing the sleepiness factor played a part.
Today, we started adding regular sugar and a small amount of rice cereal (to thicken the formula and slow down the flow). Maybe that helped things along too. The coming days will be telling.
We took our girl for a drive late this afternoon just to get out of the house. We decided to head west down Archer Road and within 10 minutes Ella zonked out. We drove for about 25 minutes then turned around and headed back. Overall, she did well in the car this time. We’re trying to make a point to take her on short drives to get her more used to the experience.
On the way back, we stopped at a Mexican restaurant in the city of Archer and picked up some burritos to go. It was nice to take a break from cooking and we were pleasantly surprised that it was tasty.
As I write this my eyelids are already getting heavy. I’m guessing that I only do about 10% of the work that Tina does with Ella, yet I am totally wiped out. What blows me away is how amazing Tina is with Ella. Her patience even with the lack of sleep, and just how she can take care of Ella and maintain in so many other ways.
Tonight, I’m thanking God for Tina, and praise Him for this amazing girl who is a lot of work…but totally worth it.
