Posted (jooosh) in All Posts on October-18-2008

Ella had a great day. She’s doing good on the 24cal food at a rate of 25ccs per hour. This has played a big part in her mood.

We tried feeding her some apples, but it didn’t go well. She’s definitely taken a step back in this area. There was a time when she’d open her mouth for more food, but now, she just melts down. It’s hard to see this backward progress, but Tina reminded me that we were here before, and she’ll come around again.

At this very moment, the Bun is asleep, and Tina, Kelly, and I are outside enjoying a mild October night in Colorado next to our fire pit.

I know there are many of you out there who don’t comment, but you do check us out almost every day. Thank you for keeping up with Ella’s progress and for all support.

Amber Riley on October 18th, 2008 at 9:29 pm #

Love the headband. She is a doll!!! Thinking about your family often…

Super Nanny Kelly on October 18th, 2008 at 9:45 pm #

having the bun happy and at home is HUGE, especially mos that she’s much more comfortable. Labs Monday will hopefully tell us where we are exactly and then we can all figure out what steps to take to go up on caloric intake, as well as liquid volume. But as of now, I’m just happy that were in a good place to enjoy this beautiful October night.

John 12:36 says “put your trust in the light while you have it, so that you may become sons of light.”
only one person can intervene in our lives and bring happiness and fulfillment and satisfaction even when health fails, and we’re set back, and when posessions come and go and savings accounts dwindle and things go wrong. Obviously, that person is Christ. Apart from The Way, there is no going. Apart from the Truth, there is no knowing. Apart from the Life, there is no living. God says, “remain in Christ, and rest yourself. He is the Way, the Truth, and the Life.”

Its discouraging and disheartening to see ACH backward profress, I know, but like Tina said, we’ve been here before, so we’ll make it through again. I’m just so blessed to be able to be a part of Team Ella!!

Happy Saturday! Sleep well 🙂

Vicki/CO on October 18th, 2008 at 10:05 pm #

I can just see the three of you sitting on your patio enjoying the fire pit! What a perfect and beautiful night for that! It is so fun seeing Ella’s bright smile, and I’m so glad she is doing better even though there are bumps in that road! God bless you, all four, and may she just get stronger and better each day! I thank God for this precious little life, for the way He holds you up to do what you need to get done for the Bun, and for His leading Kelly to you! We will keep praying for wisdom for the doctors and you, too, and forward progress! Thank you so much for letting us be a part of your journey! Ella is so precious to all of us out here, too!

Pat & Bob Hadden on October 18th, 2008 at 10:25 pm #

You know Bob and I are always checking in on you. It’s so nice to see you relaxing at home.

Laura Blackwell on October 18th, 2008 at 11:21 pm #

These are terrific pictures! Thanks for the good news as well.

angie moore on October 19th, 2008 at 2:18 am #


Kathy on October 19th, 2008 at 5:02 am #

Ohhhh she looks so cute and happy today! God is so good, and I know He has great things in store for her!

Eli Brown on October 19th, 2008 at 5:56 am #

She’s an angel! Very cute pictures and yes we continue to read and pray for you daily

Aunt Marla on October 19th, 2008 at 6:19 am #

Hello my little bugaboo, how is my girl? You look so fabulous sitting up in your chair. So glad that you are feeling better and that you are back home with mommy and daddy and your new friend Kelly. Keep up the smiles and give mommy and daddy hugs from me. Love you!

Anne on October 19th, 2008 at 7:48 am #

you’re right… we check every day, even though silent! Happy Sunday! -Anne

Lisa Richmond on October 19th, 2008 at 8:07 am #

Absolutely we check everyday! Wait until that little girl is a teenager…You’ll have eyes and ears everywhere keeping boys away! 😉 LOL! aahhh…the fire pit…truly the best part of your house! Have a wonderful weekend at home with your BUN!…Our big bun turned 16 last weekend, passed the written of her driving test and takes the driving portion on Tuesday… Oh…talk about needing to say some prayers for all others on the road!!!
Seriously, we check everyday on you. Lots of tears shed…lots of prayers sent to you from Seattle!

Laura Marold on October 19th, 2008 at 10:32 am #

Hi Josh, Tina, Kelly, and Ella, So happy to seeing you have a relaxing evening after a great day with your precious girl. I hate to hear that she’s in pain and uncomfortable and it’s so nice that you are all doing well tonight. Here’s to a thousand more nights like this. Love, Laura M.

Joel Snyder on October 19th, 2008 at 12:04 pm #

Ella, Keep up the good work and steady progress you look terrific and I love those smiles. Have a great Sunday with Mom,Dad,and Kelly. I am praying that you will adjust to the food and soon we will not be worrying about it anymore. I will check on you later. Love,Grandpa!!!!!!!!!!!

Debbie on October 19th, 2008 at 12:11 pm #

I am another silent but faithful follower of Ella. You are all in my thoughts and prayers daily. Blessings, light and love to you! Debbie

Joan and Steve Odell on October 19th, 2008 at 12:34 pm #

October nights in Colorado are so beautiful. So glad you could enjoy these special moments. Ella, you look so good and your smiles are reflected in your eyes. Steady forward progress is the best. Hugs and prayers continue – Steve and Joan

Katy Nilsson on October 19th, 2008 at 12:50 pm #

Wow, I just realized she has Tina’s eyes. She looks so happy and I know you all are relieved to be home and somewhat settled.

megan on October 19th, 2008 at 3:25 pm #

Doodlebug you look like a princess… I am so happy that you are getting better. Progress regardless of the rate is a great things and I will continue to pray for more!

Schultz Family on October 19th, 2008 at 8:21 pm #

What a fabulous picture! All my kids just love keeping up with your family!
My three year old just points and says “OOh, Ella, she’s so cute! Aww..”
So glad today was better. Baby steps…
Praying for forward movement..:0)

Marge (Indiana friend of Keith & Liz Mueller ) on October 20th, 2008 at 7:54 am #

What a sweet baby girl…..I love the first picture and the love and experssion in Ella’s eyes…..she is such a joy to see and I wish her continued blessings from the good Lord above; may He continue to hold her in His healing hands. God Bless You always Ella.

Kathya Rodriguez on October 20th, 2008 at 9:43 am #

Am so glad Ella is doing better and on the part that you said that people follow her blog but don;t comment that is true this is my first comment and been following it since I found out my baby had CDH and that was in June. Well am so glad she is doing better. God Bless Baby Ella and also her wonderful parents.

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