Posted (Tina) in All Posts on October-14-2008

We’re home but it has been tough.

Ella doesn’t feel great. You can just tell. It makes it seem like we should not have left the hospital. We were just was tired of being in the hospital setting and pushed to come home.

Last night, she seemed uncomfortable. We decided to skip her nightly dose of diuretic since a) she has been too dry and b) she missed a bunch of food during the day. This morning, she was still not acting like herself. We called the docs, explained what we did last night and how she was behaving. Without hesitation, they opted to not give her the morning dose of diuretic (Aldactazide). They asked us to monitor her closely and to resume our regular schedule of medicines tonight.

She’s just not acting like herself. We miss our girl so much – – the one that feels good and is playful with lots of smiles. We had a small taste of that last week for a few days. But our theory is that she became too dry and is now uncomfortable. For example, today we could get her to smile but it took lots of coaxing just to get anything.

Now, the docs want us to go to the Children’s Hospital and get labs on Thursday, plus get on the scale. I was hoping that would be a 1x/week situation, but Ella is just too fragile.

Please pray for strength for Ella’s body. Our hearts desire for Ella to be feeling good and more like herself.

Joel Snyder on October 15th, 2008 at 2:20 am #

Ella, I am sorry to hear that you are not feeling well and praying that you will start to feel better tomorrow. Tina,Josh,and Kelly hang in and know that prayers and good thoughts are coming your way. I will check on all of you later. Love,Grandpa!!!!!!!!!!

Kathy on October 15th, 2008 at 4:07 am #

I’m sorry to hear she isn’t feeling up to par. She (and all of you) are still in my prayers!

Loren L on October 15th, 2008 at 6:26 am #

Feel better Ella. May God bless everyday you have each other.

megan sipprell on October 15th, 2008 at 6:53 am #

Goodmorning Doodlebug, I am sorry that you aren’t feeling well. Hopefully the tide will turn for you. As always sending you lots of hugs and prayers!

Joan and Steve Odell on October 15th, 2008 at 7:39 am #

Sweet Ella – prayers for improvement and healing – many hugs dearest – Tina and Josh = prayers for both of you for rest, healing and insight. Also for the medical staff that cares for Ella – our thoughts love and prayers are with all of you == Steve and Joan

Williamsburg on October 15th, 2008 at 7:42 am #

So sorry to hear that your homecoming has not been the one you wanted and needed. You are all in our prayers daily; please don’t hesitate to let us know of any way we can help. All our love. XOXOXO

Jennifer Harris on October 15th, 2008 at 8:16 am #

Perhaps it is just the transition and know that she will adjust to the change and her little body will fully recover. Praise GOD

Peace & Blessings

John & Estela Williams on October 15th, 2008 at 8:22 am #

Oh no, I was praying that she would feel at home after so many weeks at the hospital… I am so sorry guys! If you need anything, please let me know. Love you guys!

Dawn Franck on October 15th, 2008 at 11:05 am #

I am sad to hear she isn’t feeling well. I will be praying that she starts to feel better soon. Take care, Dawn

sherry martinez on October 15th, 2008 at 1:20 pm #

I was glad you guys finally got her home but sorry to hear she is still not ok. seven plus weeks in the hospital is a long time i will pray they can figure things out and keep you at home. love sherry and baby cayden

Evy on October 15th, 2008 at 2:44 pm #

Ella I hope you feel better!!!!

super nanny kelly on October 15th, 2008 at 3:25 pm #

I miss our little girl too. Its not that we don’t totally love Ella no matter how shes feeling, but its so hard to handle knowing this sweet baby girl is obviously suffering SO much and there is barely anything any of us can do about it. And it definitely stinks, but pure faith in God will pull us all through.

I always think of an old sermon the pastor at my church would five, about every 2 years. It talked about how when Mary found out she was pregnant with Jesus, unmarried, she was ridiculed because that was unheard of. But she turned to God and instead of asking God “why me?” she asked Him what next.

You two could easily question God and his motives and his “supposed plan,” but you choose instead to ask Him what He wants you to do next. The ability and willingness to do that is so unordinary, especially from people who have been dealt a hard hand. I love being able to look up to you both in all of your maturities as my own continue to develop, and I’m able to find the peace in knowing your hearts are entirely devoted to God and his promises. So, even in the most discouraging times, i’m praying for encouragement, and if not that, then whatever else it may be that God has in store.

Luke chapter 12 is about Jesus’ warnings and encouragements. “I tell you, whoever acknowledges me before men, the son of man will also acknowledge him before the angels of God. But he who disowns me before men will be disowned before the angels of God.”

He is so in control! So as hard as it is to just sit back and wait for his answers to be made clear, that’s what we’re called to do. He can handle all of us thoroughly. He’s got it all together. What great comfort!!!

Angie on October 15th, 2008 at 8:26 pm #

You guys are in my thoughts & prayers. Hope Ella gets to feeling better soon.

Laura Marold on October 15th, 2008 at 8:50 pm #

I’m praying for you three. There have been a lot of changes lately. Settling into a “new” place is hard even when we are not exhausted or feeling bad. Hopefully, the next few days will be better. Love, Laura M.

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