Posted (Tina) in All Posts on June-20-2008

Today was a mellow Friday for me and Ella. We did not do much, but hang out in our house.

When Daddy came home from work, he picked up the Bun and started to play. She looks forward to that all day.

We’re glad it is the weekend, so we can all hang out together.

Posted (The West's) in All Posts on June-19-2008

Posted (jooosh) in All Posts on June-18-2008

Posted (Tina) in All Posts on June-17-2008

Ella was in a good mood today.

It does seem that her congestion has lessened the past couple of days. She still has it, but not quite as bad. I’m hoping she is simply adjusting to the Mile High City better each day.

We are having to place aloe vera gel on her cheeks and lips each day. We can’t use traditional lotion or anything with oil due to her oxygen therapy. So, we have found that pure aloe vera is working good (100% natural and non-toxic). After only a few days in dry Denver, we noticed that her skin was looking a bit chapped and needed the moisture.

Her oxygen levels have been good. Now she is on 500ccs throughout the day and a bit lower around 350ccs at night. So, I think that Ella is already starting to adjust to the altitude. Keep in mind that this is with the lower saturations that her pulmonologist wants to see.

Yes, I still have to bribe her for tummy time exercises. Fortunately, the Mickey Mouse Clubhouse works well. Macy came downstairs to hang out with us too.

And when Daddy came home from work tonight, Ella was sure glad to see him. They had a good time playing together.

We’re still praying for new tenants for our home. Things slowed down a bit with Father’s Day this past weekend. We’re hoping we can have it rented for July 1st, although based on the response so far, that might be a stretch.

Although it is only my third day alone with Ella, it is quiet. I’m still getting used to Josh being at work. In Florida, he was always in the other room working (telecommuting), but just having someone in the apartment felt different. Also, we would always have lunch together. So, I’m still getting used to being by myself with Ella. I’ll admit, it’s been tough for me.

I just keep reminding myself that this is what He called me to do for this season of life. And I’m trying to enjoy the quiet time before all of Ella’s therapy sessions start up again.

Psalm 119:57-58
You are my portion, O LORD;
I have promised to obey your words.
I have sought your face with all my heart;
be gracious to me according to your promise.

Posted (Tina) in All Posts on June-16-2008

Posted (Tina) in All Posts on June-15-2008

Today was a nice relaxing day.

Josh decided that he wanted to eat at the Original Pancake House for brunch. So we waited until the crowds died down and ate on the open patio area. Unfortunately, Ella was fussy most of the time and required holding and comforting, so eating wasn’t quite as pleasurable for me. But Dad did enjoy his corned beef hash and pancakes. He looked happy to be having brunch at one of his all time favorite restaurants.

Afterwards, we ran some errands and came back home. We just chilled and hung out in our living room with the Bun. After spaghetti with meatballs for dinner, I was craving cookies. When the sun started to set, we walked to Super Target to grab some cookies and milk. All a perfect ending for Dad on his first Father’s Day.

I think Josh was in awe most of the day that he is a daddy. The past year in many ways was like a blur. But looking at Ella and seeing her and us in our home environment, I think he was emotional realizing that his dream to have a baby girl really has come true.

I know that he loves her so much. I just can’t wait for the day when she will tell him beyond her contagious smile that she loves him too.

Posted (Tina) in All Posts on June-14-2008

Yep, we decided to celebrate Father’s Day a bit early with Grandpa today.

It started out with him coming over to our house for breakfast. Josh cooked up a great meal while I took care of the Bun. The poor girl, she was uncomfortable for a lot of the morning. When I went to get her out of bed this morning, I noticed that the food pump did not run all night. This meant that she did not get 225ccs of food, which is almost half of her daily intake. So, I had to feed her more frequently via g-tube in a bolus fashion. It just meant that she felt full a lot of the morning; this made her fussy.

When we finished the meal, we drove over to Grandpa’s house. He needed a lot of help with little things around his house. So we packed up the Bun with her travel crib and DVD player and went to meet the dogs. Needless to say, the dogs were a bit excited to see us. Manny kept jumping on the travel crib because he wanted to play with Ella so badly.

It was great for me to get love from the dogs. I had not seen them since last November, when I came to Denver for a business trip. In any case, they did not forget me! We are so thankful that Grandpa has been taking care of them for the past year or so.

Once Josh was done helping out Grandpa (putting a chair together, fixing a door knob, updating his computers, etc), we came back to our house. I convinced Josh to go on a walk. The Bun had just been given some food, so she fell fast asleep in the reclined stroller. We went on a walk for about an hour, just as the sun was starting to set. It was beautiful.

Today was the first weekend day for the three of us. It was relaxing and felt good to spend time together as a family. We’re looking forward to many more as the summer continues.

Posted (jooosh) in All Posts on June-13-2008

TGIF! Had a great day that started early with me going to meet some other Christian brothers for breakfast. Awesome way to start the day.

After work we headed over to show our house to a prospect. I waited in the car with Ella while Tina gave the tour.

Once Tina was done, we drove over to the Southlands Mall, an outside mall just a couple miles from our other house. I took Ella for a stroll while Tina ran some errands.

Afterwards, we ate dinner at Noodles which worked well because we were the only ones using their outside patio. The weather cooperated too.

We’re having Tina’s dad over for breakfast tomorrow to celebrate an early dad’s day to him. We wanted to have breakfast at the Original Pancake House (very yummy), but we’d rather sleep in a bit, miss the germs, and eat at home.

Just looking forward to spending the weekend with the wife and the Bun.

Posted (Tina) in All Posts on June-12-2008

Ella had a good day. It was a good day for me and Grandma too.

It was one of the first days that we did not feel like we had to rush anywhere. No appointments during the day made it more relaxing.

Ella went to bed later last night which left time in the morning to have coffee on the patio with Grandma. That is one of those things we enjoy doing together. The weather was pleasant this morning, sunny and glorious with the mountains.

We did have some visitors at the house today too. First, our neighbor from our former neighborhood stopped by. She brought some cute summer clothes for Ella and of course, gave me a huge hug. It is so great to see familiar faces. Ella was asleep when she first arrived which gave some time for catch up.

Then a bit later, another visitor stopped by…she was too sweet. Although we have never met in person, she has been watching the blog and praying for us and Ella. She wanted to bring us some food. We have dinners, lunch, breakfast, etc. It was such a sincere gesture. This gave us an opportunity to meet a new friend…and she has 3 girls and another one on the way! So it is not as if she does not have a million things going on, but took the time to drive out and think of us.

The visitors were a welcomed change of pace and since it is hard to travel with Ella, especially with the oxygen, it is nice to have people come to see her.

In the early evening, I showed our house again to a different prospect while Grandma stayed in the car with Ella. We are still praying for the right tenants to rent our house. Also, I was able to visit with another neighbor from our old neighborhood. Once again, it is good to connect with familiar faces.

After that appointment, I dropped Grandma off at the airport. She was such a tremendous help in getting us settled into our house from Gainesville. Although there are still some things to do, it is much improved from the first time we arrived, less than 2 weeks ago.

Josh is working late tonight and has an early morning tomorrow. It will be the first day for me and the Bun to be by ourselves since we arrived in Colorado. I’m hoping for a fun and stress-free day.

Ella has another pediatrician appointment on Monday, June 23rd. I’m hoping that she has gained weight. Until that time, we are waiting for the OT and PT services to start. And aside from that, just trying to get into some sort of daily routine in our new environment.

Our baby girl is such a miracle and such a testament to God’s love and faithfulness. This is a difficult road that he has placed us on, but we look forward to seeing what He has planned in this next chapter.

Above all else, we know that this is not something we would have picked for ourselves, but that He knows best and that He will not have us endure anything that does not have a purpose. We just pray that we can continue to obey Him daily and follow His voice.

This article I read today provided truth and I thought I would share an excerpt:

His Sheep Follow Him Because they Know His Voice
by Katie Montei

The strongest desire I have felt during this painful season is for it to be over. Sometimes when we feel trapped in the valleys of life, we forget to listen for what God has for us today. I need to remind myself daily of the Psalmist’s declaration in Psalm 27: 13-14, “I am still confident of this: I will see the goodness of the Lord. Wait for the Lord; be strong and take heart and wait for the Lord.” I have learned that it’s alright to feel pain; God has never told me to ignore my pain, as if I were not hurt at all, but instead he directs me to continually offer it to him. When I come before the Lord in quietness of spirit, opening one hand in offering my pain, one hand in trust and hope, patiently waiting on him, I am able to hear his voice…The voice of God is not always so palpable, his presence is not always so concrete, but it is in the getting on with life and the hard work of living out our faith that we still need to listen carefully to the Shepherd who says, “My sheep listen to my voice; I know them, and they follow me…no one can snatch them out of my hand.” John 10:27-28.

Posted (jooosh) in All Posts on June-11-2008

We had a bit of a scare with Ella this morning. She started retching pretty bad and couldn’t catch her breath. She began to turn purple and it looked like she was going to pass out. I was about to get her emergency oxygen mask to administer blow-by when I noticed that one of her oxygen lines was not plugged in. Instead of plugging it back into the limiter, I plugged it directly into the concentrator and cranked it up to 3 liters. She started catching her breath…she calmed down…and her color returned.

This has NEVER been easy to watch. Her retching episodes are tough enough to get through, but they’re intensified when she can’t catch her breath. I pray that she’ll will outgrow the retching at some point. It’s so hard to watch. Thank God she recovered though.

Tonight she was being her smiley self for me. Grandma, Tina, and I played some Yahtzee while Ella looked on.

Grandma heads back to California tomorrow night, and boy we’re going to miss her. She’s spoiled us good with the cooking and cleaning.

We’re still trying to get into a routine. Hoping we can soon because I think this will help all of us.

God Bless our sweet little Bun.